#chronsdisease

[omguts]

[lgbtqreads]

Incredibly, this summer brings not one, but *two* queer middle grade novels, starring main characters with Crohn’s diseases written by beloved authors of queer Kidlit. Considering what a huge gap this has been in disability representation, seeing them next to each other gives me a lot of Feelings. (And you can get those Feelings too if you preorder them now! Sorry, had to.) #LGBTQReads #MGLit #Crohns #ChronsDisease #Disability #BNPreorder25 https://www.instagram.com/p/CrlcPj6rAGN/?igshid=NGJjMDIxMWI=

[seven-oomen]

I hate having a hostile digestive system. Whoever came up with the idea to give certain people random moments of pure agony should be Hung by their toes upside down.

[rabbitfootbutch]

crip life is just realizing everything is a tool if i try hard enough

[genuinebluff]

stop fucking blazing your SHIT posts bro. If they're not getting any notes it's because they aren't funny, NOT because "not enough people saw it". god I hope you get diarrhoea in public.

CONSUMER,

You said you struggled with "diarrhoea in public". The Genuine Team sends our sincerest sympathies and hopes you can find solace in the knowledge the Genuine Team also struggles with Tummy Troubles.

Follow @crohnschronicals for memes about having tummy issues

Follow @genuinebluff for memes about nonsense

Image Transcript

Diarrhoea(diarrhea) In Public?

Diarrhoea(diarrhea) In Public Is No Joke! If You Struggle With Your Gut, Do Not Be Ashamed & Check Out The Blog Linked Below For Memes And Camaraderie.

[kenyscouch]

the pains of genetically inherited diseases

so basically, i found out about 2 years ago my mom has chrons. it didn’t seem super important, cause i had no idea what it really was. basically it means your stomach can be really sensitive to certain things and can cause you to have severe stomach aches, diarrhea, nausea, vomiting, etc.

Well earlier in 2022, my brother got hit with his first chrons-type reaction, and he lost a shit ton of weight (because occasionally with chrons/uc you get malabsorption where your body takes little to no nutrients from the food you eat) and he was throwing up and was really sick. that’s how he found out he had chrons.

Skipping ahead a few months, i was in italy on a trip with my family when i started to get severe stomach aches and nausea after eating meat, drinking milk, and sometimes even just plain old pasta. i was so goddamn confused. then i started to loose weight (which is weird for me because i don’t really gain or loose weight cause i’m generally fit). The stomach aches only got worse, i started throwing up after certain meals, and sometimes couldn’t eat from the fear of the pain.

that’s when everything clicked. basically, i found out i ALSO have chrons. so there are some things i can eat that won’t kill me, and others that will put me in bed for 2 days straight.

long story short, if your parents have hereditary disease, please don’t ignore the signs that you might have it as well.

also for those who might be worried about me, i’m fine, im still feeling out what i can and can’t eat (because it’s different for everyone) but generally i’m doing pretty great and am back to a normal healthy life.

[owlcatz]

the more I talk to people, the more thankful I am for the ridiculous amount of luck I've had with access to medication. tldr I was going through a super rough patch health-wise at the end of 2021 and beginning of 2022. I'm talking vomiting things that should Stay Inside, severe bowel issues, lethargy, not being able to absorb nutrients, stuff that should have sent any normal person to the hospital. I got super lucky.

colonoscopy, endoscopy, biopsies, blood work, and countless doctors visits I get a Crohn's AND Celiac diagnosis. idk that's like a sub 8% chance to have both, something silly like that. my liver and kidneys were on the verge of failing, I was prediabetic because nothing was Working Properly, I had high blood pressure and tachycardia, and all I could do was sleep.

time for the lucky part. my doctor, this amazing man who happened to do his residency at the clinic I go to, immediately prescribed me Remicade (inflixmab) infusions. my skin was so fragile I'd cut myself on blankets so he absolutely refused to let me do Humira injections. this guy took one look at my chart, compared it to me, a SEEMINGLY healthy 24 year old--despite all my organs not wanting to work, I was too damn stubborn to admit I was starved of nutrition and unable to function normally, I LOOKED fine--and effectively saved me from needing my colon removed.

so many people struggle so much to get on this drug and I am also LUCKY enough to be in the 20% ish of people that see a near complete remission in 6 months or less. I am LUCKY enough to have a shitload of doctors that don't assume I'm okay because I *look* healthy. I am LUCKY enough to have a job that allows me all the time I need to take care of my health without docking my pay. I am so very LUCKY to have friends who will care for me and my animals when I have struggles.

now that I'm running into my first issues with insurance, my first instances of late doses and severe reactions due to drug changes because of insurance issues, to be referred to a different (but amazing) AIC where I have to work with new people to get the care I need, I realize just how lucky I have been this year, and I am so thankful to be healthy enough now to withstand these hurdles 🙌

that being said, if I have one more insurance agent tell me that Inflectra is "basically the same as Remicade" so they don't know why I'd have a reaction, I will force them to be the ones to watch me suffocate on the floor out of sheer annoyance 😡

[herbwicc]

Happy Sunday @ my fellow spoonies, let's refill these pill boxes 😎 this week we will find true moments of peace from our symptoms, lasting long enough to truly soak it in and do something we love and enjoy. Así será ❤