I remember when I first started out on Stribild, I was desperate to hear from people who was already on it, and more so, people who had been on it for a long time. Since the regimen at the time was so new, no such info was available, so I just had to make the jump.
A few blogs here helped me though. The words and experience of aaronlaxton helped me a lot, and made me decide to do a similar blog. This is my chance to pay that back.
Life is good. It is as normal as I could have ever dreamed it to be. When I first got HIV I felt I would be forever doomed, and probably crash with a massive depression or worse. No such thing happened. Sure it was tough, especially the first 4 months or so. Today I cant believe I waited almost 2 years to start on medication. If I was to make that decision today I would start out immediately,
But back then Atripla was the only one-pill treatment, and I didnt want that. Today there are more pills on the market. I would not be afraid to recommend Genvoya to anyone. Start as soon as you can. No reason to walk around with that crazy virus in your system for more than is absolutely necessary.
I still take the pill in the morning, with that Pillboxie app reminding me, at 10am. So If I forgot it at breakfast, the notice will help me remember. A few times I havent had Genvoya available, and only an old glass of Stribild, so I just took the Stribild pill. Doctor says its no problem. You can switch between them without risking resistance.
So there, If I knew what I know now about how I would feel at this point in time, must distress and worry would have been put to rest.
Let me tell you this. If you have just gotten HIV or are just starting out on a new regiment, don’t worry, life will be awesome again, and pretty soon too.
I have had no side effects for years. The only thing I had was in the first 4 months. Half of that can probably be ascribed to the fact that I felt very uneasy about hiv/drugs. On day 3 I had a rash, that disappeared after a good nights sleep. I felt alittle lightheaded the first few days, but after that it was only the vivid dreaming that worried me. That vanished completely after about 3-4 months. Maybe earlier.
What you are left with is the Stigma and the trouble of telling a partner that you have HIV. Those things are not easy. In regards to a partner, its better to tell it sooner rather than later. You risk that the break of trust for not telling, will be worse than the fact that you have HIV.
The risk of transmission of HIV while on a good regiment today is zero. You are not putting anyone at risk of anything, as long as you take your pill, and your virusload is otherwise undetectable. I know that, you know that and your doctor knows it. The science is there to back it up. So don’t worry.
Any good doctor will tell your partner that there is no risk at all.
Still, it is something you want to let your significant other know pretty early on.
I still havent told the world. Cos in the end, who cares anyway. I for one don’t. If I feel like saying it to someones face, I do. Other than that I keep it to myself.
I don’t tell people what vitamins I take everyday. I couldnt care less for them to know. Its the same with Genvoya for me.
Nobody really cares anymore. At least not in this part of the world.
I remember getting angry at my doctor for acting like he couldn’t care less if I had HIV or not. I couldn’t believe he could take it so lightly. But then, time passed, and I realized he was right. It was not a big deal. Almost boring and tiresome for him, no excitement, nothing ever really happened with his patients. Which was a good thing, as he said: You don’t want for it to be exciting.
In the end HIV is not a big deal. Trust me, its not. At least it won’t be for you either, pretty soon :)
Good luck out there. Relax, be nice and dare to love.
/cody