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@celliberate
Itās crazy during the summer months I actually had a little break from major sickle cell pain I almost forgot what it was like but as soon as october hit life was like nope and then I almost got depressed again smh oh well
anyway my goal is to make it through november with no hospitalizations or trips to the er, join me wonāt you?
23
Today is my 23rd birthday & Iām so grateful to have seen another year. I didnāt do much since tomorrow is my first day of classes & now Iām in bed resting since Iām feeling some pain in both arms.
This past year living with Sickle Cell, Iāve learned to embrace my illness and to just take the good with the bad. My crisis have decreased so much over these past few years & I am able to enjoy my life much more. Iāve met great people who also have Sickle Cell and I have opened up more about my illness. All in all, Iāve had a great year and I hope to have many more āØ
Happy Birthday!! Congrats to you for living your live in spite of Sickle Cell. I hope your school year goes well and you have a crisis free 23rd year!
Sometimes being stubborn gets you into trouble.
Bisou.
repost via @instarepost20 from @scdai Advocating and spreading sickle cell awareness at the James R. Thompson Center Chicago, IL #sicklecell #stopthepain #notthefunding #SCDAI #UIHEALTHSICKLECELL #fundsicklecell #haveaheartforsicklecell Stand For Something or Fall For Anything!Ā #instarepost20 (at Chicago, Illinois)
September is here! September is Sickle Cell Awareness Month and some very close to our hearts at Survival Pride. I have Sickle Cell Anemia and was told many negative things from doctors through the years but they didnāt stop from playing sports and excelling in life. Everything is a mind set in life. āFear Will Not Consume Me!ā is motto for the Sickle Cell Awareness Month shirt. Sickle Cell Anemia didnāt make me weak but strong. I take pride in telling my story overcome Sickle Cell to become a top athlete through school to being the founder of Survival Pride Clothing. If my story gets to one person with any illness that shows them that your illness doesnāt run your life but you do. That you will Live, Thrive, Survive through those challenges in life. Letās spend the word about Sickle Cell. When your purchase a Sickle Cell Awareness T-Shirt 10% off the profits of each sale is donated to Sickle Cell Disease Association of America. Thanks for everyoneās love and support of Survival Pride Clothing. Without you we would be able to do things we do.
One Love, -Faustine aka Tina (Founder/Designer of Survival Pride)
Purchase T-Shirt Here: http://www.survivalpride.com/store/p95/Sickle_Cell_Awareness_Shirt_%28Fear_Will_Not_Consume%29.html
#survivalpride #sicklecell #strong #lifestylebrand #donate #weightliftiging #sicklewarrior #awarenessmonth #awareness #sicklecellawareness #sicklecellawareness #sicklecellwarrior
repost via @instarepost20 from @sicklecell101 Last but not least for the launch of #SickleCellAwarenessMonth a 30-Day Lifestyle Challenge to make sure our warriors are healthy throughout the month of #September. It promotes health in all aspects. Whoās up for it? Join us! #SpeakOnSicklecell #SickleCell101 #healthyliving #healthiswealth #TeamSickleCell #sicklecell #SickleCellWarriors #SickleCellAwareness @SpeakOnSCĀ #instarepost20
Day 2 of Sickle Cell Awareness Month!! #September #SickleCellAwarenessMonth #SickleCell #TeamSickleCell #advocate #awareness #SickleCellAwareness #SickleFact #SickleCellAnemia #SickleCellSC #SickleCellSS #ChronicIllness
quick history lesson: before #SickleCell had a real name it was just called āmolecular diseaseā #SickleCellDisease #RaiseAwareness #WeAllBleedRed
1971
Tunde Kelani on his latest film Dazzling Mirage about a family hit by sickle cell anemia
September is National Sickle Cell Awareness Month
September is National Sickle Cell AwarenessĀ Month
Congress has designated September as āNational Sickle Cell Awareness Monthā to help focus attention on the need for research and treatment of sickle cell disease, an inherited condition that currently affects 70,000-100,000 Americans. Imagine waking up in the morning to a beautiful day. You brush your teeth, get dressed, get in your car, and head to work. Everything is business as usual. Aboutā¦
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Shoutout to the Tips For Friends in this article! Happy Sickle Cell Awareness Month!!!
