#chronic warrior

[theycallmetubeless]

[sheerioswifties]

It's because of people like Falum Gibson that I feel like I can't ever ask anyone for help with my battle. Or even really talk about it. I'm on my own in this. It just....ugh...I'm sorry. Bad(hurt) mood today.

[theycallmetubeless]

Endo days..

When rough endo days hit you...

I’ve had 3 surgeries for my endo:

1) exploratory to diagnose 2013

2) ablation of Endometriosis covering my ENTIRE abdominal cavity. Bowel, ureters, bladder, colon, kidneys, liver. 2015

3) second ablation of Endometriosis covering entire abdominal cavity, and a bilateral tube removal. 2017

I NO LONGER HAVE TUBES! This was a proactive endo decision based on my personal pain and high cancer rates in my family. Having Endometriosis puts us at a higher risk of Endometrial cancer, Uterine, Ovarian and pretty much any organ related to our reproductive system, because our cells are already “abnormal” !

It’s 2019, my odd year, and odd years have been surgery years for me since 2013, so it’s definitely a nerve wracking time for me, and higher stress equals more frequent flares. After 3 surgeries I am still not out of pain. I have permanent nerve damage from the scar tissue caused by my surgeries, and my Endo has now become resistant to my original treatment. So, I’m on my way to surgery #4 in 2019, which were all hoping this new treatment will help us avoid.

This is Endo. There is no cure, it never stops, and even the treatments can give us a whole new list of problems.

The point of this is to just spread awareness, our illness may be invisible, but we are not. And we have to be “normal” even on the days our body is tearing us apart from the inside out.

[theycallmetubeless]

2019 changes !

I’m officially transitioning this into a chronic illness awareness (Endometriosis, Adenomyosis, Hypersomnia) and the day to day struggles and triumphs of living with them.

[fibromyouch]

This is my third consecutive day in bed, and I'm ready to have a complete breakdown.

Everything hurts, I can barely breathe, and I keep drifting in and out of consciouness. I haven't eaten, went to the toilet, or showered in 4 days now.

Not eating wouldn't be an issue if I wasn't prone to hypoglycemic episodes or at risk for relapsing into my eating disorder.

My kidneys are screaming in agony because I've barely had aby water and haven't peed in days.

And the mess in my room, the grease in my hair, and the pile of pending work on my desk have my anxiety raging.

I just want it to end. Please.

[sheerioswifties]

So just a little info/update on me, I'm about to finally go get a badly needed IV infusion and by popular request I'll explain a little but then I gotta run. I have mentioned I've got several chronic illnesses including autoimmune disease; however I don't want to go into details on here about it for lots of reasons; honestly the biggest being that my whole life in the real world is allllllllll medical things all the time every day and I like having this place to come and just fangirl and distract from how crappy I feel. I'm dealing with a lot and it's really complicated. But one of my treatments is a monthly infusion of a medication that's technically classified as chemotherapy but it's an immunosupressor; used for many autoimmune diseases. The problem is, since it supresses the immune system, not only do I have to be REALLY careful about not catching things, but I cannot receive the infusion if I'm actively sick with like a cold or flu, or an infection or if on antibiotics. And so my life goes, back in like November (??) I got a nasty cold/flu hybrid that lasted forever and brought on a sinus infection for which I had to go on a course of antibiotics. Fun! So I couldn't get my infusion, had to keep waiting, then they need a buffer period before getting the infusion. ..so long story short on top of this all my main conditions have all begun to flare up, getting worse by the day. But finally today I'm getting in for my infusion, and I hope so much that it helps the flare and that I don't have to have additional treatments for it all which can be really difficult.

So anyways I'm about to leave for that, so if I'm not on for a while that's why, also the infusion kicks my ass for a few days and I have to be bedridden, although if I'm awake I might do my stubborn thing and try to Tumblr with you all while I'm recouping, we'll see. So yeah. There's that. Love you all!!! ❤

[fuckyeahvalidation]

Using my heatpad

So I'm using the heatpad for my knee on my lower back because my pain hasn't stopped. No matter what position I've been in its bothering me so I'm hoping the heat helps. *crosses fingers*

[tiredeyedghost]

My chest is killing me tonight. I wish it would stop.