We Are Sickle Strong

Throughout The Sickle Cell Community There Is Only One Word That Can Be Used To Describe Us, "STRONG", And Our Objective Is To Change The Outlook Of The Healthcare Field On Sickle Cell Disease While Informing Both Doctors And Patients On Preventative Measures As Well As Alternative Treatments For Sickle Cell. We Invite You All To Share Your Stories Of Perseverance, Personal Success, Frustration, Progress, And Strength With Us So That We Can Share Them With The World. We Will Be Promoting Various Sickle Cell Awareness Campaigns And Starting Mid 2015 We Will Be Periodically Gathering Data For Clinical Research. Your Support Is Highly Appreciated.

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repost from @arethacleveland Winning the Battles In Your Mind a 501(c)3 nonprofit organization is hosting our 4th Annual Black Tie Gala for families with Children battling Sickle Cell Disease on Saturday, June 25, 2016 at The Cobb Galleria Centre, Red carpet start at 6pm hosted by Radio Personality and Author Heidi B. Fuller; Program start at 7pm hosted by Radio Personality Andrea Brock Griggs & Rhodell N-the Atl Lewis. Purchase your $100 VIP tickets today for $50 Only(A limited time only) Enjoy a three course meal, entertainment, Fashion Show by Tijuana Faison and a Silent Auction. Music and Mingling to following Music by DJ Aaron A D Daniels Sr. of Power 107.1 FM. Photographs by Untamed Royalty Photography Le'Tonya Grissett. Support This Great Cause!!! #instarepost20 (at Cobb Galleria, Atlanta, Georgia)

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repost from @arethacleveland 2016 Black Tie Gala Early Ticket Sales - All $50 Tickets are upgraded to VIP seating upon purchase. Purchase your tickets today @ http://goo.gl/942xaP #BlackTieGala2016 #SickleCellAdvocacy #WTBAdvocates #instarepost20

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repost via @instarepost20 from @sicklecell101 We will be hosting one last online focus group this THURSDAY, JAN 28 at 6:00 PM EST. Appearance and images will be determined for the #sicklecell educational brochures and office cards. This literature will be distributed to doctors offices nationwide. To participate please register at: http://goo.gl/forms/x9Gue8h0M9 (link in bio) This will be the last focus group and your last chance to provide input for this literature. #instarepost20

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The Sickle Cell Foundation of Ga. started the year out strong with their Sickle Cell Day at the Capitol! They announced their new efforts to get sickle cell experts to rural areas throughout the state, as well as fundraising through government issued Sickle Cell licence plates. The organization is expanding through the healthcare field to get involved in clinical trials as well as bring funding for education. Be on the lookout for updates throughout the year. (at Georgia State Capitol)

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repost from @sicklecellmtf Our President meeting the President! #instarepost20

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Goals

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repost from @sicklecell101 "When in #pain, think of these 4 words as a foundation to be pain free." @tj_saysnatural 1. Anti-inflammatory 2. Blood-builder 3. Hydration 4. Nutrients Learn more about #natural wellness for #sicklecell by following @tj_saysnatural, president of Sickle Cell Natural Wellness Group, Inc. #SickleCell101 #SickleCellEducation #SickleCellAwareness #sicklecell ||| Like what you see? Get notified every time we post. Go to our page and select the ••• (three dots) on the top right corner and select 'Turn on Post Notifications'. ||| #instarepost20

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repost via @instarepost20 from @boldlipsforsicklecell @boldlipsforsicklecell along with Sickle Cell Warriors, @sicklecell101 presents the Sickle Cell Lit project we are super excited about this!! #SC3 #teamsicklecell #sicklecellwarriors #boldlipsforsicklecell #sicklecell101 see flyers for details! Are you guys excited because we sure are!! #instarepost20

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repost from @sicklecellmatters Children’s Hospital Los Angeles (CHLA) just launched an iPhone app to supplement a large sickle cell study that is currently underway. Thomas Coates MD, along with four other co-principal investigators, received a five year $9.5 million award from the National Institute of Health to study the underlying physiology of sickle cell disease and identification of biomarkers that will aid in development of new treatment options. Industry companies such as Pfizer and Roche are embracing mobile tools to supplement their own clinical studies, and CHLA’s decision to do the same with their study continues to support the use of mobile tools to collect patient data. The app is called R-Helper, and when sickle cell patient’s are having aura or pain, they can use the R-helper app to collect this data giving specific pain metrics. The researchers have also built in an incentive program to reward participants for utilizing the app. #apps #imedicalapps #rhelpepper #sicklecellapp #sicklecellmatters #chla #childrenshospitallosangeles #pfitzer #roche #instarepost20

