Everyone say it with me, the disability comes before the diagnosis ever can/does. Thank you for coming to my ted talk.
I'd rather be in outer space đ¸

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Not today Justin

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@childrenofthelightbringer
Everyone say it with me, the disability comes before the diagnosis ever can/does. Thank you for coming to my ted talk.
awww the like button turns into a rainbow when you press it! that's so cute...hey staff what's with all the trans women you keep nuking?
i think we should be ridiculing them more for this. you don't get to try and go all "queer website" when your staff likes to go on nuking sprees targeting the trans fem users
would be remiss not to mention that the rainbow notably straight up just removed the trans flag colors from it. like theyâre gone. itâs the progress flag minus the trans flag colors.
thatâs not the whole flag, now is it
hey staff what the fuck
hey staff don't you think you're being too on-the-nose
HEY STAFF DONT YOU THINK YOU'RE BEING TOO ON-THE-NOSE
PSA the "si" in shared YouTube links stand for Seal Indicator. This means there is a nefarious seal tracking your information and will give YouTube your data in exchange for fish. Please remove the part after "?si=" before you click on it or share the link with others because it is a tracking token!
Happy Pride month! đ
I just saw an anon come into a gif-makerâs ask box and start with the phrase: âIâm trying not to spam your inbox with reblogs, butâ and then go on to say how much they love the gifs.
But Iâm still stuck on that opening phrase becauseâŚwhat? I am so confused by how people view interactions on tumblr & AO3 these days. Let me make it very clear for anyone who is unsure:
CREATORS WANT YOU TO INTERACT WITH THEIR WORK.
The limit does not exist on how many of their works you can interact with in a certain period.
If you like every fic theyâve ever written? Then feel free to give them all kudos and even leave a comment on every single one if you feel inclined! If youâre going through someoneâs blog and you vibe with every post, like/reblog to your heartâs content!
As long as youâre not expecting something back from them or adding a ton of irrelevant comments, itâs not spam! Itâs what this is all about!! Iâm not even much of a creator and I still feel a huge sense of pride when I see a ton of notifications in a row from a person, as it clearly shows they thought my blog was worth spending time on.
And if for some reason a creator is annoyed by this (unlikely), they can manage their own experience (turn off notifs, not look at their notes, delete the fic, etc) -- so donât deprive the majority of creators because of some imagined annoyed person. Fandom is a collaborative effort and we all must participate!
Caninekin culture is watching bodily monoracial people use mutt as a pronoun and ignore you when you say its a slur because they think their identity is more valid than your racial oppression and thus pushing you further out of your own community because others refuse not to use a word that's a slur against you
!!!
When used in reference to an individual, 'mutt' is a slur. Be better, stop using it as a name or pronoun if you're not mixed race.
To all my regressor friends
Youâre not a bad a kid if
-youâre a picky eater
-you cry a lot
-you donât regress like others do
-you have melt downs
- you go non speaking
-you have big feelings
-you canât do something
-you have accidents
-youâre loud
-youâre clumsy
-you have trouble regulating your emotions
-you have scary thoughts
-youâre messy
Youâre a good kid. You donât have to have it all figured out or keep it together all the time. Itâs okay to have big feelings, itâs okay to mess up, itâs okay to have thoughts that scare you when regressed. Thereâs nothing wrong with you, youâre not bad. Itâs okay if your regression doesnât look like their regression. Youâre doing your best.
Be nice to your little self.
engaging with religion and spirituality from a plural perspective can be a difficult task for numerous reasons. please remember that how you engage with religion and spirituality does not need to conform to singlet not-plural standards whatsoever. whatever way you and your system engages with this is valid and does not need to be understood by every outsider that may see you.
I find it very offensive that the more unwell you are, the more things you have to do to maintain your health. Things like following special diets, going to medical appointments, making big and important decisions about what treatments to use. At the same time, the more unwell you are the less energy you have to do all of these extra things. It seems grossly unfair.
Shout out to people with very treatable or curable disabilities who aren't treated or cured. Whether it be bad luck, poor responses to treatment, inability to take treatments, not being willing to deal with potential side effects, whatever, you deserve accommodation and to be taken seriously as a disabled person. I hope the next person to tell you "that's not a disability" or "just do [basic treatment]" explodes painfully.
Ok but can we talk about the loneliness that comes with being chronically ill? If youâre not able to work or go to events, thereâs so much time spent by yourself.
It feels like Im a zoo animal with no enrichment or friends, just me staring out the glass
I know that on the internet transfemmes tend to get accused of âseparatist ideologyâ the most for speaking about our issues, but I do think itâs hilarious (evil) how the more marginalized you are the harder it becomes to actually be separationist or isolationist because of the exact systemic discrimination that creates those desires.
Like ok, youâre transfemme. You have hella bad experiences with non-transfemmes doing transmisogyny to you so you end up interacting almost exclusively with other transfemmes.
But youâre also Black, and you hope that also being marginalized will help cut out the antiblackness and transmisogynoir from non-Black transfemmes, but it turns out they still gonna do that shit to you, so you retreat to just other Black transfemmes.
And then you get hit with long covid or literally any other disability, canât work anymore because of it and become reliant on mutual aid to survive. Surely, you think, the double whammy of being Black and transfemme means theyâll understand ableism too. Maybe mask so you can be with them safely without getting even more disabled.
