I have a case of the incurable sleepies
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@nimandmossy
I have a case of the incurable sleepies
My least favorite part of disability is where the line between can't and don't want to blur. Like yes, I am physically able to move and get things done, but I feel just bad enough to not want to. It feels like the little energy I have left is something to cling onto and I just stare at my responsibilities and want to cry. Because I know I can do them, but my body already feels so heavy that I can feel the pain that I'll be in once I'm done. It's not laziness, it's as close to self preservation I can get.
The worst part about flare ups is that they are caused by all of my favourite things
Do you ever just want to dress up and go out (not necessarily to a party, just out) and have a life but then you remember "oh, right, the horrors" the horrors referring to your chronic illness and/or mental illness.
I think my body is trying to sleep for til college
Trevor Noah interviewing Judith “Badass” Heumann
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I’m glad so many people have discovered Judith “Judy” Heumann through this silly little gif set. I am sorry to say she has died at the age of 75. She was known as the mother of disability rights. In 1970 she sued the Board of Education to become a licensed teacher and she won. In 1977 she was one of the organizers of the 504 Sit-in, a 24 day protest for disability rights. You can learn more about her story from her book Being Heumann, the picture book Fighting for YES! or the documentary Crip Camp.
Judy Heumann believed in the inherent value of each disabled individual and would never back down on what she thought was right. Her friends and fellow activists remember her as a strong leader.
Judy Heumann
December 18, 1947 - March 4, 2023
May her memory be for a blessing.
I did a paper on her for one of my college classes! She’s so cool! Here’s some facts!
She’s Jewish and born to immigrant german parents who migrated in the 1930s
She has been in a wheelchair for nearly her entire life due to contacting polio at a very young age.
Due to her wheelchair, she was actually barred from most schooling including kindergarten as her wheelchair was deemed as a “risk.” because it could be “in the way” if there was a fire.
She was the first wheelchair teacher in New York after suing when she was once again denied her license for the same reasons she was denied kindergarten.
She worked as the Assistant Secretary of Education for OSERS for 8 years
Her parents, especially her mother, were big parts in her becoming an activist as her mother Ilse was a community organizer and fought hard to get her daughter as much education as she could, it was her activism that helped her daughter and other disabled children be allowed to enroll in High School instead of being separated into a specific disabled school. (We don’t have time to go into all that but tldr; those schools sucked and its a genuine accomplishment disabled kids no longer have to learn in like, cramped attics that didn’t teach anything)
She was a founder of the organization Disabled in Action! She didn’t just organize sit-ins, she helped RUN the organization that was organizing them!
The president she butted heads with the most was Richard Nixxon, this isn’t that important I just know everyone loves when he gets dunked on
She helped CREATE THE INDIVIDUALS WITH DISABILITIES EDUCATION ACT!!! I cannot express to you just how important that is, if you have basically any kind of disability, this act is a big reason you were able to go to a public school instead of being shoved into a warehouse.
The Black Panthers helped with the 504 sit-in! They helped bring food because the organization also included black disabled people, and one of the members of both, Brad Lomax, asked for help!
She had a podcast! You can go listen to that podcast right now!
Honestly just check out her website in general
She also founded the Berkeley Center for Independent Living!!
Honestly I could keep going on but she’s genuinely one of my heroes and was an amazing person who it is not an underestimate to say changed the world for the better.
May her memory be a blessing!!! May the disabled community always remember how much of it was built on the work and back of a disabled Jewish woman!!!
Saw this twitter post and instantly started looking for pictures of Stratt to use it with
Recommendations for getting out of the house when you’re chronically ill?
I miss the climbing gym but that’s a no go right now
I can’t keep reading alone by myself forever
Having a chronic illness means that no matter how badly you need or want a break, you can’t ever seem to catch one. It stays with you everywhere you go, and demands endless accommodations. It's so debilitating and exhausting and so many of us would do anything just for a minute, hour, or day of pain-free rest/peace.
happy nonbinary peoples day 💟
Disability pride flag made from cropped NASA APOD images! 🌑 ❤ 💛 ☁️ 💙 💚 🌑
when does life get worth it again?
calling the cops on someone you believe is having a psychotic episode to “help them” will never be helpful ever
The FBI cut the phone lines during the 1977 disability rights sit-in. Then they turned off the hot water.
They locked the doors from the outside. One hundred and fifty people were trapped on the fourth floor. Half of them used wheelchairs. The government assumed they would leave.
Kitty Cone was thirty-three. She had muscular dystrophy. Her muscles were failing, but her logistics were flawless. She knew how to organize people.
The federal government had promised to sign regulations protecting disabled Americans from discrimination. The policy was known as Section 504. They printed the promise on paper. Then they stalled. Without a signature, it was just typography.
The protesters entered the regional Health, Education, and Welfare building in San Francisco on a Tuesday morning. They took the elevators to the director's office. They brought sleeping bags and catheters. They informed the staff they were not leaving until the law was signed.
By sunset, the police surrounded the exits. Kitty sat near the windows. She organized the floor plan. She assigned committees for security and sanitation. She kept her medication in a small cooler.
According to federal memorandums released decades later, the strategy to end the occupation relied on medical attrition. The building was not equipped for long-term habitation. The FBI calculated that a population requiring ventilators, specialized diets, and daily medical aides would voluntarily evacuate if the environment became sufficiently hostile. They instituted a blockade.
The blockade went into effect immediately. No food deliveries allowed. No medical supplies permitted through the lobby. Guards stood at the main doors checking identification.
Kitty's muscles deteriorated faster under the physical strain. She couldn't walk. When the phone lines went dead, the fourth floor lost contact with the press. The government waited for the quiet.
Kitty dropped to the floor. She realized the barricades were designed for standing adults. The police had blocked the hallways at waist height. They hadn't blocked the linoleum.
The floors were covered in cigarette ash and spilled coffee. She dragged her body through it. She crawled under the barricades to reach the restricted elevator shafts and unguarded offices.
She carried notes in her pockets. She found a single working payphone the FBI missed. She called the local news desks. She called the mayor's office.
She crawled back. When her arms failed, someone pulled her by her ankles. The Black Panthers heard the news reports. They crossed the police lines with hot meals. The FBI could not stop them without a riot.
They shut off the elevators, so she crawled.
The occupation lasted twenty-five days. It remains the longest non-violent occupation of a federal building in American history. On April 28, the Secretary of HEW signed the regulations without a single alteration.
The protesters left the building the next morning. They went back to their apartments. The Rehabilitation Act regulations laid the groundwork for every accessibility law that followed. The HEW building still stands on United Nations Plaza. The elevators run on a schedule. The doors are heavy glass.
Kitty Cone: the woman who crawled under the barricades.
Source: Kitty Cone's oral history, Bancroft Library.
Verified via: National Museum of American History.
(Some details summarized for brevity.)
yes and,
Brad Lomax who was disabled and a Black Panther was key to the Black Panthers involvement. They did more than provide meals and didn’t just hear it from the news. They were actively involved.
Explore Brad Lomax’s under-reported contributions to the early disability justice movement.
ok I know everyone’s considered Ryland grace wearing an “I put the ace in space” t shirt but. have we considered the infinitely funnier option of putting this shirt on eva stratt
I had to draw this
me, who is chroncially ill with multiple don’tfeelgood Conditions: I just don’t feel good and I don’t know why
There is a particular kind of invisibility that happens when you are profoundly sick and your world gets smaller than most people can imagine. When there are things you genuinely cannot do for yourself, yet you also don’t have the capacity to explain your situation, coordinate support, respond to messages, maintain friendships, or make your suffering legible enough for other people to understand.