I don't think I've had a week without a fucking issue ever since I got here
To be fair doctors missed the fact that my psoriasis was getting erythrodermic back in France but they weren't dermatologists because no fucking dermatologist takes new patients there anymore
But anyway. New GI team determines my last treatment wasn't working. Wants me on the most expensive treatment there is. OK. Get the implant because I can't be on the pill AND the new treatment.
Get a UTI. Get antibiotics. Antibiotics cause yeast infection. UTI returns. Repeat cycle. Not sure if it's gone to this day but at least I don't have kidney pain anymore.
Had an appointment booked for dermatologist... Gets fast tracked to it because half my body is covered in a red rash that starts peeling. I ask doctors on my online chat, suspecting a fungal infection - nope, erythrodermic psoriasis, could die, lol.
Gets seen in dermatology the new week. Put on two creams including one steroid. Says he'll discuss Stelara with GI, who had in the meantime decided on another med.
Eventually they both agree on going with Stelara... And my insurance denies it. Motherfucker, we picked Kaiser specifically because they're both the insurance and the medical team. After some back and forth, GI fixes it and I get my first infusion. Yay.
A couple weeks after that, I start getting sores in my mouth, mostly under my tongue. I tell my GI on the phone checkup, and she doesn't think it's linked to the new medication.
Either way I'm seeing the dentist a week after the call because I need my wisdom teeth extracted. Dentist has no clue what the sores are, prescribes a mix of antifungal + numbing agent + something else to hopefully fix it. It helps for two days but there's not enough medication and it simply returns.
And now I'm here. First Stelara injection next week at the hospital, which I'm not looking forward to. I fucking hated prefilled pens but I'm going to hate that shit even more.
I have a GP appointment the next day and hope they can either tell me what's wrong or direct me to someone who can. I've asked for a magic mouthwash refill to tide me over. That's $80 BTW.
But for now eating, brushing my teeth and even speaking hurts like hell. Just needed to write out the timeline because I feel insane.
The saga continues.
TLDR blood tests always showed signs of liver damage, but when they tested my liver function, everything came back normal.
So January was liver MRI + biopsy. Both with obscure results. The only lead is that I might have CMV which is an incurable viral infection.
Blood test results came back today and yeah I sure do. Cool.
Tune in tomorrow to see when they're going to put me on antivirals I guess
