chewnecklace

isaac, 20's, he/she; fibro, me/cfs; audhd, etc

[libertineangel]

Incredibly stupid facet of human biology that stress can weaken the immune system and exacerbate illness, like "oh things are going badly, let's make more things worse too"

[wheelie-sick]

sometimes people experiencing psychosis and/or mania will come up to you on the street and talk in confusing or upsetting ways. your job is to either have a regular human-to-human conversation with that person or politely leave. your job is not to call 911. do not call 911. you might kill that person if you call 911.

[wheelie-sick]

I don't even have the energy to screenshot and respond to your tags- what the actual fuck is wrong with you? "the cops are scared and rightfully so" "mental health calls are the scariest for cops" OH so this isn't about the safety of psychotic & manic people this is about piggy feelings?

and no, actually, this is not USA specific and no, actually, people from other countries should not ignore this post. police violence and sanism weren't invented in the US and they are certainly not unique to here. if you (or anyone) thinks that this bullshit doesn't happen elsewhere then you are not listening.

[headspace-hotel]

cops r Some Guy with a Gun

do we want Some Guy with a Gun in this situation? answer is usually "NO"

[yuridiot]

doctor just prescribed me music really loud

[ot3]

its awesome that neither mind reading nor god are real and all of the thoughts inside of your head are completely private and consequenceless forever #myprivacy

[bebsi-cola]

disabled people are often in permacrisis

[bebsi-cola]

there's never enough money each month. there's always an unexpected illness. new symptoms pop up or old symptoms flare up. meds have to be managed always and refilled constantly and any refill has the opportunity to go wrong. any regular care has the opportunity to go wrong. any mistake can send your health spiralling. it's always "i just need to get through this bad patch" but as soon as one ends another begins. another crisis begins in the middle of the last crisis. managing one thing leaves another thing to be neglected until that becomes a major issue and has to be managed asap and the cycle starts anew over and over and over

[thatdiabolicalfeminist]

via prev

[jenn1fersbody]

[zylahbee]

many disabled people are experiencing multiple debilitating symptoms at once, every day.

this seems to be a major part of my life that is incredibly difficult for abled people to grasp.

they cling onto one symptom, and create this imaginary image of my health that said symptom is all i deal with, and if i am not experiencing that symptom then i am completely fine!!!

an entirely hilarious phenomenon when i literally have multiple illnesses. so even if each illness came with one symptom i would still have multiple?? 😭

i seriously don’t understand why almost every abled person i encounter thinks like this.

[carnage-cathedral]

my partner said something that kinda rocked my world

[scribefindegil]

Tips for baking with brain fog

Brain fog in the kitchen can mean anything from forgetting an ingredient to accidentally skipping a recipe step, plus much more. Here's how to bake successfully, even when you're feeling foggy.

A useful article from King Arthur Flour (my beloved) on baking while disabled.

[capt-coffeebitch]

This genuinely might make me cry. I already deeply appreciate King Arthur for making the best GF 1 for 1 flour. And having good recipes. But an article posted by them from someone with disabilities about how to do the thing even with disabilities? That’s just genuinely lovely. I know that my bad there is low, but it’s low for a reason and hopefully stuff like this can continue to raise that bar for disabled people like me.

[ilsa-fireswan]

I love to see this! Another of my favorites is the baking with arthritis post.

Tips for baking with arthritis and other hand-related chronic pain

With some changes to techniques, a careful selection of kitchen tools, and tips from fellow bakers, the joy of baking can live on.

[ilsa-fireswan]

Check out this great addition from the notes!

[image text: @system-splintered says: My grandmother started having severe memory issues a couple years before she passed, and her husband laminated her recipes and got her whiteboard markers so she could mark off things she did. It let her bake for a lot longer than she would have been able to otherwise. End.]

[cricketcat9]

if anyone needs it ☝🏼💖

[shamebats]

How to talk to doctors

Post by @ julez27_

[im-staying-calm-this-time]

Chronic illness sucks because you’ll catch yourself thinking shit like ‘I wish it was possible to bathe regularly’ or ‘they should invent a digestive system that doesn’t hurt’ and then realise… that’s actually the case for most people. That’s the norm. Not only do most people have that, they don’t even think about it

[louisegluckpdf]

they won't tell you this in therapy but sometimes the best way to stop catastrophizing/anxiety is to interrupt your spiraling with "girl what the hell are you talking about"

[ytpreviews]

It's not a cure but you have no idea how many times this image has helped me with my OCD

