Storm was right in what she said to Rogue about the cure and I will fight people on this.
My name is Raven, he/him, I'm 22, and this is my disability blog. I am a multiple disabled person who has a bad job, has not yet learned how to drive, certainly can't live on my own, and I write and reblog posts. Please do not mock the spelling, language, grammar, punctuation, or whatever else of me or anyone I reblog here. This blog will focus mostly on autism and autistic voices, but I'll post about a whole spectrum. Mainly the ones listed below
I have autism, light-moderate support needs, medium moderate support needs when accounting for everything else. Hyperempathy, hypersensitivity to my senses, emotion regulation issues, find it near impossible to understand people when they aren't being up-front about what they mean, need reminders for actions of daily living (including eating) but can do them on my own when reminded. Should not be managing my own money. I am fully verbal, but with a lot of speech disability. I get overwhelmed extremely easily and when that happens, I completely freak out. I also have some kinds of cognitive and developmental disabilities but am not intellectually disabled.
I have a lisp, a permanent slur, trouble pronouncing crunchy consonants or words that start with a vowel (can do it, just takes my mouth a second to work,) and I talk very slowly. There's probably more and I just don't know it. Apparently my speech is so bad that the speech therapist in kindergarten said that there was so much wrong with my speech that it couldn't possibly be fixed. Also often tend to speak without thinking, which I can't really help.
I have severe ADHD, mostly inattentive, dyslexia, dysgraphia, articulatory initiation anomia, dyspraxia, TBI from when I was a baby, migraines (all kinds, including ACM,) sensory processing disorder, chronic daily headache, myofascial pain syndrome, chronic fatigue, anxiety, depression, PTSD, OCD, and some other stuff.
Recovering from kleptomania and compulsive lying.
Warning
- I lost a friend to ABA. He's dead because of ABA. There is no ABA positivity here. I will be hating on it.
- I talk about ableism a lot. All posts will be tagged as ableism
- I am transgender
I DO answer both educational and writing questions.
Whoever made the Nyquil pills the size of fucking Texas, your mom's a hoe
I got one lodged in my throat several months back, thankfully didn't block my airway but it couldn't dislodge, I couldn't speak or swallow, and my stomach was empty so I was just miserably dry heaving for what felt like fucking hours until the casing of the softgell finally broke and I was able to get it down. 911 was called. I wound up being taken by ambulance because they were worried I might have inhaled some gel into my lungs and that would be bad if untreated. It was the worst. Since then, what had once been mild pill dysphagia has turned into moderate-severe pill dysphagia now with added food dysphagia and even fucking liquid dysphagia. From the psychological impact of the entire ordeal. I choke constantly, I'm genuinely worried it's to the point where it's not safe for me to eat, drink, or take meds while home alone, and if that's true then that's going to massively impact my day-to-day life.
So. Whoever made that fucking pill so fucking huge, you are on my list.
Antibiotics acquired. My doctor didn't even make me get tested (that was the part that my social anxiety didn't like, because of what testing for this entails, if you know you know.) She said that people start feeling better in as little as a few days, and then I just have to take all of them and I'll be all good. It wasn't anywhere near as bad as I thought it was going to be.
I ate some of the lettuce that later got recalled for the cyclospora contamination. One week ago. And I am having the symptoms. And trying to convince myself to go to urgent care tomorrow get the stupid antibiotic prescription to resolve this quickly and easily, but my social anxiety refuses to allow it. My anxiety wants me to wait for it to clear up on its own and deal with it for a month rather than go to a doctor. I plan to force myself to go tomorrow no matter what, but I am struggling very hard with the fact I've gotta go. I will. But I hate it.
This is what I fucking get for trying to eat healthy. I just wanted salad.
Reddit is a deeply unserious place to me because I can post "My music box keeps going off and I know there's a rational explanation and don't believe it's a ghost, it's just freaking me out," and there are goobers in the comments demanding a video or "it didn't happen." Number one, this is a thing all music boxes can do, especially older ones. And number two, to get a video would require re-entering the room the music box is currently in. And I'm not going back in there.
