SupercalifragilisticMULTIPLESCLEROSIS.

This blog is my experiences, and opinions, rants and raves, trials and errors of living with Multiple Sclerosis. I'm Kelly, a 26 year old, queer, cis woman, feminist killjoy, who is not a writer, so my scribbles will not always be excellent or eloquent but I wanted to make a space for my family and friends to see what's happening within my life with a chronic illness and little bits and pieces about other disabilities/chronic illness'. I have been writing about my MS up until this point on my personal blog so these will be my experiences and learnings from about a year into this adventure/possible shit-storm. LINKS Pepperminteyecandy hairdressing YouTubes Furry femme blog network! Body Positive Feminist Network! What led to my MS diagnosis

[paxamericana]

[just-shower-thoughts]

Unlimited talk and text would have been way more useful 6-10 years ago when I was in high school and had friends.

[julyjoness]

Visit Original Link

Westfall - Okkervil River

[anotherlittlegreyarea]

Visit Original Link

why is everyone's red hair thing my problem?

[anotherlittlegreyarea]

I have had a pretty weird time with doctors so far... but I am currently undiagnosed. For about half a year I had a sort of 'unofficial' diagnosis where a doctor thought I had MS but another thought it was just a new symptom of my clinical depression. This makes sense... apart from my depression has gotten a lot better recently, (over the last year) but the extreme fatigue/ MS type stuff still remains. Seeing as doctors havent helped much, do you have any opinion? I am so confused!

I'm sorry things haven't been easy. Lots of people have really long periods of not being able to get a proper diagnosis. Have you had MRI's or a lumbar puncture? I would even suggest seeing a different doctor. (another one i know). Perhaps try a see a neurologist? I'm not sure where you're at with money, or health care. I'm sorry i'm not much help. Good luck <3

[4gifs]

[rynvasnormandy-deactivated20150]

GUYS YOU HAVE NO IDEA HOW WONDERFUL THIS IS 

Parkinson’s is a degenerative disease and while it’s progress can be slowed down, it currently doesn’t have a cure. People suffering from Parkinson’s will experience a gradual loss of coordination and ability to perform even the most basic of every day tasks, including feeding themselves. 

This fucking spoon is HUGEfor them. Look at that gif of the man just trying to eat with the regular spoon and compare it to the liftware device. It’s NOT just a spoon, by the way, it comes with a fork as well, for example. 

I found the website for the project where you can purchase a spoon for someone you know/love and even possibly donate money to help someone out who can’t afford it themselves right: HERE.

At the very least, please spread this for all the people who have Parkinson’s or loved ones with Parkinson’s. 

You’ll help them take part of their life back. 

[davyjr]

that’s cool

[aww-tistic-deactivated20140810]

PEOPLE HAVE BEEN TAKING OUT THE ABOVE INFORMATION AND JUST REBLOGGING THE PICTURE.  IF YOU CAN REBLOG THE PICTURE, YOU CAN REBLOG THE LINK TO ACTUALLY HELP PEOPLE.  THANKS.

[livesickdieill]

More radness about the MS run with awful puns on twitter. Running suxxx but The Tearaways rule. Donate!

[anotherlittlegreyarea]

Hell yeah! Donate! And go buy Tim's book about having MS. If it's anything like the show i'll be funny and truthful and great. 

[anotherlittlegreyarea]

Can you talk about disability?

Today I really didn't want to go to the gym. I had a headache all day, had a gross nap that made me feel worse and basically felt like rubbish until about 2 hours ago. I'm not great with self motivation or control (ie: I have none) so as soon as I started to feel a bit better I was like, "Go! GO! GO!" because I knew a second of doubt and I'd get back into bed. 

I ended doing my cardio on the treadmill instead of the bike because after all I am intending on trying to run this thing on Australia day (donate! share!) and holy shit, that was a lot harder but also a lot more satisfying so i'm thanking the motivation gods for the endorphins I'm enjoying now. 

Anyway, on my walk home I found the bookmark (in the above photo) on the ground which said that today (3rd) was 'International day of People with Disability' and if I didn't know then you probably didn't either. 

The bookmark was said that 1 in 5 Australians have a disability of some kind and it encouraged people to create conversation to remove barriers and promote an understanding of people with disability and encourage support for their dignity, rights and well-being. 

It started me thinking that because I am a person with MS and also mental illness(s) both of which a for the most part invisible at this point, but someone who is quite open about all of it I almost certainly take for granted not just the lack of stigma but support my friends (and family) have for me surrounding my disabilities.

When I think about my friends with disabilities (which range from Cystic Fibrosis to Crohn's to well, all of the mental disabilities) it made me realise that most of them, a lot of the time are invisible. Unless my friends came out and told you, you wouldn't know that the cutie with the booty on the d-floor had surgery last year for an incurable disease, or that the person you go to uni with has an anxiety disorder or whatever - you get my point. 

I don't have that many people in my everyday life with visible disabilities and I assume that a lot of people are in the same boat, so that 1 in 5 statistic are probably your friends and family possibly without you even knowing. 

