Adventures Of A Disabled Kid

Cody|25|trans|autistic|ADHD combined type|mentally ill|fibromyalgia|hypermobility|chronic migraines|chronic bronchitis|special interests: SCREAM movies, newsies broadway, Bonnie and Clyde, m*a*s*h, Spiderman, stardew valley, the last of us, ghosts, big hero 6|header by: @1041uuu

[dogwise]

PRACTICE URGE SURFING

[dogwise]

[dailycatsblog]

[phleb0tomist]

he would not fucking say that, but with disability.. he would not fucking be able bodied. sick n tired of characters walking away from multiple life changing injuries without a scratch. let’s get some natural consequences in here.

give that knife/sword fight survivor nerve damage. give the character who was shot in the gut a stoma. give that fire survivor lung damage and an oxygen cannula. give that leg injury survivor a cane. give that starvation survivor gastroparesis. give that spinal injury survivor a manual chair or powerchair.

while we’re at it, give your characters congenital disabilities too, just because. give them intellectual and development disabilities. give them acquired and postviral illnesses. dare to make somebody bedbound. for me.

[only-knives]

sleep disorders/conditions affecting sleep are no fucking joke man. they're more than just "takes an hour to fall asleep." like yeah that sucks but.

sleep issues can make people sleep all day and be awake all night no matter what they do. they can make people sleep for over half the day every day. they can make people stay up for over 24 hours frequently - and it just goes up from there. being up for days at a time just unable to sleep.

they can make people have a completely unpredictable sleep schedule too. not everyone is capable of going to bed and waking up at generally the same time, or maintaining it.

all this could be more temporary, or it could just be indefinite. like. having to live your life not knowing if you will or will not be conscious at any given time. you can't plan for fucking anything. you can miss almost every plan or event or obligation.

and everyone just hates you for it pretty much, thinking you're irresponsible and lazy.

be nicer to people with sleep problems. they make you physically and mentally feel like shit. they're not a choice.

[the-abandoned-director]

thought people would like this 👍🏼

[rose-chateau]

Guys why the fuck are able bodied people like this.

A family friend (don't know her too well) tried to hug me as she was leaving, and I politely tried asking her not to because 1) I'm in pain and 2) my spine is deteriorating due to a chemo drug. I really mean it when I say you can't hug me. But this bitch just went "no I'm gonna hug you" and shook me around and squeezed me like a dish towel while I was trying to push her off, and now a section of my spine and ribs is so fucked up I can't bend it and it really hurts. She literally injured me just because she couldn't take no for a fucking answer.

Like. This is why I have learned helplessness. This is why I give up so easily. At some point, having boundaries and asserting yourself and communicating your needs doesn't do jack fucking shit, because if people want to, they can overpower you and physically harm you in the process anyway. For nothing.

And this is why I don't buy people saying "it's YOUR responsibility to enforce your boundaries; just asking for something isn't a boundary <3." Because I physically can't. Most disabled people physically can't. A person in a wheelchair can't "enforce" someone not touching their chair. Yeah, after it happens, they can maybe avoid that person in the future as a way to "remove that person's access" to the wheelchair user. But at that point, assault has already been committed and it's not about boundaries anymore. It's about human fucking rights. "Don't assault me" is not a fucking boundary. It's an able bodied person's trigger word.

[ennieasys]

Someone moving your wheelchair without your permission is the most fucking terrifying thing.

If I picked you up and moved you without warning or explanation you'd be freaked the fuck out too.

Don't. Touch. The. Chair.

[meangirlnurse]

one thing i’ve noticed is that i think a lot of patients just politely wait for their nurse to come back in the room to ask for what they need

like, possibly with the sense that using the call bell is rude/demanding?

and i guess i can’t speak for every nurse or every hospital, but personally i can say that i love and appreciate patients who use their call bell!!!!!!

[meangirlnurse]

first and foremost, i don’t like patients suffering in silence. we’re here to help you. you are not an inconvenience. taking care of patients is literally my job. if i learn you’ve been waiting to pee for three hours for my sake, i feel awful 😭

the other thing is that a lot of times when i come in your room, i’m actually doing med pass for all of my patients

generally i have about two hours to pass all my meds. i work somewhere with a pretty good patient-to-nurse ratio. i have 24 minutes per patient every med pass. for many nurses at average hospitals this will be 20 minutes or less.

but that includes everything, from pulling your meds to clarifying orders with docs to actually scanning and giving the meds to doing my required physical assessment etc. possibly hunting down another nurse for a co-sign or narcotic waste.

and if you wait for me to show up, then it also includes basic care tasks, too

i do not think i’m above doing “CNA work.” if you need something please tell me!

but! my floor has aides to assist the nurses with basic patient care for this reason. if you ring, they’re likely to be the first people to respond (because i might have just walked into another patient’s room, and my 24 minute timer for them started counting down already!)

the aides are unlikely to just pop into your room on a regular basis, though. so using your call bell lets us make sure that your needs are met, but it also makes it possible to delegate some of those tasks to the staff members who arent working against a clock

tl;dr call bell is good, call bell is friend!