And then they donât, so you try to find other disabled Black transfemmes, a sliver of a sliver of a sliver, but theyâre all ALSO broke and isolated and surviving on mutual aid and luck and they tell you your options are to accept everything being done to you so that you have a chance of surviving via mutual aid and community resources, or simply give up.
So you go back to the larger community to have a chance of surviving, because the average lifespan for Black transfemmes is mid-30s and youâd like to beat the average at least, and you prepare to suffer again, to survive.
Last year, two of the best known/loved cis Black women who were disability advocates on Twitter died due to lack of mutual aid. One couldnât raise funds for her chemo, the other couldnât raise funds for a rideshare to the hospital the day she died and knew that an ambulance would ruin her financially.
I look at them, two well known and loved disabled Black women who put so much effort into helping their community only to die due to lack of help, and then I look at the other disabled Black trans folks I know surviving off of mutual aid and I wonder how much longer itâll be until itâs them, because they damn sure donât got the same amount of people that even know who they are.
(If you BIPOC/trans/disabled and trying to cf, Iâll reblog it if you message it to me or put it as a reblog on this. Iâll also try to go through and reblog everything on here every so often)
wheelchair accessibility I never see talked about
table height
aisle width
center vs side poles for tables
spots to sit in rooms/adutioriums/etc. that aren't blocking aisles
sink height and sink cabinets
toilet height
cash register height
the height of just so much, I could go on
benches/trash cans/scooters/bikes & bike racks/restaurant patios/etc. taking up sidewalk space
light poles placed in the center of the sidewalk
tilted sidewalks
lack of cross walks (jaywalking is not an option for me!)
overgrown brush over sidewalks
10 things i think (mostly) abled people take for granted:
1. walking painlessly
2. walking without being afraid to fall
3. being able to stay awake all day
4. feeling rested after sleeping
5. being able to eat without pain
6. not worrying about choking on any food and drinks
7. having energy to do fun things
8. not having a million medical appointments a month
9. using the bathroom painlessly
10. being able to go to social gatherings
There's increasing talk of Trump possibly having dementia so this is your reminder that making fun of disabilities is still violent and ableist even if the disabled person a bad person. People with dementia and other forms of CI are not stupid, intentionally violent, or more bigoted than the rest of the population. There is also nothing funny or mock-worthy about incontinence, slurred speech, confusion, or word salad. You can have discussions about his ability to lead and declining health without throwing an exceptionally vulnerable disabled population under the bus.
Can we talk about how disabled people are literally left to die in emergency situations? Because I feel like we donât talk about this enough.
Today my apartment building (I live in on-campus living) had a fire drill. I live on the ninth floor. The last few times weâve had one Iâve been able to drag myself downstairs with the help of my roommates and Iâve had several flareups because of this.
When the alarm went off, I decided to see if I could get an exception to use the elevator instead, even though we technically arenât supposed to use them. Iâm already in a flareup and I would not have been able to make it downstairs without assistance, and I did not want to make my symptoms even worse.
There was a security guard in my floorâs common area. I asked him if I could use the elevators and he said no. I asked what I should do, gesturing to my cane so he knew I wasnât going to be able to go down the stairs. He told me to sit down and wait for his supervisor.
He was on the phone with his supervisor for several minutes, and eventually the supervisor came upstairs. He asked if I was the one who needed medical help and I said yes. He then asked if this was a âtemporary or long-term thing.â I told him it was long-term.
Then he says, âwell, you canât use the elevators. If thereâs a fire in the elevator room, they wonât work, so we shut them down for drills.â
I asked what I was supposed to do then, and he said: âWhy are you even living here? You shouldnât be living on the ninth floor. You need to talk to ODS (Office of Disability Services) and move to a different apartment.â
The original security guard chimed in with, âyou should just go back to your room and wait it out. And then both of them just left.
They didnât even try to offer assistance or come up with a solution. No asking what my capabilities were, no offering to help me down the stairs, no trying to figure out a way for me to safely exit the building. Nothing. They just turned it around on me, blamed me for daring to not live on the ground floor.
If worse came to worst and there WAS a real fire, I would find a way to get out. Iâd take the flareup over dying. But what if I couldnât walk? What if I was in a wheelchair, or could only walk a few steps? What then? And what if this was the only apartment I could afford? What if this was the only room that was available? What if ODS was not accessible to me? What if for one reason or another I couldnât get housing accommodations?
Would I just be left to die because the people whose job it is to help people decided they couldnât be bothered to at least TRY to come up with a solution?
The worst part is, during one of the previous drills, security told us: âIf youâre disabled and need help exiting the building, please let us know, and weâll come up with a plan.â And yet when I did that, the best they could offer me was essentially telling me âyouâd better hope thereâs not a real fire, because weâre not going to help you if there is.â
Unbelievable. And I know Iâm far from the only person who has experienced this. This was literally a discussion point in my Disability Studies class a few weeks agoâ how disabled people are often left behind in emergencies, how they are blamed for not being able to get out, for having the audacity to exist in a world that is inaccessible. Itâs absolutely horrific that these people would sooner let us die a horrific, traumatic death than be bothered to come up with a way to help or offer any kind of assistance.
"everyone should care about accessibility because most people will become disabled at some point in their life" is a logical argument and I understand its popularity
however, everyone should care about accessibility because disabled people are fellow human beings living in the same society as you who deserve the same rights as you
thank you good night