As a special needs mom, we try to stay strong for our kids and accept them for who they are, love them where they are, and ignore the stares from others surrounding us. The other day as I was walking through hobby lobby getting materials for work, I had both Amir and Jojo. Amir is fairly easy to respond to as he smiles,plays,etc more like a typical little boy..Jojo not so much. An older woman squatted down next to him and wished him hello,started rubbing his arm,smiling,carrying on a typical conversation with him like he was any other child..then looked up and asked what he had. I explained that he had cerebral palsy and she then broke down right in front of me,crying...explaining she just lost her granddaughter a month ago to Rett Syndrome..she was 3yrs old. I should have known that she was a special needs family with how she connected so well with Jojo. So there we stood, in the middle of the store of hobby lobby, holding each other. This is a special needs moms worst nightmare that she was living. We fight, we love, we walk each day with the knowledge that someday this could be us standing empty handed in a store sharing our story of the child we once had. It’s terrifying. The next morning, as I pulled Jojo out of the tub, it hit me, and I just sat holding him,smelling his sweet smell,crying. I’ve gotten to the realization my son isn’t going to get better. Chances he’s probably not going walk or sit by himself..and a simple cold could take him from me. My kids are my world...my breath I breathe every day. I thank God He has given me these days with my son and I pray I have many more with him. Pray for us parents battling for our kids and please pray for our kids too. It’s such a hard journey...#cerebralpalsy #specialneedslife #specialneeds #specialneedsmom #specialneedsparenting #village #epilepsy #meningitissurvivor #supportyourfriends #prayer https://www.instagram.com/p/B2yqz9gljqo/?igshid=1n61m1j9rzg5d
