Jules of Nature
No title available
TVSTRANGERTHINGS
todays bird
❣ Chile in a Photography ❣
Not today Justin
cherry valley forever
pixel skylines
macklin celebrini has autism
ojovivo
izzy's playlists!
No title available
occasionally subtle
"I'm Dorothy Gale from Kansas"
Three Goblin Art
JVL
#extradirty
tannertan36
shark vs the universe
almost home
seen from United States
seen from T1
seen from Canada
seen from United States
seen from Iceland
seen from Malaysia
seen from T1
seen from United Kingdom
seen from United States
seen from Brazil
seen from Türkiye
seen from United States
seen from United Kingdom
seen from Lithuania
seen from United States
seen from United States
seen from United States
seen from Iceland
seen from United States
seen from Morocco
@tumbrl-bitchcourse
So I wanted to check on the Melanie Martinez discourse
I don't really know if what was said is true. I just back away from this because I don't know at all. But... This... This is just Immature...
Come on... Stop acting so damn high and mighty.
On May 28th, my sister, Edna, turned 31.
Her mental age is about three years old. She loves Winnie the Pooh, Beauty & the Beast, and Sesame Street. Even though the below picture is unconvincing.
Edna and “Cookie.” I think she was trying to play it cool.
My name is Jeanie. I’m Edna’s younger sister. I’m also her guardian and caregiver.
That’s me on the left. (Hey, you never know. After a year of writing a blog about online dating - Jeanie Does the Internet - I’ve come to learn that there are A LOT of fools on the internet.)
ANYWAY, I’m not “doing the internet” anymore. I’m taking care of Edna full-time, after completing my MFA in Writing for Screen & Television at USC.
May 16, 2014. I wanted a picture. Edna wanted breakfast.
In case you’re wondering where our parents are, they’re dead. Our mom died of breast cancer when she was just 33.
Us with mom before she died. (Obviously.)
As for our dad, he peaced-out around the time my mom got sick. His loss - we’re awesome.
Here we are being awesome at the beach. Pushing a wheelchair in the sand? Not so awesome.
In case you’re wondering “What’s wrong?” with my sister - as a stranger once asked me on the street - NOTHING. Yes, Edna has a rare form of epilepsy - Lennox-Gastaut syndrome - but I don’t know if that’s anymore “wrong” than people who don’t have manners.
Basically, Edna was born “normal,” and started having seizures as a baby. They eventually got so bad that they cut off the oxygen to her brain, causing her to be mentally disabled. Or impaired. Or intellectually disabled. Or whatever you want to call it - except “retarded,” because in 2010, President Obama signed Rosa’s Law into effect, replacing that word with “intellectually impaired.”
Which is cool and all, but services for the disabled and the people who care for them are SEVERELY LACKING. Also, there’s a bunch of people working in taxpayer-funded positions who are supposed to help families like us, but don’t. (Big surprise, I know.) They just fill out paperwork (whenever they feel like it) with asinine statements like this:
YUP. I transport my sister down the stairs in her wheelchair, because that is not only safe, but TOTALLY PRACTICAL. Why doesn’t everyone in a wheelchair just take the stairs, for God’s sake? Stop being so lazy, PEOPLE WITHOUT WORKING LEGS!
But, as it says above, Edna’s legs do work. Whether or not she wants them to, is another story.
Edna refusing to go inside.
These are the stairs that I have to carry her up - by myself - on a daily basis. That is, until one of my legs break and both of us are just sitting at the bottom of the stairs, helpless.
For six months, I have begged - BEGGED - the State of California to help my sister, which they are required by law - The Lanterman Act specifically - to do so. But they’ve told me “these things take time” and that I “need to amend my expectations.” (That was said to me when I refused to place Edna at AN ALL-MALE CARE FACILITY. Because yes, that was an “option” that was offered to me.)
Prior to Edna moving in with me in my one-bedroom apartment, she was living with her amazing caregiver, Gaby, back in Tucson, where we went to high school and I did my undergrad. Edna’s reppin’ the Wildcats below.
But back in November, Gaby also died from breast cancer. (FUCK YOU, BREAST CANCER!) This picture was taken a month before she died. She never even told me she was sick because she didn’t want me to worry.
By the way, we were raised by our grandma. Edna and her were very close.
She’s dead, too. Surprise.
She died when I was 20 and Edna was 21. That’s when I became Edna’s legal guardian and Gaby stepped into the picture to help me out with Edna.
So, six months ago, after Gaby died, I moved Edna to California, where I tried to get the folks over at The Frank D. Lanterman Regional Center to help me. I’ve told them I’m worried about our safety - that one of us could get hurt on the stairs - I’ve told them I can’t afford to pay the private babysitters $15/hour because the ones social services sent me who make $9/hour were unreliable (they didn’t show up on time or at all so I could get to school and work), untrustworthy (one of them let Edna go to the bathroom in the kitchen and then took her into the bathroom because “that what I thought I was supposed to do.”)
