julski. @buddhabrezel - Tumblr Blog

There is a particular kind of suffering that comes from realizing you may spend the rest of your life in pain while also being expected to continue fighting for care with the same energy you had years ago.

only-knives

"you're so lucky you get to stay home and watch tv + play videogames all the time"

no im not. i feel uncomfortable all the time. im in pain all the time. i feel sick all the time. im exhausted all the time. i mostly sit on the couch and watch anime or youtube, because i cant do anything else.

i cant even play videogames that much because it makes me sicker. there have been times where im really enjoying a game and i end up with a rapid pulse, sweating, shaking, and spinning. ive gotten mindbreaking headaches from the lights changing on my screen.

my body cannot tolerate existence. i dont sit at home doing this every waking moment because its what i want, but because my body has given me no other choice.

you're lucky for having the abilities requried to work. you're lucky to not be dependent on the state for every single aspect of your life. severely disabled people are not just having fun and relaxing. we are suffering, and trying to make the most of our lives as they are.

painedandconfusedsblog

There is a particular kind of invisibility that happens when you are profoundly sick and your world gets smaller than most people can imagine. When there are things you genuinely cannot do for yourself, yet you also don’t have the capacity to explain your situation, coordinate support, respond to messages, maintain friendships, or make your suffering legible enough for other people to understand.