#mswarrior

[ween-o-hall]

Hello,

My name is Alexis and on August 5th 2023, I was diagnosed with Multiple Sclerosis. I received a spinal tap on August 7th which left me unable to work for two months due to complications from said procedure. Once healed, I finally was able to go back to work, and shortly after succeeded in landing a new job. I made both my boss and my hiring manager aware of my new diagnosis during my interview, and informed them that I had multiple appointments that I would need to go to in order to properly treat both my MS and multiple other symptoms I’d acquired due to the flareup that hospitalized me, and they both agreed that it wouldn’t be an issue, that they’d be more than happy to accommodate for me to go to them. Unfortunately, that was a lie.

On November 10th, my boss pulled me into her office, and informed me that my appointments needed to stop as everyone else works full time open to close (which I also did, I just had appointments I needed to attend) and because of that, they could no longer continue. That is 100% disability discrimination, and after pondering over where to go next, I decided it was in my mental/physical health’s best interest to resign from my position. Doing what she asked of me would eventually lead to permanent loss of my motor functions and even the potential loss of my ability to speak and swallow. Now, I am back to square one, and am reluctantly asking for your help in keeping my bills afloat as I continue my search for another job that’ll be more understanding towards my disease.

It is incredibly hard for me to ask this, as I have always been the go-getter type who put their responsibilities first above everything. As of late, I unfortunately haven’t been able to do so, and with me having 4 cats along with my monthly bills, I am at a loss as to how I’m going to continue to afford this while I wait to hear back from the companies I have been applying for.

I am beyond grateful for any contributions you may send my way, and there aren’t enough words in the English language that could properly express my thanks for your help through this rough time in my life.

Thank you, from the deepest depths of my heart. ❤️

LEX IS SEEKING AID AFTER DISABILITY DISCRIMINATION, organized by Phoenixx Keefe

Hi my name is Phoenixx and I am helping my best frie… Phoenixx Keefe needs your support for LEX IS SEEKING AID AFTER DISABIL

[thisiswhatafighterlookslike]

The Pressure To Be Brave

"You Are So Brave!" How often have we heard this said to us? Most times, people truly mean well when they say this. They are doing their best to be encouraging from their perspective of things. However, for many of us who are surviving cancer daily, those four words are filled with so much pressure and expectation.

When people see us maintaining our lives, managing families, enduring all the craziness that comes with living with this disease, they see bravery! Well, there is truth to that. But the real truth is we are just giving our all to live every day and live our best! It takes a lot of work just to maintain our "normal" lives.

Am I a superhero?

Indeed, we are strong and courageous. We fight uncommon battles for our lives absolutely every day. However, knowing that people can see you as this 'cancer superhero' and being given this subconscious permission to be brave, #BeatCancer, #KickCancersButt, #FightLikeAGirl, and all the other awesome hashtags can be overwhelming!

We didn't choose this fight

We definitely appreciate the love and encouragement! But the reality is that some days we are just SICK! There is nothing we can do about it and to be honest, we don't even have the energy to do anything. We get weak. Not tired but fatigued; downright exhausted! We have mood swings. We battle depression and sometimes it actually fights back...and wins! LOL!!!!

We deal with feeling isolated and alone. We are oftentimes in pain. We are in agony, and it doesn't always go away. Some of us live in pain. We lose weight and we gain weight! We lose our hair, our precious hair! Until you have experienced this, you just have no idea what this does to someone. We think about our mortality more times than the average person does.

Tell me it's going to be okay!

So, it's not that we don't want to be told we are brave. Here is the thing, we know living with cancer requires a special measure of bravery. We know we are brave. But it would mean so much more if we heard, "It's going to be okay", "it's ok to feel how you are feeling", or "no matter how you feel today, I will be here to help and support you!"