I am watching creepy videos at three in the morning and my deceased grandmother's heirloom jewellery/music box keeps randomly going off, which I know is simply due to a structural quirk where vibrations, weather, and temperature can cause the mechanisms of the music box to shift in a way that causes it to play a bit. I know it is not a ghost, but rather just a kind of physical glitch and has absolutely nothing to do with the videos and everything to do with recent weather. With this rational explanation in mind, I am doing what any rational, logical adult man would do in this situation-
I am hiding downstairs until it stops because it's freaking me out.
they really don't respect the time of disabled people. your application can take up to 12 weeks. the specialist waitlist is 3 years. your assessment will be any time within the next 6 months. let us know if you cannot attend this appointment you waited 7 weeks for and we'll reschedule next year. we've decided to assess you at this time and day and you have to be available or any support you dared to apply for is not going to happen. and in between these long bouts of waiting you have to survive the everyday
ableism is me and some friends going on a walk and seeing this unusable wheelchair ramp:
and the fact I frequently come across things like that even tho in my country there's supposed to be regulations about wheelchair ramps. (I'm not in a wheelchair but I decided to take pics of these and similar things when I see it)
This is ableism.
[IMAGE ID. Stairs outside with a ramp to the right of them that is just as steep as the stairs. END ID.]
So apparently, when told that pharmacies lock the Sudafed up because people use it to make meth, the correct response is absolutely not "Why would you make meth when you could have sudafed?"
My dad laughed so hard he was in tears but as a chronic haver of allergies (thanks to my dad, who is allergic to all nature except poison ivy,) I stand by my statement.
I wish field hockey was more of a thing. It was one of the few sports I could actually play and was actually good at in high school, one of the only ones I actually enjoyed, and I would have loved to maybe do it in college or join a local team. But no, they only do ice hockey around here, and I am a danger to myself and everyone else on ice skates. So I can't do it.
When I was younger, in my tween/teen years, my parents let me try the occasional sip of alcohol. One margarita, one beer, and one wine, all small sips. And I recently learned that they were letting me try the ones they knew I would hate to disuade me from underage alcohol consumption.
And all I'm saying is that this was a legitimate method, because they all tasted like a steel-toed kick in the teeth and I hated them so much I refused to drink anything alcoholic until I was twenty-one. And even then, I still couldn't stand the taste of alcohol so I still refuse to drink because I hate the taste that much. And that's actually beneficial, because I'm on multiple medications I can't drink alcohol with (like, to the point where doing so would put me in the ER,) and because substance use runs back in both sides of my family for generations and I have it as well. So like, their method absolutely worked. They took away the "forbidden fruit" aspect by giving me safe amounts and also by telling me I would never be in trouble for experimenting with alcohol, and also showed me that alcohol was not all it was cracked up to be because the things I tried absolutely sucked.
"It's an acquired taste" and I cannot fathom for the life of me why anyone would want to acquire it. It all went according to their plans.
Fun fact- when I was a baby, my parents pretty quickly started suspecting I had autism. Like, before I even hit the year mark. They got me assessed four different times. the first one was when I was a baby, and they're pretty sure the only reason their concerns were brushed off is because I was a girl, and most people thought girls couldn't be autistic. Two times were when I was a toddler, after I was talking and walking, because they noticed I was happier to sort my toys than actually play with them. Both times, that doctor (different doctor from the first) firmly decided I couldn't possibly be autistic because- get this- I started talking early. And the fourth one was when I was getting ready to start preschool, because they were really like "Okay, there's no way she isn't, the doctors must have been wrong." And again, they were told I wasn't autistic because if I was, they would know already. Since I wasn't already diagnosed, I clearly wasn't autistic. It must just be from my brain injury
I am level two autistic. I am visibly autistic and always have been. And I still got misdiagnosed as not autistic four times for complete nonsense reasons.
So no, I don't think not being professionally diagnosed means one isn't autistic.
My mom can be pissed at me all she fucking wants but to threaten to force me out of my fucking job is crossing a fucking line. I can't fucking believe this shit
Hey, remember those books with Imogene Herdman and her siblings? The Worst Halloween Ever, The Worst School Year Ever, and The Worst Christmas Pageant Ever? With the word Worst crossed out and replaced by Best in every title? By Barbara Robinson?
Those are probably some of my favorite representations of disability in children's media. Ever.