As most of you know, KAMMs is a Sickle Cell fighter. Diagnosed at just 2 days old, she's already been through (and won) more battles than most of us will encounter in a lifetime. Her most recent battle was the worst she's experienced so far. With the help of her mom and physical therapists KAMM...
Hi! bassmonstertiff here!
For those of you who know my besfren KAMMs, weāre trying to get her walking again and lift her spirits at the same time.Ā
If youāve got a second, click the link and leave some encouraging words would ya? Plus September is Sickle Cell awareness monthāspread the word.
Thanks, yāall!
Story Time
Story time: My mother told me about my Korean name recently. She said it took her and my dad 12 days to choose it. I was born weaker than all the other babies that were born that day. My heart didnt beat enough and my lungs were too small. I was supposed to die. Two days after my birth i was diagnosed with sickle-cell anemia/beta thallasemia and told i would never walk or live to see the age of 5. I was supposed to have a stroke at 1 and be imoble, i wasnt supposed to be able to speak or breath properly.At 2 i was walking, at 5 i was playing with friends and now here i am at 16 still living with my small lungs& blood disorder. My parents gave me the name Seul Chan. Seul =Leader and Chan=Determined. The name is so important to me because of its meaning. Now i may still need help breathing at times, and i cant do too much that normal teens can do but shit im proud to have the name i have.
Tips for Raising Your Hemoglobin MasterPost
In the past here on the Celliberate blog, Iāve talked a lot about my reservations with the medication Hydroxyurea and have sought to find holistic alternatives for raising and maintaining healthy hemoglobin while living with Sickle Cell. During my research I found that there are several foods and supplements that can help with hemoglobin and anemia and I have made a few posts in the past listing and detailing them. Since then, due to complications and changes with my own health I have began taking low doses of Hydroxyurea but my preference is still to increase and manage my anemia naturally. This way, I figure, you get to eat delicious food and promote good health and do your body good all at once! Enjoy!
How to Increase Your Hemoglobin
Personal Health Update & Supplement Use Pt 1 & Pt 2
Other Natural Ways To Increase Your Hemoglobin
Benefits of Greens Through Juicing
The last post is not specifically about hemoglobin, but I did promise to include some things about juicing today. Iām going to start compiling some recipes also for whoever is interested! Remember, you are what you eat!
Moya Moya Vessels
- occurs with sickle cell disease - Hypoplasia or stenosis in bilateral distal ICAs (Internal Carotid Arteries) - abnormally dilated collaterals - cause hemorrhage or ischemia
Explanation: in sickle cell disease, the shape of the RBCs cause damage to blood vessels, especially at branch points. This can occur with the major arteries of the brain (internal carotids). So the body makes many smaller collateral vessels to bypass damage. These new vessels are weaker, smaller, and fragile. They provide insufficient blood supply to brain and may burst causing hemorrhage (bleeding) or ischemia (blockage of vessel).
Alternative Pain Therapies
Heat.
Heating pads, soaking, showers. Does it work for you?? Why or why not?
I try to use heat for moderate pain when I want to avoid opiates.
Massages.
Iāve noticed also for light-moderate pain that firm massaging helps to dissipate that pain. The only downside is that the pain returns as soon as I stop so sometimes I get my gf to massage my legs for me when i get tired but it gets old after a while. This method usually works best while waiting for pain meds to kick in.
Others?
Download ZOO RUSH, a game created to raise awareness for #sicklecell. Developed by Clay Ewing at University of Miami, Zoo Rush shares tips on how to stay healthy, with sickle cell disease, which includes drinking water and avoiding infections. Download it today! Available for iOS and Android.