[meangirlnurse]

it also pisses me off so much that there may be patients who are correctly assessing that their nurse is overwhelmed/doesn’t have time, and may not even have aides to help

managing the predictable outcomes of administrators intentionally understaffing their hospitals should never be a responsibility that falls on a fucking patient!!!!!

you are sick. you are at the place for helping sick people. we should minimally have the resources and staff to meet your basic needs

i genuinely do not know how people can work as nurses without being radicalized

[wheelingwithgrace]

Disability Discord!

Hi! I believe I posted a long time ago about making this, it’s still not completely finished and I probably messed it up a bit but for right now it is joinable.

Please feel free to join - it is safe and inclusive to all.

Found the original post that I made here for more info about it

The official link to the discord

[sycamorality]

shoutout all my neurodivergent folk who Dont have autism or adhd

[sycamorality]

hey fellow autistic folk and adhders. this post isn't about you. this post is about all the other neurodivergence that is specifically Not autism or adhd. maybe the clearest post on the site about that actually. i'm autistic and have adhd too, but this post is specifically not about that. stop making it about your autism or your adhd.

it's about npd, bpd, psychosis, schizophrenia, dyslexia, dyscalculia, dyspraxia, dysgraphia, epilepsy, DLD, did, osdd (and any other plurality/multiplicity), depression, brain damage, anxiety, tourettes, down syndrome, ptsd, and everything else. it's specifically about neurodivergence that ISNT autism or adhd.

[ace-disgrace-on-the-case]

There’s something so uniquely terrifying about memory issues. I feel like my self is slipping away from me.

[ace-disgrace-on-the-case]

Here’s the thing I feel like a lot of folks don’t get: I’m not trying to forget what you said. Honestly, I really tried not to. I can’t control what I do and don’t remember—forgetting things just happens. It’s annoying for you, I know, but for me it’s distressing as hell and when you make a big deal out of it rather than just reminding me you make me feel ashamed. I’ll remember that, at least.

It costs you nothing to be kind to people with memory problems. Please. It’s scary enough without people treating memory lapses as a personal failing.

[ace-disgrace-on-the-case]

Hey, reblog this version instead, please!

[venovenous]

peace and love on Earth..

[kazlives-deactivated20251103]

One thing about having “paranoid” in your chart is that you will never be believed about anything ever again.

Report a doctor for malpractice - they didn’t actually do that you’re just paranoid. Doesn’t matter if you actually have evidence it’s dismissed immediately they never even read the evidence.

This also affects POC more harshly as very real incidents of racism even violent ones will be dismissed under the “paranoid” label. POC are also more likely to get labeled paranoid by psych for talking about the very real and literal discrimination that they are experiencing.

[talkethtothehandeth]

Wild concept that shouldn’t be wild and the coldest take ever: disabled adults are *adults* and not just children trapped in adult bodies

Disabled adults have sex

Disabled adults do drugs

Disabled adults curse

Disabled adults get piercings and tattoos

Disabled adults can make adult decisions and act and behave like adults because we are adults

It’s just so weird for people to constantly infantilize me all because of my mobility aids when I’m not a child!!!

[asexual-amanita]

Cognitively disabled people deserve gender access to affirming care.

Psychiatrically disabled people deserve access to gender affirming care.

Physically disabled people deserve access to gender affirming care.

Being disabled doesn't erase the possibility of being trans, having dysphoria and/or wanting to pursue a medical transition.

[briarpatch-kids]

So do intellectually disabled people! I know multiple transgender people who are also intellectually disabled and they have a very difficult time accessing social and medical transition unless there are supportive caregivers!

[schizononagesimus]

also hey can we talk about violent psychosis for a sec. cause i really appreciate all the talk surrounding psychosis positivity and stuff but a lot of it is "we're not all violent! sometimes hallucinations can be positive!" like sorry mine are not. im scary psychotic.

im "cant have anything that even remotely could be used as a weapon in the house" psychotic. im "if i miss my meds one day i have to go to the hospital for homicidal and suicidal thoughts that literally aren't my own thoughts but theyre controlling my actions" psychotic. im "im seeing horrors you cant even imagine to the point where i dont exist in the same world as you anymore" psychotic.

im not going to hurt you, i just need help. when im rocking in the corner talking to myself at 3am, remember that i am in a state of terror. im afraid for my life. i either genuinely believe everything is trying to kill me, and i only know one way to deal with it; or something is telling me to be violent or else it will kill me; or i have dissociated so hard that i autopilot myself to violence to try and wake myself up.

some of us are violent, and that's okay, because it has to be, because it's the truth. just get us help.

[diserbillyti]

Been playing a lot of "psychological horror" games lately, and man

nonschizophrenics will simply never understand that "what if it was all in the person's head?" will never be scarier than a monster that actually fucking exists.

oooh what if you're crazy :o what if you hallucinate a goobly gobbler? well mate you fucking deal with it. rent's due monday. but an actual real goobly gobbler coming for my gnuts? that's different.

[snorlax-and-co]