While it's never explicitly stated, it's very clear that the Herdman children have behavioral issues due to poverty, neglect, abandonment, and their community turning on them. They're also very neglected in their education. As a result, they're antisocial, violent, angry, they abuse substances and lash out, very clear examples of conduct disorder. Every book with start with the narrator, a child, going on for several pages about how "terrible" they are, listing things that clearly demonstrate these kids need more help than they're getting. At the beginning of the book, through that girl's eyes, they look like Satan incarnate.
And then you start learning more. Abandoned by their father, their mother never around and actively avoiding actually parenting her children, poverty, living in an abandoned house, dirty and underfed and left with only each other to rely on- absolutely horrendous circumstances for children to live in. Their community has turned against them because of their behavioral issues, which just further isolates them in this terrible environment. They're hostile, yes, because the world is hostile to them. And every book, the narrator grows to understand the Herdmans, in a way. Every book, she learns that they're not as evil as she thought, that they're children like her. She learns to see them as human. And through every book the Herdmans never really change since their circumstances don't change, but the narrator learns to understand them and sees them as a little more human every time. With every book, the reader is taught that despite how they lash out, they're just kids who don't have the help they need. The narrator slowly learns they're just kids, and the reader realizes this, too.
Despite everything, we are taught the Herdmans are sympathetic, that they're just lashing out, that they just need some help. And I think this is a great thing. Yes, the books are simplistic and dated and you don't really understand that complexity of the Herdmans until you're older, but it still does good because it shows kids that the "devil children" they may know are far less evil and more human than they might think. That's a good lesson for kids to learn. And it's good for kids who act like the Herdmans, because they see a sympathetic view, they are seeing characters like them being understood. It meant the world to me when I was little.
So yeah. The Herdmans are one of my favorite representations of conduct disorder. Pretty much ever
if your auto-refill is not on time for whatever reason and you're low, or sooner to pick-up is easier than later, but you think "Oh i'll be fine without meds for a few days!!"
Especially considering supply chain shortages and how many active shortages of medication there are right now, refill your meds as early as you can. You never know when it might take weeks for your refill request to actually arrive at the pharmacy. Especially if you've got medications that are more highly controlled, or if you've got more specialized or less common medications that the pharmacy might not keep a stock of. You never know what can happen, if circumstances might occur in ways that could make it hard for you to get your medication, so do not take chances. Not with your health.
And absolutely especially if your medication is very important for controlling a mental health condition, or if it's something where not having it could be medically dangerous, like seizure medications, or if you'd be at risk of withdrawal or other nasty symptoms should you find yourself without it
(Also, some pharmacies might even do a thing where they'll order the medication in advance, just won't actually give it to you early, and I highly recommend seeing if that's an option. My pharmacy did this with my ADHD medication during that national shortage and it saved me from going without several times. If you've got a medication that's very necessary or is affected by supply chain issues, maybe see if the option of having it ordered early is open)
So you know how I've mentioned a few times that I've had a headache that's lasted every single second of my life since first grade? Meaning over fifteen years at this point?
Well, I finally have an answer.
It's called New Daily Persistent Headache. It's a primary headache syndrome, it's a relatively new diagnosis and not much is known about it. But it does mean that this headache isn't caused by something more concerning, like a brain tumor or some other dangerous brain thing. It's essentially idiopathic, but to me, that's a good thing because it means that whatever the cause is, it's not something that is dangerous to me because if it was, they would have found that. That's why all of the tests, the studies, the scans, the bloodwork, and everything else all came up clean. Because there was nothing to find. It's not a tumor or a misfire or an imbalance or a deficiency, it's something we don't know the cause of and thus can't test for. That's why it took so long to figure this out.
You don't understand, I'm so happy right now. I'm not imagining it, I'm not making it up, this is an actual thing and now I have words to put to it.
So I've got coulrophobia, the phobia of clowns, and I recently learned about Clown Code. Clown Code is a set of rules all clowns affiliated with the international clown union thing have to follow, and it's a very good list of rules. And to my surprise, learning about Clown Code actually helped with my phobia. I'm still scared of clowns, but knowing they have to follow this code makes me feel better about them.
Scary clowns, though, follow no code so I'm still very scared of them
