I wish my body would like... work

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@thefaultinourspoons
I wish my body would like... work
Iâve been in a body that experiences a lot of pain and frequently malfunctions for so long that I really donât have a gauge for normal bodies anymore. How long can a healthy person stand? How long can they walk? Is there a point where they canât sit anymore because they are in so much pain too???
Is this a side effect or should I be worried? A 3 part series.
When a disabled person says they canât do something, thereâs probably years of suffering behind that statement, and a slow painful journey towards accepting that fact, but people wanna act like disabled people just wake up one morning and decide they canât do anything.
I make jokes about my medical issues because itâs easier than facing the fact that Iâll be living in severe pain the rest of my life.
Same.
Now this is funny.
#Millionsmissing is a global campaign for ME health equality. The first global protest took place in May 2016. By September, 2016, it had grown to 24 cities. On May 12th, 2017, we took to the streets again in 18 cities in seven countries to demand change. We asked for increased government funding...
Iâm in charge of this years Millions Missing Campaign in Manchester.Â
Donate if you can, or let me know if you want to send shoes in to be apart of the protest.
Spoonie life
When youâre already worried about feeling rough the next day so you start laying the foundations for cancelling plans
A chronic illness phenomenon
I think thereâs this weird phenomenon in life, specifically in the chronic illness community. Itâs a place some of us get stuck in - the in between. A place where youâre too sick to function in the âable worldâ but at the same time you seem to healthy for the chronic illness world. You almost faint but you donât. Youâre always in pain but itâs relatively tolerable. Youâre not bad enough to qualify for surgery even though youâd benefit. You forget everything but you donât lose time. Your heart rate is too high to be normal but not high enough to be critical. Your BP is low but not THAT low. You try to find answers but seem relatively okay to doctors so they donât want to run more tests. Youâre stuck in a place where you almost wish you were sicker so you could get helpful treatment.
No amount of sleep could cure the tiredness I feel. (Depleted)
I really appreciate the fact that famous people like lady gaga and selma blair are speaking out on the issues that chronically people, specifically women/female presenting people, face. If these people who can afford the best possible care and have so much privilege are discriminated against like this imagine how it is for the rest of us.
If this doesnât scream a spoonie truth, I donât know what does.
every time a drs appt solely consists of âthereâs nothing left i can do for you [shrug emoji]â, they should pay me the copay.
Sometimes I forget that most people arenât living in constant pain. I forget itâs not normal to have part of your skin feel like itâs on fire out of nowhere or to have agonizing joint pain. People are going about their lives the same way I am but they arenât in constant pain. I forget that. And I wonder what it would be like to live like that.
Trying to work out in advance just how many spoons youâre going to have to use for each daily task.