Our loved ones believe they keep us strong by coaching us through this and pushing us. If they just speak positively and keep us thinking about how we "should" think then we will feel and live how we are supposed to. Please remember we are human beings with real feelings, who happen to be surviving cancer daily. Just let us be that that's how we are Brave!

Leya R. Elijah

This Is What a Fighter Looks Like

CEO/Founder

[liefsjojo]

Overprikkeling

Overprikkeling is als een storm die in je hoofd woedt. Geluiden komen te hard binnen, als een tsunami van decibellen die je overspoelt en je doet verdrinken in een zee van ruis. Licht is teveel, als een zon die te fel schijnt en je verblindt, waardoor je je ogen moet sluiten en je jezelf moet terugtrekken in de schaduw.

Gesprekken volg je niet meer, als een radiosignaal dat verstoord wordt door interferentie, waardoor de woorden in je hoofd verdwijnen en je verloren loopt in een doolhof van gedachten. Hersenmist, als een dikke nevel die je hersenen bedekt en je verward maakt, waardoor je niet meer weet waar je bent en wat er om je heen gebeurt.

Overprikkeling kan je heel ziek maken, als een virus dat zich in je lichaam nestelt en je helemaal overneemt. Het kan je alleen laten voelen, als een verlaten eiland waar niemand je kan bereiken en je vastzit in je eigen gedachten. Maar vooral kan overprikkeling je onbegrepen laten voelen, als een vreemdeling in een wereld die te snel, te luid en te fel voor je is. Het is als een schreeuw om hulp die niet gehoord wordt, als een stil verdriet dat verborgen blijft.

© Liefs Jojo

[marinelp]

Nail art warriors for Maria 🧡 • 🇫🇷 Ce post spécial est dédié à notre Nail Art Warrior aka Maria de @so_nailicious 🧡💙 Comme certaines d'entre vous le savent peut-être, Maria est atteinte de la SEP (sclérose en plaques) et la maladie lui a, entre autres, fait perdre sa capacité à réaliser de magnifiques manucures. Maria, avec cette collab, nous tenons à te dire de continuer à te battre telle la véritable guerrière que tu es ! • 🇬🇧 This special post is dedicated to our Nail Art Warrior aka Maria from @so_nailicious 🧡💙 As some of you may know, Maria has been diagnosed with MS (multiple sclerosis) and the disease took away her ability to paint beautiful nail art designs, among others. Maria, with this collab, we want to tell you to keep fighting like the warrior you are! • Thank you Magda @redheadnails for organizing this collaboration. All of our creations can be found under #nailartwarriorsforMaria 💪 • Girls involved in this collage: @aleksandras_bunte_welt @geolena_koski @gotnail @jemima.nails @lochnailsmonster @kathagraphie @nailistayco @marinelp91 @lacktraviata @mission_polishable @paulinaspassions @hefersanja @zephyronica @nailart.by.nici @bentesorberg @nailartfan95 @coffeeandnailpolish @mettedamgaardpedersen @rums2016 @dc_nailsart @katieabheda @barbouilleuse @crenailit @megans_manicures @ledanails82 • #ms #msawareness #mswarrior #mswarriors #spreadingorange #invisibledisease #endms #multiplesclerosis #thisisms #spreadingorange #msawareness #nailsforthecause #nailscommunity #nailart #stampingnailart https://www.instagram.com/p/CoK0k9Mtf6i/?igshid=NGJjMDIxMWI=

[pixels-for-progress]

[mswarriorjourney]

Some incredibly raw and powerful images of Selma Blair attending her first public event since her MS diagnosis. Vanity Fair Oscar Party following the 91st Annual Academy Awards on February 24th of 2019. 

[lottesfitnessworld]

I got a new instagram acc where I talk about not only fitness but also my life with multiple sclerosis, living with a chronic illness, motivation, inspiration and food 💕🎗

https://www.instagram.com/chasingdrea_ms/

Make sure to stop by ❤️

[golddglow]

A chapter closed, Masters 👩🏾‍🎓