Things I've learned since becoming ill...
âą Itâs nobodyâs fault. It is genetic. It just happened.
âą Do not be too proud or stubborn to ask for help. You need it.
âą Brush your teeth and wash your face (even just with a baby wipe) everyday if youâre able to do so. It makes you feel more human.
âą Shower or bathe whenever you are able to. Good personal hygiene is good for your mental health.
âą Some people will leave. You donât need those people. Others will stay and they are wonderful human beings.
âą You are not a burden. You are not useless. Do not be guilty. Please. Guilt will eat your insides.
âą You have not lost who you are. You just now have to make adjustments to accommodate this new thing.
âą Accept the fact that you have an illness. Being in denial will only make your mental and physical health worse.
âą Clean pyjamas are a divine gift. As are clean bedding and blankets.
âą Self care is entirely subjective. If you want to do yoga then do it, if you wanna sit and eat takeout in front of the TV in a squirtle onesie then thatâs fine too. Whatever makes you feel good, or at least better.
âą If you are tired then rest. Do not burn yourself out. It doesnât matter what time of day it is, if you need a nap then you have one.
âą Talk. Write. Sing. Paint. Draw. Dance. Do something to express your feelings. Donât keep them inside. Youâll explode.
âą Donât worry if you canât adjust right away. It takes time. A lot of time.
âą Do not feel ashamed or embarrassed. Unfortunately illness often has embarrassing symptoms or such. It isnât your fault. People who allow you to feel embarrassed about such things are terrible people.
âą Keep your sense of humour. Some days itâs the only thing that gets you through.
âą There will be good days. Grab them with both hands and enjoy them. Savour them. Spend them doing things you love, things that you canât do on bad days.
âą Prepare yourself to the best of your ability. LikeâŠalways have a hospital weekend bag packed for emergencies, keep a bed day drawer or bag near to where you sleep, have food or snacks close by, always have a water bottleâŠ
âą Take your meds. Please. If you have a serious illness for the love of god donât listen to the âbig pharmaâ conspiracy theorists. You need your meds. They keep you alive. They enable you to function.
âą Research your illness. Keep yourself informed. But donât dwell on what might happen. Please donât scare yourself.
âą Itâs okay not to feel positive all the time. Itâs okay to feel down. Itâs perfectly natural. But try to be as positive as you can. For your own sake.
âą Your own health comes first. Itâs not selfishness itâs survival.
âą The bad days can be horrific but the good ones are beautiful, and so worth holding on for.
âą Donât give up on love. Just donât.
âą You are a badass warrior.