I’m ready to Marie Kondo this fucking body. This spine does not bring me joy

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@theanxietydemon
I’m ready to Marie Kondo this fucking body. This spine does not bring me joy
Went for my first walk just for exercise this morning, and holy crow am I out of shape. I averaged 10 mins per km, and it felt the same as a moderate intensity run back when I was fitter. I hope my body will after a few more, or I might die lol
I haven’t posted much lately other than reblogs, but there’s a lot going on in my life so I’ll probably be a bit more active.
Shrot summary: Fibro symptoms have been worsening, my weight has crept up due to horrible dietary choices (trans fat laden snack cakes and unmeasured grazing on chips is bad news), and I’m struggling to keep up with the working I want to be doing.
So I’m working on getting my health sorted first by improving my diet, doing more low impact exercise, and defining set days for work and set days for rest, so I can hopefully avoid burnout. I’m going to try to post regularly with what I’m doing/how things are going, so maybe other chronically folks who’re working on a similar journey or are looking for help can learn from my experiences.
I’ll tag posts with diet/weight talk with “tw diet” and/or “tw weight” so you can filter them.
The blue part is not nearly big enough.
me this morning: today’s the day i Get Stuff Done!
by 9 pm:
@spoonie-isms @positivity-in-pain
look….full offense but I’m fucking done with this “the person you’re meant to be with will make you angry/be a nuisance/fight with you/etc. etc. because that’s REAL™ and being happy/content/generally satisfied/happy with the person you’re with is FAKE and NEVER HAPPENS!!” mentality that everyone keeps pushing because you know this is just a gross mentality that convinces people to stay with someone they’re unhappy/who isn’t good for them because they’ve been convinced that being sick of or exhausted by their partner more often than not is normal and even the goal in a relationship….
like we all criticize the “we don’t wanna get married/I’m forcing myself/them to marry me” wedding cake toppers but nobody ever calls out the “we can’t stand each other most of the time but that means it’s Real Love™ :))))” stuff when that’s exactly the same thing.
yeah, getting on someone’s nerves is gonna happen. especially if that’s the person you’re spending most of your time with. but like…..fucking…can we stop telling everyone that irritation and annoyance and etc. etc. should be the norm??? that it’s the Best You Can Hope For???? like. fuck dude. Legitimately considering yourself to be a pain in your partner’s ass and/or considering your partner to be a pain in your ass or just in general thinking that being unhappy/annoyed with each other 90% of the time is The Goal of a Real Relationship and is somehow proof that you’re the perfect couple is bullshit.
My husband and I are “real” by having honest and respectful conversations. It’s not sugarcoated but it’s not rude or mean either. It’s literally that simple. This toxic “be with an asshole!” mentality has caused so much divorce and toxic/abusive bullshit to run unchecked in my family and I had to retrain myself to not emulate that poison. I refuse to pass that on to my kids or to accept it from others.
When pushing yourself too far is an everyday occurrence, the lines between flare up and new normal get blurred
Acceptance
My mom “accepts me”, but she “knows I only chose to be bisexual so I didn’t have to break up with my girlfriend when she started transition.”
My dad “accepts me” but often reminds me that “monogamy is important no matter who you’re attracted to” because bi girls are more likely to cheat.
My girlfriend’s mom “accepts her” but won’t use her chosen name and only uses the right pronouns half the time.
My pan friend’s mom “accepts her” but still calls her girlfriend her “best friend” because she “knows my friend will find the right boy someday”
A gay guy I met in class has parents that “accept him” but when he said he was being bullied for his sexuality said that “he should just be less public about it.”
None of us have been kicked out. We still talk to our parents. They give us food and clothes and help pay college tuition. They haven’t threatened to kill us. They haven’t actually killed us.
They “accept us”
But no they don’t.
Not kicking your kid out/not murdering them cannot be the standard of acceptance. It’s not accepting. It’s almost nothing.
If you want to be a wonderful accepting parent to a LGBTQ+ kid, you have to listen to what they say and trust them. You have to do your research and understand that this is who they are and it’s not up to them. You have to do anything you can to make their lives easier because the rest of the world is already going to make them go through hell.
And if you’re not ready to trust your kid and love them no matter what, don’t call yourself progressive or accepting.
You’re just a dick.
Someone: how are you coping so well with chronic illness?
Me: first of all, I’m not coping and I’m filled with existential dread, so jot that down
Just because someone else who has the same illness as you can work full time or do more than you can, doesn’t mean you can or should do more. Even people with the same chronic illness have different symptoms and severity levels. Try not to view other chronically ill people’s lifestyles as “proof” that you should be doing more. Don’t feel guilty for doing what’s right for your body.
Louder for the people in the back 🗣🗣
Also, who can afford a house with a garage these days?
“what the fuck” is an emotion now and its the only one i have
ok very funny guys. you got me. now seriously who left all these neurotypicals in charge of the mental health field
who left all these healthy doctors in charge of the hospital
is literally what this sounds like
God, can you imagine how awful that would be? People with amputations consulting on things like prosthesis?
People in wheelchairs designing living and working spaces for people with mobility issues?
Autistic people actually trying to help other autistic people?
OMG, just thing – wouldn’t ti be awful if people who are now in remission actually helped manage the pain and other symptoms that come with having and treating cancer?
I mean seriously, what on Earth do any of those people really have to add to the discussion? What could they possibly know that an able-bodied neurotypical wouldn’t already know? I mean, experience doesn’t teach all that much!
/end sarcasm.
My care for EDS got radically better when my doctor’s kid was diagnosed.
my body: hmmm, maybe you should…not do that
me: do what?
my body: …
my body: …
my body: …
my body: …anything
what a day!!!!!!!! nothing happened and i was tired
Happy egg day!
i literally never force myself to do anything thats probably my biggest problem abjzsdgdhdj
me: ugh i dont want to do that
brain: dont do it then
me: can’t argue with that
*unless someone tells me I can’t, and then I’ll move heaven and Earth