TFW: you aspirate on ramen noodle juice ✨
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TFW: you aspirate on ramen noodle juice ✨
Its extremely hard scrolling though social media and seeing people live the kind of life you want. But being chronically ill you can’t have that lifestyle. You can’t live the life you wanted, you can’t truly be who you want no matter how hard you try. The envy, jealousy, and down right desire to be someone else is so strong sometimes. It’s hard to process...
shout out to all the people with a chronic illness or disability that get put down by others because their disability isnt always visible. youre all doing great, take life step by step you can do it, im rooting for you
This is a friendly reminder to those who are not physically disabled: mobility aids are an extension of the user's body, and not only is it incredibly rude to touch them without permission, it is incredibly invasive and violating!! Please ask permission first and also remember that NO MEANS NO!!!!
You would NOT believe how many times people have said, "ooh, are you planning on doing anything fun while you're there?" in response to me telling them, "I'm going to another state to have spinal surgery." SPINAL SURGERY. Someone even doubled down and said my parents could go do something fun while I'm recovering (I have to stay until my post op appointment 10 days after the surgery)???? And leave their already disabled daughter alone in a hotel room AFTER SPINAL SURGERY??? WILD.
Anyway, I'm having surgery tomorrow, feel free to tag me in anything fun I'll miss in the next few days or so! ✌️
YA GIRL CAUGHT A BREAK. I most definitely have tethered cord syndrome, it's apparently not even a question. So I don't know when yet, but I'll be getting surgery! Spinal surgery is scary, especially considering this hospital is in another state, so that'll be rough but I'm desperate so we'll make it work 😭
T-minus 10 days to my surgery and I cannot WAIT I am losing my mind over my symptoms today 😭 Nothing like your condition rearing its head with a vengeance to make you get over any fear around spinal surgery and the pain of recovery lmfao
Happy EDS & HSD awareness month to my fellow zebras 🤍🖤