making fun of my chronic illnesses

A blog where I vent my frustrations about my endometriosis, leg length discrepancy, HSD (or hEDS depending on which doctor you ask), POTS, migraines, gastroparesis, sleep apnea, and bulging disc diagnoses and possible MCAS, CFS, and fibromyalgia (and whatever the hell the other chronic illnesses are) and make memes about my pain/symptoms; literally an ask me anything blog I have no shame; andy/andi; any pronouns; 24; normal blog @idkwhatimdoingbutimgonnacontinue ; discord server with other disabled folk: https://discord.gg/MndTnUc958 ; discord server with endometriosis folk https://discord.gg/brJvceS ; discord server with EDS folk https://discord.gg/rRUm2NMYDQ reddit page where others talk about endometriosis https://www.reddit.com/r/Endo?utm_medium=android_app&utm_source=share

[talkethtothehandeth-deactivated]

Hello, I just found something really important if you’re chronically ill/disabled.

I’ve had to contact the crisis line before— both the phone hotline and through text. Whenever my struggles also had to deal with chronic pain or my disabilities, I would always hear the, “You’re so brave!” Or, “You’re such an inspiration.”

And we all know how that is.

While lying on a heating pad and being able to relax because to medicine, I finally got hit with the idea to search “Chronic pain text line” on Google. I found one that is ran by disabled people. This is located in the US, and I’m not sure if there are ones in different countries.

Replies won’t be immediate as there are certain windows of time (based on your location) that responders will be available, but you can easily check the calendar to see what times you’d be able to connect with someone.

If you’re interested, you can text CARE to

[phone]

It’s for every disabled person, those diagnosed, those undiagnosed, and anyone who needs support.

Take care of yourselves. 🌿

[disagigglebilities]

Ah the long held debate of someone with endometriosis of "do I really need to go to the ER when I'm shaky from either blood loss or pain?"

[disagigglebilities]

Having hemorrhoids is stupid cause I always stammer whenever I say the word rectum. Like part of me just wants to say ass hole but I don't think that is appropriate to say to your doctor

[autisticadvocacy]

The Trump Administration Aims to Penalize Disabled Adults Who Live With Their Families

A rule change pushed by White House officials would slash benefits or end support for as many as 400,000 Supplemental Security Income recipi

The Trump administration wants to make a rule change that would decrease or end benefits for SSI recipients who live with their family. As many as 400,000 disabled people may have their benefits cut if this rule change occurs.

[thatdiabolicalfeminist]

It's worth noting as always that as things currently stand, the MAXIMUM benefit a person can receive from SSI is $994 a month.

If two people on SSI are married, the MAXIMUM they can receive is $1,491 a month, total, for both of them. (Meaning marriage to another SSI recipient reduces your maximum income possible to $745 a person each month.)

Could you live on that?

Could you live on that without living with family?

[disagigglebilities]

Biopsy results said it was just a sunburn. I still think it wasn't but idk bro maybe. Either way if I put sun screen on, I'm typically fine. Hasn't happened again anyway. Lady said if sun screen doesn't work to take pictures and call and I guess I'll do that if it pops up again. I've gotten religious about sun screen when going out so at maybe I'll be fine. We'll see. Hard to believe a sunburn could be that itchy and swollen without like peeling. It didn't peel at all. Just slowly became better.

[disagigglebilities]

So apparently taking allergy meds every day can cause an increase in hunger and now I know why I gained all this weight 🙄

[disagigglebilities]

Still allergic to the sun. Totally worth it tho. I love being outside

[disagigglebilities]

Huh it's been a while since I've felt that sensation that predates a "not a seizure". Didn't know heat could trigger that sensation. I feel jittery and off now. Gotta love weird ass health issues

[disagigglebilities]

How does a guy smoke so much that he can be several feet away and still smell bad enough to trigger my allergies

[disagigglebilities]

Phantosmia vs hyposmia fight

Aka

Is this smell real or is it just I can't smell it enough to recognize it?

[disagigglebilities]

Feeling my armpit lump and like is this bitch getting bigger??? It's definitely changed shape. It is still uncomfortable too. I really wish it'd just go away.

[disagigglebilities]

Annoying my rheumatologist again cause fuck why not

[disagigglebilities]

So apparently I need a follow up with my PCP about the lump in my armpit which has not gone away for about 6 weeks now. Istg if I get breast cancer imma be so pissed

[disagigglebilities]

I have what I can only describe as a "hed akc"

[disagigglebilities]

Broke my streak of not falling today ✌️🤣😭

[disagigglebilities]

And now I'm taking propranolol three times a day xd. It'd be nice if my pots would stay steady instead of changing one way and another. Now I'm doing less midodrine and more propranolol. What will come next?

[disagigglebilities]

I hate doing ultrasounds cause I spend the whole time trying to read the techs expression except I 100% fail to read facial expressions so I'm just stuck being confused