#pots warrior

[tragically-torie]

The fibro is flaring and I just want to like shut off my body. The pain in my shoulders and neck was so unbearable today that I was in fight or flight most of the day, just adrenaline dumping over and over again. I hate the way it makes me feel like my body is against me. I get anxiety every time I make plans. I'm worried I'll flare up and have to lay down on the ground, or vomit, or faint, or leave. Honestly the worst is when it happens around people that don't know what's happening to you and you have to explain how they can help while your vision and hearing fade in and out. I hate feeling like I'm spoiling the fun because of my illness. The closer it gets to June the more afraid I am that this bullshit will fuck up my wedding. Sorry everyone I'm just really sick and sad today.

[love-starfruit]

hey, i’m going to make this as short as possible.

my disabled friend, kyle, needs help. he has pots (postural tachycardia syndrome) and it causes blood to pool in his hands and feet, leaving him with immense pain and dizziness, nausea, etc. the pain has been affecting him daily and has dramatically reduced his quality of life. after a lot of research, he determined that getting a wheelchair would be the best course of action. his mother does not believe he is disabled so he can’t get medical attention, and he only works a minimum wage job, so he needs help raising money for this purchase. 

out of the $780 goal, i am proud to announce we’ve raised $680 in just two days! this means we have just $100 dollars to go until he reaches his goal. 

HOW TO HELP: donate at the link, share with your rich friends, do what you need to do to spread this around. thank you!! we appreciate your help. 

link: https://gofund.me/3a7cc230

[tragically-torie]

Having a lovely little flare up this weekend! On Saturday I was fighting my body to stay awake. My body won and I slept for 12 hours during the day and then gave up and just went to bed for the night. Sunday was just a typical dizzy day where I couldn’t stand for more than like 5 minutes without a blackout. Today I was feeling really good and then I got crazy dizzy at work. My boss knows about my condition and told me to sit and get my shit together for as long as I needed….well the dizzy got so bad that I threw up a bunch and now I’m at home :(

Flare ups like this make it hard for me to love my body and be kind to myself. I’m just trying to remember that a lot of people have it worse than me but fuck y’all I’m feeling sad for myself today. I just want to have a normal body that doesn’t do mean things to me.

[tragically-torie]

I just realized how fucking amazing foldable fans are? Like I have POTS and take SSRIs so I’m overheating constantly during the summer. Why didn’t I think of this? Everyone always tells me to use those handheld electric fans but like I think those aren’t cute. But FOLDABLE fans?! Kinda hot and sexy and elegant.