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my body just wants to be horizontal

#rambles #i dont want to hold my body up anymore #my body feels heavy #chronic fatigue #extreme fatigue #chronic fatigue syndrome #chronically fatigued #fatigue #pots episode #pots community #potsawareness #pots syndrome #potsie #pots #disabled community #chronic illness #chronic pain #disabled #disability #actually disabled

hey girlfriends !!! after a year of what felt like countless appointments, ive recently got my diagnosis of postural orthostatic tachycardia syndrome (pots). was hoping to find a community where people with pots & other chronic illnesses can share experiences and advice with eachother <3

#pots syndrome #postural orthostatic tachycardia syndrome #chronic illness #chronically ill #dysautonomia #pots community

I can't talk right now, I'm doing hot girl shit*

*physiotherapy exercises to help prevent my disability from progressing

#chronic fatigue syndrome #pots possibly #pots community #pots #it seems to be working for me as I took my first walk in the park without my walker for the first time since my faint!#still not a fan of the physio exercises tho. my brain goes brrr

A little bit ago I got a pair of compression socks from Walmart for $10 and I tried them out yesterday. I am actually really impressed with the quality and I really like them, now I wish I could just afford a few more pairs for the whole week 🥹 they even had a really cute pink pair I'd love to get

#compression socks #pots community #potsawareness #potsie #pots syndrome #pots #disabled community #chronic illness #chronic pain #chronic fatigue #disabled #disability #actually disabled

My pots has been in a pretty bad flare the last two days and I know I'm only making it worse by drinking energy drinks, but I don't have any other way to combat the intense amount of fatigue I have throughout the day 🫠 idk what I'm even supposed to do at this point? I mean I do know but I'm not willing to admit it yet I think, but I need to just let myself stay in bed for a week or so and actually let my body rest instead of pushing through and pushing through 😅 but instead I continue to do stuff that makes me feel awful, my heart feels like it's aching to be let out of my chest, god I need to let myself rest

#rambles #disabled community #chronic illness #chronic pain #chronic fatigue #disabled #disability #actually disabled #pots episode #pots community #potsawareness #potsie #pots syndrome #pots #extreme fatigue #mental fatigue #fatigue #chronically fatigued

My POTS is flaring up even though I've been in bed all day lmao bc of course, why not? 🫠

#disabled community #postural orthostatic tachycardia syndrome #pots episode #pots community #potsawareness #potsie #pots syndrome #pots #chronic illness #disabled #disability #chronic fatigue #actually disabled

It's currently 38 degrees (100 for you usamericans) where I live.

Last week I tried to push through it and do my normal tasks and physiotherapy, but I don't think that's going to be a valid strategy for me the rest of the summer: I'll probably have to spend more time bed-bound than I'd like to (read: 5-10 of my waking hours each day).

I'm thinking of starting a summer challenge for POTSies and other people whose disabilities get worse in the heat, like NaClYoHo (national clean your home month) or NaNoWriMo (national novel writing month). Does something like this currently exist? Any ideas on what the challenge should be?

#pots possibly #pots #pots community #chronic illness #mental illness #myalgic encephalomyelitis #cfs/me #chronic pain #summer

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