But the people over at the FLRC don’t return my calls, they don’t file the paperwork on time - and the first caseworker that was assigned to us actually LAUGHED AT my sister when he came to our home to evaluate her. When I reported him to his supervisor, she told me, “That’s just [insert name of said jackass].”
He was one of the two caseworkers that contributed to the report I mentioned above, which also included this:
So let me get this straight - I have to feed, bathe, dress and help Edna in the bathroom and you can’t deduce whether or not she is able to vote? What in the fuck?!
Now I realize I seem angry. And you can bet your balls I am. I’m also sad. Sad for those who don’t have family to stick up from them and who waste away God knows where, monitored by no one. Or monitored by people who physically and sexually assault them.
I’m also sad for the caregivers who are SO EXHAUSTED - trying to take care of their loved ones - while also trying to take care of themselves and battling a system that is supposed to help, but does nothing of the sort. And I know a lot of people give up. They let their dreams, their marriages, their friendships slide. All while trying not to resent the very person you’re doing it all for.
Edna wanted to sit next to me the other day while I was writing. Clearly, she’s not impressed.
Here’s the thing: I REFUSE TO GIVE UP. I’M NOT GIVING UP ON HER OR MYSELF. I’m going to pursue my dreams while taking care of her, AND while ensuring that the people paid to do their jobs ACTUALLY do them.
That’s where you come in. I need you to help me get my story out there. Because I know I’m not alone in this. I want to connect with families who are in similar situations and also show people who have no idea what it’s like to care for someone with a disability (or even a loved one who is sick) that it can be rewarding. Super fucking hard. Exhausting. Painful. Isolating. But, rewarding.
I’m going to get help for my sister - and others. My hope is that by sharing our story, I can bring awareness to the lack of services and help for the disabled.
Thank you,
Jeanie
Facebook: facebook.com/eisforedna
Twitter: @EisforEdna
This made me cry
SIGNAL BOOST
STOP SCROLLING. THIS PERSON ISN’T ASKING FOR MONEY AND THIS POST WON’T MAKE YOU SAD.
This is a really uplifting and inspirational story of a family sticking by each other and making things work despite a whole lot of shit
They just want to find other people in the same position they are, for a sense of community and to feel like they aren’t alone.
I know out of all of you, some of you have followers who are living with and taking care of intellectually or emotionally disabled family members, and this lovely and unbreakable pair of sisters need to find them.
SIGNAL BOOOOOOOOOST
Repost! This story needs told!
Disabled lives matter. Sooo much.
Will always reblog this.
attention all ex-littles
Im proud of you for escaping that unhealthy lifestyle!! youre a beautiful person!
anyways theres nothing wrong with being a little
Good job replying to an old post, i dont really have an opinion anymore due to total apathy about sex and shit. Oh wait. Are you a MAP supporter? Ew. Don't talk to me.
This is the face of a man who knows he just made a bunch of edgy assholes angry and is really satisfied with it
just a reminder that the internet doesn’t actually DIE tomorrow. They just vote on rather net neutrality should be a thing or not. after that, they have to fight the law at court.
SO NET NEUTRALITY WILL STILL BE HERE AFTER THE 14TH PLEASE DONT FREAK OUT.
BUT ALSO MAKE SURE TO SIGN PETITIONS, OR TEXT, OR CALL SOMEONE IN OFFICE.
reblog if…
• you think Trans boys can still be boys with long hair
• you think Trans boys can still be boys if they like dresses
• you think Trans boys can still be boys even with no physical transition
• you think Trans boys can still be boys if they’re “feminine”
• you think Trans boys can still be boys if they like pink
• you think Trans boys can still be boys
The FCC sided with Comcast and decided to let ISPs censor the internet. The Internet needs to stop this from happening: http://cms.fightforthefuture.org/tellfcc/
Last Wednesday, FCC Chairman Tom Wheeler announced a proposal for new rules that would allow for a “ fast lane” of Internet traffic for content providers who are willing (and able) to pay a fee. [1] The proposal reverses the FCC’s previous commitment to net neutrality and open internet and allows ISP’s like Comcast or Verizon to slow down and censor services that don’t pay the toll.
We have to be totally honest, this situation is seriously grim. But there is still hope. The FCC already knows that the Internet community wants net neutrality, but they think they can put their spin on these new rules and sneak them through. If we can prove them wrong right now with a massive public outcry, we can literally save the Internet once again.
We need to stop the FCC now. Big business groups are already ramping up lobbying efforts with the FCC in swarms since Wednesday’s announcement in support of censoring the open Internet and to ensure this dangerous proposal moves forward. [2]
This is a critical moment. In the last few weeks more than 65,000 people have taken action with us. Can you help us get to 80,000 by the end of the day today?
