tired...

annie 18 she/her a chronically ill mess tbh (chronic lyme disease, me/cfs, pots, mcas, small fiber neuropathy, chronic pain)

[youngchronicpain]

You do not deserve the pain that you are in. I am sorry that you are hurting. I am hurting too. I wish things were different. But I am glad that we are not alone in this.

[spooniestrong]

[akindplace]

Don’t belittle your own pain. Don’t make your victories to sound like underachievement. Don’t make yourself small so others can feel better about themselves. Don’t be ashamed to occupy space, to ask for help, to take credit for what you do.

[thebibliosphere]

Good morning! I'm having one of those limited energy days where going for a shower is probably going to wipe all my spoons out.

So this is your gentle reminder: if you are also struggling today, self-care is vital and if all you do today is the bare minimum to make it through, you've done enough and I'm proud of you. You don't need to do more to be worthy of rest.

[traumasurvivors]

Don’t forget to stop and give yourself credit for every single thing you’ve survived that you thought you couldn’t. 

[heyatleastitsnotcancer]

There are great posts out there to remind you to reach out to your friends who struggle with mental illness. So here's my reminder to reach out to your chronically ill and disabled friends. It can be incredibly isolating and depressing to be ill and often it feels like people don't want to hear about your struggles. So please remember to reach out to your disabled and chronically ill friends, especially during the pandemic when we're further isolated. It can make a difference.

[fleshcrypt]

chronic pain is so bizarre? like why does my body choose to hate me permanently

[lildarkchapel]

having a chronic illness be like the pain hitting you but instead of thinking „ouch“ your first thought is „alrighty, do we know this pain? where did it come from? have we felt that before or is it a new sensation?“

[catmat]

I feel that life with a chronic illness is basically just trying to get back to our baseline. We experience setbacks, take weeks to recover, and we are finally at our baseline for a few days only to experience a situation that causes another health decline. Then the cycle restarts again.

People don't understand that it takes so much energy that is already deprived, to crawl your way back to your baseline so that you can be semi-fuctional only to be hit with another setback.

So when people say that we should try harder at getting better, it's really upsetting because we are trying our best just to function. And it is so tiring.

[transaurus]

me: I'm feeling super motivated to do things!!

my disabled body: no❤️

[suggestionsofkindness]

I don’t know who needs to hear this, but you can be strong, and still exhausted by having to be. It does not take away your strenght. It doesn’t mean you are going under, it means you are tired and need rest and support. You are still strong, but you are also human, and strenght can be exhausting, because fighting is exhausting. It’s okay to be exhausted. Your strengh is not gone. Let yourself feel exhausted and whatever else you may be feeling, and I hope you one day don’t need to be this strong. I hope you rest. I hope things get better sooner than you imagine. I hope you thrive. 🌸

[another-suffering-artist]

SPOONIE THINGS NO ONE TALKS ABOUT PART 17

Sleep is *awful*.

No matter your illness type, sleep is always an issue, whether that be excessive sleeping or none at all, and no matter which issue you have, you're always tired anyway.

People who over sleep feel like they lose so much of their lives because they're always falling asleep any chance they get. They have to stop for naps every spare moment and can't function on just 8 hours of sleep at night.

I've never experienced the former, I haven't been able to sleep well since I was a young child.

No matter if you had the most horrible exhausting day and all day all you can think about is curling up to go to sleep, you can't. You're either restless, half-awake, or just wide awake for hours, feeling the night slowly drag on. And good luck even trying to nap, that's a whole other nightmare.

[stars-and-branches]

Nerve pain is like. Yes I can now see colors only shrimp can see

[cryptcatz]

i cannot believe it is 2021 and a bizarre portion of abled ppl STILL seem to believe that all wheelchair users are paralyzed and if they have any use of their legs they are OBVIOUSLY faking

the concept of part-time wheelchair users isn’t that hard to understand what is up with y’all

[fickes]

with great pain comes the great inability to form a coherent sentence

[ID: a 4-page comic in illuminated manuscript style of a person standing outside. /1: They look to the distance and say: "What is that dolorous cloud: that dreadful fright I see now on the dark horizon?" /2: They turn, upset, and say: "Alas! It is the brain fog approaching!" A purple cloud enters the panel. /3: They hold up their hands against the approaching cloud, saying: "A curse upon that fog that steals my eloquence. I...hate...it" /4: The cloud surrounds them and they say: "cloud"..."bad" /ID]

[girlbugboy]

if ur disabled or chronically ill u know that the tv trope of “doctors will stop at nothing to learn more about a patient’s extremely rare symptoms and find answers” is a crock of shit. all doctors know is gaslight disabled people, ignore ur pain, tell u to exercise, and do the same test 10 times

[talkethtothehandeth-deactivated]