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repost via @instarepost20 from @sicklecellmatters 🔊Sickle cell organizations across the globe are in desperate need of community and company support. Thank you to Property Appraiser Gary R. Nikolits for 11 years of support! Bridging the gap between companies, city officials and community activists is the key to bring about change around the world.🔊 Property Appraiser Gary R. Nikolits has given $3,655 to the Sickle Cell Foundation of Palm Beach County and Treasure Coast for its 2015 Sickle Cell Awareness campaign. Nikolits presented the check Monday to Chief Executive Officer Shalonda Warren. The donation marks the 11th year the Property Appraiser’s Office has been associated with the foundation. Employees raise money through pledges and other events for the Awareness Walk, was was, Sept. 19 at the Wells Recreation Center in Riviera Beach. The Sickle Cell walk is one of four health care agencies our employees sponsor each year. The others are the HeartWalk for the American Heart Association, March for Babies for the March of Dimes and Making Strides Against Breast Cancer for the American Cancer Society. #communitybuilding #bridgingthegap #sicklecellmatters #sicklecell #nonprofit #ngo #sicklecell #donate #findanorganizationandhelp #september #palmbeach #instarepost20

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@caribbeanfocustv #Repost @korriercftv ・・・ This Saturday a very special episode of @caribbeanfocustv is here. #sicklecell Disease has impacted the staff of CFTV in numerous ways. We wanted to create a show that would educate and show why #sicklecellawareness is important. A very special thanks to @sickle_strong @sicklecell101 and @boldlipsforsicklecell for assisting in the creation of this 2 part show. This shownhas an interview with @evanderholyfield who was a special guest at the 2nd Annual #walkamileforsicklecell event. #sicklecellawarenessmonth #caribbeanfocustv #boldlipsforsicklecell #sicklecellfoundationofga #sicklecell101 #atlantatv #atlantaga #georgia #worldwide #cftvcares #inmemory Please remember if you are not in Dekalb County, GA you can go to www.caribbeanfocus.tv for the show on Saturday. Also @cherriegarden does every show flyer created...thank you to her also. #instarepost20 (at Dekalb County, Atlanta, Georgia)

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repost via @instarepost20 from @tinaofficial Streetlight, the brothers of the Omega Psi Phi Fraternity, Inc., and the Sickle Cell Disease Association of North Central Fl, are donating essential items to sickle cell patients and we need your help! We will be accepting donations all month to aid those diagnosed with sickle cell. If you are unable get to the drop off locations, contact an Omega Man or Streetlight member. Visit the link in our bio for more information on Streetlight and how we makes significant contributions in our community. #Essentialsdrive #Streetlight #OZ #ChompOutSickleCellReloaded #instarepost20

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repost via @instarepost20 from @scdai Advocating and spreading sickle cell awareness at the James R. Thompson Center Chicago, IL #sicklecell #stopthepain #notthefunding #SCDAI #UIHEALTHSICKLECELL #fundsicklecell #haveaheartforsicklecell Stand For Something or Fall For Anything! #instarepost20 (at Chicago, Illinois)

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repost via @instarepost20 from @scdai Advocating and spreading sickle cell awareness at the James R. Thompson Center Chicago, IL #sicklecell #stopthepain #notthefunding #SCDAI #UIHEALTHSICKLECELL #fundsicklecell #haveaheartforsicklecell Stand For Something or Fall For Anything! #instarepost20 (at Chicago, Illinois)

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repost via @instarepost20 from @kennybxc It's September which means #SickleCellAwarenessMonth and we would love everyone to help @boldlipsforsicklecell and the sickle cell community to help spread awareness to this dreadful disease. Any questions regarding sickle cell just ask so I can educate. #BoldLipsForSickleCell #SickleCellWarrior #SickleCellSucks #SickleCellAnemia #SickleCell #Awareness #SickleCellAwareness #instarepost20

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repost via @instarepost20 from @sicklecell101 Last but not least for the launch of #SickleCellAwarenessMonth a 30-Day Lifestyle Challenge to make sure our warriors are healthy throughout the month of #September. It promotes health in all aspects. Who's up for it? Join us! #SpeakOnSicklecell #SickleCell101 #healthyliving #healthiswealth #TeamSickleCell #sicklecell #SickleCellWarriors #SickleCellAwareness @SpeakOnSC #instarepost20

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from @kangelmurphy Day 5 in this hospital and this #SickleCellPain is on its A game. I took the selfie as proof that we ain't the "drug seeking, attention hogs" that people make us out to be. I'm on a PCA pump with a 10 minute lockout period and the tears of pain continues to trickle down and across my face and as much as I don't want to, I smile because sometimes, it's the only thing left for me to do. #SmileThroughThePain #TeamSickleCell #SickleCellWarriors #instarepost20 (at Sickle Strong)