[1] Gautham Nagesh. “FCC to Propose New ‘Net Neutrality’ Rules”. http://online.wsj.com/news/articles/SB10001424052702304518704579519963416350296
[2] Edward Wyatt. Edward Wyatt. “Lobbying Efforts Intensify After F.C.C. Tries 3rd Time on Net Neutrality” http://www.nytimes.com/2014/04/25/business/lobbying-efforts-intensify-after-fcc-tries-3rd-time-on-net-neutrality.html?hpw&rref=politics
- Fight For The Future
we’re almost ¾ of the way there!! c’mon guys, every bit counts!
will it ever stop
fucking signal boost
IF YOU ARE NOT SIGNAL BOOSTING THIS YOU ARE NOT PAYING ATTENTION.
IF THE U.S. FALLS TO THIS IT WILL OPEN OTHER DANGEROUS DOORS INTERNATIONALLY.
Start a civil war against the US government.
Signal boost for my us followers
I try to keep the things I reblog as blog/mun-centric as possible, but this is something I just can’t let slide.
I’ve been following this cause since last year. I’ve signed petitions, I’ve called representatives, I’ve been to protests, the whole nine yards.
This right here? This is not a joke. This is seriously happening, guys.
Remember the Wikipedia shutdown? That was to protest this right here. If you haven’t taken action against this yet, frankly, what is wrong with you? If this doesn’t get stopped, we’re going to lose the thing that brings us all together unless we shell out huge sums of cash to these corrupt bastards.
Do not just sit there and keep browsing.
Do not scroll past this.
Fight.
PLEASE!!
I love you all, and losing you would (more literally than you would like) kill me.
I ALREADY have enough problems with the internet as is.
Not to mention, my SCHOOL could be affected by this.
PLEASE don’t scroll past this.
I, personally, am signing a petition every day to get it through by representatives’ heads.
PLEASE do the same.
fffuuuuuuuuuuuuuuuuckkk
aggressive reminder that
all aces are lgbt. if you are a cis, heteroromantic asexual, you are lgbt.
if you’re cis, aromantic and heterosexual, you are lgbt.
if you’re ace/aro, youre lgbt.
if you like sex and you’re ace, you’re still lgbt.
if you dont like sex and you’re ace, you’re still lgbt.
if you dont care and you’re ace, you’re still lgbt.
aces and aros ARE lgbt. and they exist. my pan, agender, polyamorous ass believes in you. and i platonically love you all.
to my ace and aro friends, you ARE lgbt. no matter what people may say.
aces and aros belong.
Aggressive reminder that you’re not LGBTPN unless you experience homophobia transphobia or biphobia. Not even if you don’t have sex. A cishet ace is still cishet, stop trying to play the victim and distance yourself from your privlege.
Hey pal guess what.
~Ace isn’t about not having sex. Educate yourself before discoursing thanks.~
a·sexual
a- not, without sexual- of or relating to sex
asexual literally means not experiencing sexual desires. if you’re having consensual sex and enjoying it, guess what? that’s sexual attraction and you’re not ace
Man I guess since we’re taking shit literally lets do this:
Pan- a piece of cookware
Sexual- relating to sex
Pansexuals? Guess we wanna fuck cookware now, huh?
No?? Not the right definition? Damn it’s almost like taking things with a literal value is. Kinda stupid.
Also attraction=/=action. Pansexuals don’t wanna fuck everyone. Bisexuals don’t wanna fuck everyone. Gay people don’t wanna fuck all men. Shuttup thanks “opisacuck11037”
@aphobic-truscum-terf-cat PREACH! My moms a cishet gray-ace!
“MAPs love children.” An unforgivable sentence. You can’t have those three words together without anything else in the same sentence. Pedophiles who rape children claim that it was “love” too. “MAPs harm children.” Facts. Now combine. “MAPs harm children and claim it’s love.” There you go
hey if you’re pansexual you can show your pride and kill pedos at the same time
If you defend pedophilia in my house imma smack you with a turkey leg 🍗
Hey antis
Pedophiles and other MAPs are everywhere. We’re on the buses you ride, in the restaurants you eat at. We’re your doctors, teachers, construction workers, minimum wage retailers. We’re walking past you in the street, playing with our dogs in the park, chatting with you during lunch breaks. We’re your friends, family, coworkers, and classmates. We encounter children every day, and all of them are completely unharmed by our presence.
You can hate us all you want, but we will always be here. And we will never hurt you.
Go step on a lego
A Little Experiment
Reblog if you would be uncomfortable finding out that your teacher or professor is a “Non-offending/Anti-contact MAP”, like if you would be find with it
A shocking fact: Children/underage people are actually very uncomfortable with the idea of a pedophile being interested in them.
Reminder that Satan himself is against pedophiles. He hates child abusers. You are the lowest of the low. Even the most evil being in existence is disgusted by you. You can all rot.
I move for a proposal. Everyone who agrees that if an lgbt+ person says that they’re a pedophile/MAP/NOMAP/ a.k.a child predator, they automatically lose their lgbt+ membership card. Everyone who seconds the motion reblog and say “aye.”
Aye aye captain
smash that mf reblog if u hate pedophiles