[spiralling-spires]

Its weird how you get more disabled over time. Like, most people i know with a disability actually have like eight disabilities and a lot of them slowed up later as a result of compensating for the earlier ones. This brought to you by me filling out a demographics form and wondering when i got to the point of checking that many damn boxes

“You get used to it” true but misleading because someday your back problems are gonna inexplicably cause stomach problems. And then you get used to the stomach problems but your thumbs start hurting because you had to do so much work on your phone lying in weird positions while waiting for the stomach problems to go away. And there are way more distractions on your phone too so while you always had adhd this just makes it more annoying/prevalent-

Anyway hi disabled people with one million conditions i love you and i hope youre having a good day with minimal pain/inconvenience

[mindflamer]

nobody talks about how humiliating it is to have chronic fatigue before you know what fatigue is 😭 just going through life constantly miserable & feeling like you are failing everything but you can never explain why beyond saying "i'm too tired" which just sounds pathetic & like you don't care (it shouldn't but it does). tired is what healthy people feel after a long productive day & they restore it with sleep. fatigue is your body never making the energy in the first place

[starfishinthedistance]

I talk to many people who say things like "oh I have trauma but I don't have PTSD", but then when I talk to them a little more I realize that they most likely do, they just can't recognize it as such due to how lacking PTSD awareness is, even beyond the whole "it's not just a veteran's disorder" thing.

The main reason they think they don't have PTSD usually has to do with flashbacks and nightmares, either they have one but not the other or have neither. But here's the thing, those are only two symptoms out of the 23-odd recognized symptoms. Flashbacks and nightmares are two of the five symptoms under Criterion B (Intrusion), which you only need one of for a diagnosis. The other three symptoms are unwanted upsetting memories, emotional distress after being reminded of trauma and physical reactivity after being reminded of trauma (i.e. shaking, sweating, heart racing, feeling sick, nauseous or faint, etc). Therefore you can have both flashbacks and nightmares, one but not the other, or neither and still have PTSD.

In fact, a lot of the reasons people give me for why they don't think they have PTSD are literally a part of the diagnostic criteria.

"Oh, I can barely remember most parts of my trauma anyway." Criterion D (Negative Alterations in Cognition and Mood) includes inability to recall key features of the trauma.

"Oh but I don't get upset about my trauma that often because I avoid thinking of it or being around things that remind me of it most of the time." Criterion C (Avoidance) includes avoiding trauma-related thoughts or feelings and avoiding trauma-related external reminders, and you literally cannot get diagnosed if you don't have at least one of those two symptoms.

"Oh I just have trouble getting to sleep or staying asleep, but I don't have nightmares." Criterion E (Alterations in Arousal and Reactivity) includes difficulting sleeping outside of nightmares.

"But I didn't have many/any trauma symptoms until a long time after the trauma happened." There's literally an entire specification for that.

Really it just shows how despite being one of the most well-known mental illnesses, people really don't know much about PTSD. If you have trauma, I ask you to at least look at the criteria before you decide you don't have PTSD. Hell, even if you don't have trauma, look at the criteria anyway because there are so many symptoms in there that just are not talked about.

PTSD awareness is not just about flashbacks and nightmares.

[clover-wasnt-here]

Since autism acceptance month is coming up in April (I know I’m very early), shout out to all autistics and disabled people in general who:

Can’t get out of bed, leave the house, feed themselves, use the toilet, or perform other ADLs without assistance. I see you and you are not gross or weird or lazy or broken. You deserve a good caretaker.

Cannot communicate in any way. Like even AAC doesn’t work for you effectively, so someone else might have to speak on your behalf.

Can’t hold down a job, stay in school, or live independently.

Isn’t a savant, isn’t skilled with their special interests, or can’t do anything without immediate access to their special interests.

Has an intellectual or learning disability.

Has level 2 or level 3 autism that can’t be masked away so that you’re pretty much visibly autistic.

Has disturbing intrusive thoughts. They don’t define who you are, your actions do. You’re not a bad person for having intrusive thoughts; you can’t control them.

Experience delusions, hallucinations, disorganized thinking, or any other psychotic traits. You’re not crazy or scary, and you’re welcome into this space.

Dissociate, have amnesia from trauma, have gaps in your memory, have an identity or personality disorder, etc.

You’re worth it, hun. 🫶🏻

[fairycosmos]

hey idk how to articulate this part of being mentally ill but basically i feel like my life has been stolen from me in the most literal way and i can’t explain it without sounding like im making a million pathetic excuses