Basically this is a post asking you to talk. Talk about mental health, ask about access ramps, and sign language interpreters. Read up about how to support someone who's going through a hard time, look up how to help if someone is having a panic attack, or what not to say to someone who tells you they have an eating disorder/ptsd/etc.

Be rad, be inclusive, be understanding. That's all. 

[anotherlittlegreyarea]

Hi, I'm thinking that I might have MS based on various symptoms that I've been experiencing for a long time. I see a neurologist Friday, but I'm having a lot of anxiety about the symptoms and the possibility of having MS. I was wondering if I could tell you my symptoms and see if you think they sound like MS?

You can totally ask me anything about MS stuff and I'll try to help. To be honest the fact that you're seeing a Nuro is the advice I would have given you but ask away and I'll try to be helpful x <3

[anotherlittlegreyarea]

New year, new me: fitness fanatic!

Just kidding, but if I don’t prepare for this dash I will die. 

So anyone who knows me will know I have MS, and it’s pretty lame (pun!) and if you know me well enough you’ll know that not only am I not fitness savvy at all but I sort of hate it. I’d never been to a gym before a month ago and with a month to go I thought I’d make this more personal (and me more accountable) and hopefully it will encourage people to donate more if they see the work I’m putting in. At this point in the fund raising we’re coming in second place which is super amazing but I bet the stakes will up the closer it gets.

I’m preparing to do this dash no matter what. If I have a flare and I can’t feel my legs (it’s happened before) then I will hire a chair and find someone to push me. I’m keen. I’m ready! Actually I’m really not ready and that’s what this blog is about. Updating you with sweaty photos and whinging about how much I hate summer and how apt the name of our team is.  

I just got my new cardio based gym workout thingy (I’m a pro) and so here is a photo of my workout, me working out and also me being dramatic and flushed post fitness.  

To gimmie all ya $$ or like $2 go to here and click the donate button. 

[anotherlittlegreyarea]

Hay babies, I'm going to be blogging away my attempt at getting fit so I can try and run some of a 5k fun (ha!) run for MS on Australia (invasion) day. It will probably be hot as tits, as in like possibly 40+ so if you could boost this or throw me some coin that would be the best! 

[anotherlittlegreyarea]

New year, new me: fitness fanatic!

Just kidding, but if I don't prepare for this dash I will die. 

So anyone who knows me will know I have MS, and it's pretty lame (pun!) and if you know me well enough you'll know that not only am I not fitness savvy at all but I sort of hate it. I'd never been to a gym before a month ago and with a month to go I thought I'd make this more personal (and me more accountable) and hopefully it will encourage people to donate more if they see the work I'm putting in. At this point in the fund raising we're coming in second place which is super amazing but I bet the stakes will up the closer it gets.

I'm preparing to do this dash no matter what. If I have a flare and I can't feel my legs (it's happened before) then I will hire a chair and find someone to push me. I'm keen. I'm ready! Actually I'm really not ready and that's what this blog is about. Updating you with sweaty photos and whinging about how much I hate summer and how apt the name of our team is.  

I just got my new cardio based gym workout thingy (I'm a pro) and so here is a photo of my workout, me working out and also me being dramatic and flushed post fitness.  

To gimmie all ya $$ or like $2 go to here and click the donate button. 

[culturecrime-deactivated2016122]

This, THIS is why when I get on a bus with my scooter, I sit in it and ride, even though it’s less safe, even though my scooter has tipped over on buses before. THIS is why I don’t just park my scooter outside a bathroom stall and walk in. THIS is why, when I go out in public, I let people think that I’m a full-time chair user. THIS is why 99% of my college campus had no idea I can walk. Because of attitudes like this. Because of ableism like this.

This is why hardly anyone knows that I actually use a wheel chair. This is why I walk even when I shouldn’t.

[livesickdieill]

2014 MS Colour Dash – Australia Day

Help fundraise for people living with MS. Sponsor Multiple Regrets and support over 23,000 Aussies living with multiple sclerosis.

Give us (me, but not really me) your money, or boost! 

[wondrousalice]

Vintage photos of people posing with their prosthetics.

[livesickdieill]

Help me fundraise for people with MS

Hay dudes, I’m gonna do a 5k fun run for MS on Australia Day. I’m looking for donations and also idiots who want to join my team (Multiple Regrets) and run (or walk) with me. Everyone’s welcome to join me for a day of wishing you didn’t sign up for this shit on the day. Double dare ya.

[humans-of-pdx]

"I had a bacterial infection when I was two that turned into gangrene. People don’t believe all the things I can do. Like write. I have some of the best handwriting in my class." She put her arms together to show me how she would hold a pencil or pen.  "Are you in school?"  "Well I just finished medical school to become a medical assistant." Just then she got a phone call, swiped open the touch screen and effortlessly held the phone up to her ear. I waited patiently as she tried to work out some logistics with a family member. "That was my grandma. She’s on her way to pick me up and take me to my dance studio."  "You dance?"  "Yeah, you should come to my performance."  I told her I would absolutely love to.

[franklyitsscarlett]

You fucking go girl.