wheeeee rollator(walker)go

POTS, IBS, fibromyalgia, HSD, major chronic fatigue (diagnosis pending) he/they

[grace-is-tired]

I think the most common casual ableism that I experience is people not slowing down when I’m walking with them. These people know I’m disabled, sometimes I’m actively telling them about how it’s difficult for me to walk, and yet they still walk two to three feet ahead and look back at me in annoyance that I’m walking slow. What’s the point of walking faster until you’re a few feet ahead and then slowing down and then speeding up again? Just walk at my speed it’s not that hard!

[bebsi-cola]

disabled people are often in permacrisis

[bebsi-cola]

there's never enough money each month. there's always an unexpected illness. new symptoms pop up or old symptoms flare up. meds have to be managed always and refilled constantly and any refill has the opportunity to go wrong. any regular care has the opportunity to go wrong. any mistake can send your health spiralling. it's always "i just need to get through this bad patch" but as soon as one ends another begins. another crisis begins in the middle of the last crisis. managing one thing leaves another thing to be neglected until that becomes a major issue and has to be managed asap and the cycle starts anew over and over and over

[chingaderita]

I got told by someone who manages a mutual aid resource that I was getting suspended for asking constantly for help.

I know she meant well, she wants this resource to flourish and help many people in the years to come.

But I still got suspended for 12 weeks.

The reason was donors fatigue. Like genuinely, look it up, it's apparently a real thing.

People got tired of seeing me weekly ask for help to afford groceries, medication, my healthcare monthly renewal, rent, house repairs to deal with the humidity, black mold, rust, falling roof, falling ceiling, falling wall or the water leak in the lightbulb and many other things.

The thing is I am chronically ill, I have no degree or higher education than my high school certificate, my partner is the same except for some english certificates that he has an advanced language.

We take care of our kids, the cats we've rescued from the streets and his parents and sister after they lost everything in a house fire.

We are always struggling to stay afloat paying the bills, keeping a roof on our heads and feeding our family while chronically ill, with chronic pain, dare I say some of us are disabled.

And people got tired of us. I got told because I keep changing what our main need/goal is I look like a scammer.

And ok, I get it, it must be really hard to see people struggle all the time to stay alive when all you want is to share a funny meme, cat pics, fanart and fan fiction.

But what about begging fatigue? What about poor fatigue?

Having to shake our can and beg for a kofi every day is exhausting. And no amount seems to fix our struggles and get us out of the red because by the time we get some help our bills are already overdue, we've got extra charges, we no longer need only the groceries and regular medication, now we need to run to the hospital or we already did and all that stacks up.

And every day, every week, month after month, year after year it just gets worse.

Chronic illness and disability are disabling in more than the physical way, we are shunned from every place for being considered a burden.

Show more compassion, you have no idea how hard it is.

[angelocaeris]

its actually super homophobic and transphobic that im still disabled during pride month wtf

[fibro-memes]

[consider-your-potatoes-mashed]

Fuck heat intolerance and exercise intolerance. I cant fucking sit without sweating my ass off and having a high heart rate, and when I just walk i end up dripping and with an extremely high heart rate. The fuck is up with that shit.

[chronic-chronic]

They're sending my blood to Finland,( as i live there)

So i have like 20 things to look at in a blood test. They're gonna draw everything out of me tomorrow and also an ekg

[macgyvermedical]

PSA:

Acetaminophen/paracetamol has a hard stop upper dose limit, above which it becomes extremely toxic.

That limit is 4g (8 “extra strength” (500mg) tablets) in 24 hours (about 2 tablets every 6 hours).

A single dose of 22 extra strength tablets can kill you.

Taking 12 or more tablets per day for more than a week can also kill you (this is about 3 tablets every 6 hours).

Symptoms of overdose take up to 24 hours to manifest, and are fairly difficult to distinguish from other problems. They include abdominal pain (especially right upper quadrant), nausea, malaise, and confusion.

The antidote (n-acetylcystine) must be given within 8hours of ingestion in order to be useful.

After 10 hours the only thing that will work is a liver transplant.

You might think “why would I ever accidentally take so much?”

Well, acetaminophen is in almost everything in the cold/flu/pain aisle. Migraine combos like Excedrin, cold and flu combos like NyQuil, basically anything that says “non-aspirin pain relief”, and anything that’s branded as a fever reducer. It’s all probably acetaminophen/paracetamol.

So the goal of this post is to get you to read the labels on your medications. Because taking taking Tylenol and NyQuil together for a week (like you might if you had the flu) could kill you.

