#probable potsie

[punkwhenihavethespoons]

Just wanted to share something positive a doctor said to me recently, cause I feel like we don't get enough of that in this community. For context, my new cardiologist, who I am seeing because I probably have POTS, told me my heart sounded normal after a brief examination. I got a bit scared she was going to dismiss my concerns, but then she said: "Just because it's not happening right now doesn't mean it doesn't happen." Then she went ahead and ordered a bunch of tests to see if I really do have POTS. I think that's the first time a medical professional has truly believed me. I have a follow up in February to go over the results. Fingers crossed.

[punkwhenihavethespoons]

I was home for spring break which means I had 4 doctors appointments and 3 different tests done... I'm exhausted. I thought spring break was supposed to be a break, but I'm desperately wanting to just go to classes like a normal 20 year old and not have to think about all this

[punkwhenihavethespoons]

it took me almost 2 hours to gather the energy to take a shower after work today... I think I'm going into a flare up

[punkwhenihavethespoons]

scheduled my tilt table test. it's in three weeks. how scared should I be??? someone tell me (honestly) that it's not as bad as I think it's going to be

[punkwhenihavethespoons]

I can't stop thinking about how much easier my life would be with a wheelchair... and I don't know how I feel about that

[punkwhenihavethespoons]

I passed out at my practicum today. The kiddos who noticed were all super concerned and my mentor teacher was super sweet as always offering to get me whatever I needed and apologizing profusely about being too distracted to realize I had actually passed out. Fuck, I might love her.

edit: how did this start with me talking about my chronic illness and then turn into me gushing about what a good person my crush is?

[punkwhenihavethespoons]

I went to the stores with my roommate earlier and I didn't bring my cane. I was feeling surprisingly good and figured if something did happen, she'd be there. it was so nice to just look like a normal 20 year old and not have to deal with stares or comments. now I'm paying the price. my legs feel so heavy and I'm super nauseous... but what a nice illusion it was to be 'normal'.

[punkwhenihavethespoons]

just wanted to celebrate 1 year since I got my first cane/ first ever mobility aid!