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As a person with a severe physical disability, I need a lot of help just to survive. My entire life is one of interdependence. There are sh...

"I want to be a friend, not a service project."

#disability #friendship #support work

i still work as a support worker btw but i havent felt like talking about work quite as much as before i guess? unless something really pisses me off haha

im still loving my job a lot. today was a particularly awesome day which i really didnt expect, because i was working with someone i havent worked with in over a year who is super energetic and boisterous, and i was really tired this morning

but literally it was like the perfect day. we went to a massive park, had lunch at a picnic bench and frolicked in a huge field in the sun for hours. the boy i was supporting made friends with a girl who has recently come back after not being in the service for a year, and the two of them were hilarious and adorable together, it was killlllling me

highlights:

*he’s amazing at yoga but loves to go into downward facing dog, prompt you to do it too, then launch himself at you so you both land in a giggling heap

*piggybacks, lift and spins, human horsey rides...he is a young teen and not a whole lot smaller or lighter than i am!!! i felt powerful and yet, also like i was taking my life in my hands

*the girl was sitting cross-legged on a picnic blanket and if i was in reach she tickled my ankles, so the boy would push me forward as bait and then yank me back when she went in for the tickle, and this happened over and over and over while they both laughed fit to burst

*they grabbed one of my hands each and ran a few metres then flung themselves to the floor and dragged me down with them, over and over, to the point where my knees are all bumpy and sore from the impacts, all of us laughing fit to burst

*seriously just so much laughing and so much playfully bullying me and flinging me about!

*a staff member was reading to the girl but the girl was being mischievous so instead of listening she was doing her version of ‘boo!’ which is essentially ‘eep!’ and as she does the sound, she jumps as if she has startled herself and i cant adequately describe how cute and funny this is but...VERY

it was just the best day! almost everyone else had a fucking terrible day for logistic and interpersonal staff-related reasons and there was a dreadful spontaneous staff meeting i managed to avoid so that sucks for them, but we had a freaking ball

#support work #autistic support worker rambles

fundraiser

hey guys! some of you may have seen my posts about the amazing young people i support at work. i work at a day support center for a national disability organisation, and my department is having a little fundraiser - wear a onesie to work day. the theme of the month is old mcdonald had a farm, so i have a bright pink fluffy pig onesie. i’ll be wearing it on my commute and out and about all day, and on this particular day i’ll also have a very heavy rucksack on my back all day for one of the young people’s medical needs, so it’s more of a task than it might seem at first!

the money goes straight into my department and will be used for things like sensory toys, accessible garden equipment that some of the young people with lower mobility can get their energy out on, musical instruments for the guys to stim and jam with, baking materials for that one little girl to eat the cake mix right out of, arts and crafts materials for all the amazing creativity, paddling pools and water toys for water-play and messy play, as well as transport, trips and outings - basically it will all go straight into fun and interesting things for the kids to have the option to do

the organisation has good core values. if my department has broad aims for what we do to support the kids, it’s just for them to be able to do as much of what they enjoy and as many different things that they enjoy as they can while they are with us. that looks different for each young person. we also have a huge focus on sensory needs, and communication of all forms. if you dont want to take my word for it you can pm me for the name

so if you want to sponsor me any amount whatsoever for making a damn fool of myself dressed as a fluffy pink pig all day on saturday, my paypal is [email protected]. just leave a name (any name) for the sponsor form

@autismserenity @stimmyabby @neurowonderful @autisticliving if any of you see fit to boost (no worries if not)

i’ll be reblogging this every couple of hours until saturday but if you want to blacklist i’ll be tagging them all ‘fundraiser’

#fundraiser #actuallyautistic #disability #autism #support work #social care #sensory processing #alternative communication #AAC

I know many people my age say "I'm so glad I didn't grow up with social media because all my embarrassing things would be preserved forever".

And to an extent that's true. That being said, working in a support role with students, I frequently end up seeing teens doing something embarrassing on their laptop and watch them panic as they realise I'm behind them. So the ability to say "I cannot judge, search up Friendship Zubat on YouTube" and have them realise that there is zero universe in which I can hold anything against them for fandom content is something I will forever thank teenage me for uploading.

If you're interested in what could possibly be that embarrassing.

#cringe #cringebutfree #support work

Second week of having a support worker: I wish I was able to accept my disabilities and accept that I needed help sooner.

I'm finally using my NDIS (Australian disability scheme) plan to get a support worker to come and help me for 5 hours on a Monday and holy shit it is life changing. We got so much done today and I feel like I actually have spoons enough to shower tonight?? Fucking amazing.

The best part is it takes her literally no time to get everything on my list done so I get so much done. Let's put this into perspective, with my physical limitations / pacing needs (physical and neurological disabilities), on top of adhd executive dysfunction and autistic Inertia problems, to vacuum / mop my house, clean the kitchen, do a load of laundry (including folding it) and clean the bathroom normally takes me 6 hours. My support worker starts at 8.30 and by 10.30 / 11 the house is clean, the first load of laundry is hung out and the second load is about ready to go out and she is asking what else I have for her to do. And she cleans as good if not better than I do. She deep cleaned my bathroom last week and I cried.

I hate that it took me so long to admit that I needed this level of help. I've been funded for support for a year but it still took me to be completely hitting rock bottom I'm so burntout and literally can't even attempt to mask right now and its worrying people, to actually ask for the support funded for me.

But! I've learnt my lesson, and actually starting to feel like less of a failure by simply having a clean house. We also went to the shops today and I didn't have a full blow panic attack the second we got back to the car - which has been the normal for the past 8-12 weeks.

So I guess, life update??

Anyway, if you are an Aussie and have funding for a support worker on your NDIS plan but don't think you are "disabled enough" (thanks Internal ablism!) - please reconsider it! Went mine runs out of jobs to do we go for a walk, or play boardgames or talk about the books we are reading. Disability can be really isolating even when you have friends and family. But for someone to come in and see sometimes the most disgusting / embarrassing / worst days you are having but if you get the right person, they just accept you were you are and are interested in just making your day a little easier. Whether that's cleaning the house, doing your groceries for you, driving you to your appointments so you do have to stress out on the way, or literally just having a cuppa and a chat so you have positive human contact on a regular basis - they are literally miracle workers

#Australia #ndis #support work #disability