[fleetingruin]

Please don't forget this shit, after it happened to a family member, he died 8 years later because of the continuing health complications even though he survived the initial overdose

[cakeisnotpie]

I didn't know this for years, and I took so many pills, sometimes 4 at one go, every four hours, like 16 a day, because of endometriosis and migraines. It took a migraine specialist to explain rebound headaches and overdoses when I was in my 40s. Then I went cold turkey on all OTC drugs to get off the cycle. Please, please, if a couple tylenol aren't working for you, talk to your doctor or find one who will listen to you if you can.

[transcyberism]

and OP mentioned both names, but I'm highlighting it again: when you travel internationally, this compound has different names. in the US it is called acetaminophen, while in Europe and elsewhere it is called paracetamol. Pharmacists often use the abbreviation "APAP" which is short for its IUPAC name, N-acetyl-p-aminophenol. They are the same compound. If a product says "do not take with products containing paracetamol," check the labels of other products not just for "paracetamol" but also for "acetaminophen."

[poppy5991]

Me, a chronic pain sufferer when pain: Unfortunate but I will prevail

Me, a chronic pain sufferer when fatigue:

[fadedlovemp3]

rb to relieve the back pain of the person u reblogged this from

[omtai]

Normal groceries like milk or bread or whatever running out is whatever. Just anotha day. But when stuff like salt or cooking oil or rice runs out it feels like You’re supposed to be here for me and you’re leaving. You’re just like everyone else

[zylahbee]

many disabled people are experiencing multiple debilitating symptoms at once, every day.

this seems to be a major part of my life that is incredibly difficult for abled people to grasp.

they cling onto one symptom, and create this imaginary image of my health that said symptom is all i deal with, and if i am not experiencing that symptom then i am completely fine!!!

an entirely hilarious phenomenon when i literally have multiple illnesses. so even if each illness came with one symptom i would still have multiple?? 😭

i seriously don’t understand why almost every abled person i encounter thinks like this.

[thy-greeting-is-a-neigh]

it's mind boggling, just like if you have a cold u have several symptoms??? but me having several is unimaginable??😭

[zylahbee]

YES a cold is such a good example ty!!!!

[thy-greeting-is-a-neigh]

it's the example I use when I encounter this. It has worked most of the time's actually!!

[im-lost-in-ikea]

I go online 'mobility aids are great tools' the people chant in unison

I go to physical therapy. A demonic light transcends. Everyone stops to stare at me, eyes glowing. 'don't use a mobility aid' they shout in unison. I walk out with my aid.

[anxious-and-in-pain]

So annoying that it hurts more to hold a pen the right way than the way where my joints bend backwards

[depressedcryptographer]

“Just sleep more when you’re tired!” If I slept every time I was tired you’d think I was in a coma.

[dikdikpronouncedxylophone]

The most terrifying part of having memory issues is when you can feel something from 5 seconds ago be thrown out the window and there's an empty hole where it once was. You remember that you forgot something.

[syn4k]

[4rk-in-the-road]

I think the reason a lot of leftists struggle with disability justice is that they haven't moved past the concept that discrimination isn't bad because it's objectively "wrong." yes, sexists are objectively wrong when they try to claim women are dumber than men. yes, antisemites are objectively wrong that jewish people are inherently greedy and run the state. yes, racists are wrong when they try to claim that white people are the superior race. and so on.

but then with disabled people, there are a lot of objective truths to the discrimination we face. people with IDs/LDs do fall behind and struggle with certain concepts. physically disabled people are often weaker and less capable of performing demanding tasks than able bodied people. many of us with mental illnesses are more reckless and less responsible. a lot of us are dependent on others and do not contribute much "worth".

and guess what? disabled people still deserve a place in the world. disabled people still deserve the supports they need. because they are people, and that should be enough to support them and believe they deserve a place at the table.

if your only rebuttal against discrimination is its objective inaccuracies, you are meeting bigots where they are at. you are validating the very concept that if and when people are truly incapable of being equal to the majority, that means they are worth less. this causes some leftists to then try to deny the objective realities of disabled people and/or become ableist themselves.

your rallying behind marginalized groups should start and end with the fact that people are completely worthy of life and equity, because they are fellow human beings and that should, frankly, be enough.

[elektra-pop]

Stop telling disabled people that you'd kill yourself if you were in our shoes. It's not the compliment you think it is. You might as well be saying "I'm surprised you haven't killed yourself yet. Why are you alive?"

It's a fucking disgusting thing to say.