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I can't talk right now, I'm doing hot girl shit*

*physiotherapy exercises to help prevent my disability from progressing

#chronic fatigue syndrome #pots possibly #pots community #pots #it seems to be working for me as I took my first walk in the park without my walker for the first time since my faint!#still not a fan of the physio exercises tho. my brain goes brrr

I'm always in some kind of pain somewhere and I don't think that's normal🫠

Laying down with a hot water bottle and coping

#thoughts #POTS possibly

It's currently 38 degrees (100 for you usamericans) where I live.

Last week I tried to push through it and do my normal tasks and physiotherapy, but I don't think that's going to be a valid strategy for me the rest of the summer: I'll probably have to spend more time bed-bound than I'd like to (read: 5-10 of my waking hours each day).

I'm thinking of starting a summer challenge for POTSies and other people whose disabilities get worse in the heat, like NaClYoHo (national clean your home month) or NaNoWriMo (national novel writing month). Does something like this currently exist? Any ideas on what the challenge should be?

#pots possibly #pots #pots community #chronic illness #mental illness #myalgic encephalomyelitis #cfs/me #chronic pain #summer

Me: despite knowing that I will be in a lot of pain later if I don't do it for the five hours shift, I don't put my knee braces on.

Me five hours later with my entire lower body in enough pain to make me want to not walk around at all:

#heds #probably #hypermobility spectrum disorder #hypermobility #pots possibly #apparently i was around an 8ish on the pain scale when i asked my fiancee to see where #“pushing through it but having to sacrifice some things getting done tonight because i wont do a lot of it otherwise bc of the pain and #being tired“ was on the pain scale. apparently the way i said it described around an 8. i thought i was naybe at a 4/5? lmao #i apparently had gotten to the oint of out of it/derealizing/disassociating/something when i got to my car #took a half hour to just drive the mostly empty interstate and blast music at full volume #and then called my fiancee when i felt real/like a person/aware again #basically when i could turn the music down bc it began to be irritating and overloading instead of comforting.#usually that measn im more regulated. somehow. lol.#chronic pain #if i dont wear knee braces tommorow this only gets WORSE lmaok #also i think i might be developing allodynia or whatever its spelled when touch causes pain?#specifically on my legs. no knee braces means any contact on legs hurts. including clothes 😭

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