#stolencolon

[rachelfolkster]

So happy to be here this Thanksgiving; twice this year we were so close to this not being the case. Also so happy the hubby and I have gotten wicked good at keeping my cane out of pics! Happy Thanksgiving IGers!! . #chronsdisease #multiplesclerosis #completecolectomy #mswarrior #stolencolon https://www.instagram.com/p/BqgWiHklLqe/?utm_source=ig_tumblr_share&igshid=ibi8qqqwqxtr

[rachelfolkster]

This is my “Why yes! I am still alive!” post. This is just for an MRI, I’m still out!😁 It’s been a bit of a rough road since my #colectomy - kind of a rough road since December but I’m still kicking. Well...not kicking, thus the wheelchair 😂 We’re still having trouble with malnutrition (see photo. my first thigh gap and I can’t even enjoy it!🙄) which is why my hair is still falling out and I can’t do much about my weight. We’re up to 22 prescriptions and living on an Ensure diet but I’m still happy. I’m still pretty damn sick, pretty damn tired but I am alive. When I went into the hospital the last time my large intestines were Dying. I was Dying (I always think of it in caps now). How lucky is it that they have a way to keep you alive after removing your intestines? Yes, it is a 💩bag that hangs of my (now) very flat stomach but the alternative? Bring on the 💩bag. It’s still not easy to mentally grasp all that has happened and honestly, besides doctors appointments, I haven’t left the house. I’m embarrassed about my hair, the chair, the 💩bag and all the weird stuff it still does. I’m physically exhausted and self conscience but happy. Happy to be alive. Happy to be home. Happy that some knitting is happening and happy to report that my good mood is still intact. This other stuff, the fear and insecurity will eventually wear off - I’m just thrilled to be alive to see it. Happy Sunday IGers! #crohnsdisease #crohnswarrior #multiplesclerosis #mswarrior #ostomy #ileostomy #stolencolon #happytobehere (at OSU Medical Center) https://www.instagram.com/p/Bny6lA_H2eC/?utm_source=ig_tumblr_share&igshid=xx4t9v024eeh

[rachelfolkster]

After spending the day at the hospital trying to get a handle on both pain and a very low potassium level I’m home - which is great! What’s not great is they are saying five more days of bedrest to give my heart a rest and maybe try to gain back some of the now 13lbs I’ve lost since the 19th. . 🧶. I have tickets to the fiber festival tomorrow at Nationwide in Columbus, OH and can’t go ☹️ Sooo....IF YOU ARE IN THE COLUMBUS AREA AND WANT A FREE TICKET FOR TOMORROW - DM ME! FIRST PERSON TO ANSWER WILL GET THE TICKET! Just need an email and I’ll forward my ticket. . 🧶. It’s hosted by @614knitstudio and @yarnhoarder will be there. And while it is killing me to miss it I hope someone will get to enjoy. If not, at least I’m supporting small business here in town! . 🧶. #crohnsdisease #crohnswarrior #mswarrior #stolencolon #atleasttheyletmegohome https://www.instagram.com/p/Bq03MIHlNAA/?utm_source=ig_tumblr_share&igshid=19vqa7k3xpgce