Little and broken, but still good

Sarah, 23, Music Student. Hypermobility Spectrum Disorder, PoTS, Functional Neurological Disorder, BPD https://www.youtube.com/channel/UCQ9MkmI6M9BU2NDNCZtqu4g

[theconcealedweapon]

Disabled Person: I can’t do this.

Ableist: Yes you can. Quit using your disability as an excuse. The only disability in life is a bad attitude.

Disabled Person: I can do this.

Ableist: Then you’re not really disabled. You’re just faking, which is offensive to actual disabled people.

[chronicbattle-blog]

Don't park on the hashed lines, people need those!

Don't park in disabled spots if you're not disabled!

Don't be a wanker!

[analogueswords]

fun little eds things

-I stood up too fast so I’ll see you in a second

-hang on my hip locked up again, I need to *loud popping sound* ah, fixed

-I slept wrong and now my knee is bruised

-look, I know half of my foot is purple, and no I can’t feel it, but I promise this happens all the time. no, that was supposed to reassure you!

-hey can you pull on my leg real quick

-no I have not “tried yoga” because I don’t feel like dislocating any limbs, thanks

[chronicbattle-blog]

Do I have EDS? Or HSD?

Not even my doctors know...

[wizardnaturalist]

When you get a random spike of intense pain that fades away after a few seconds

[humor-is-coping]

[ruffboi-mags]

[mszamil-deactivated20220204]

When someone asks you where you see yourself in 5 years and you’re like buddy .. im just trying to make it to Friday

[averagefairy]

must have been easier to be alive before news traveled so fast and you were only ever aware of a handful of tragedies instead of thousands and thousands of them being delivered to you on a daily basis. why is there even a question of why our generation is so depressed and anxious like I’ll tell you why?? everything i read breaks my heart and my capacity to empathize and be outraged is absolutely maxed out. yeah i’m sad bitch! we’re all sad! there’s no relief!

[fibrofox]

Me: maybe… maybe I should ask for help instead of hurting myself

Also me: Absolutely Not

[sporks-and-spoons]

I wanna take a quick 25 year nap. Ya know just a lil snooze to perk me up

[chasing-asterion]

Chronic Pain Masterlist

[A sleeping fox cub, “Doing my best includes self care and rest,” written over it.]

Hey everyone, my name’s Pete. I’m 26, transgender (they/them), queer, and I have fibromyalgia.

Fibromyalgia is, in short, a pain disease. It’s characterised primarily by widespread pain through the body. There’s no cure. The cause is unknown. It’s for life. It can only be managed.

I’ve had it about ten years or so, beginning early to mid puberty, and my case is pretty severe - unable to work, on mobility assistance devices, and on hard medication to function. Prepping, for me, is a way of maintaining independence and quality of life. 

I’m also non-neurotypical, autistic and mentally ill, and prepping has formed into a Special Interest and has greatly helped my mental health. (There’s also visual impairment and skeletal issues.)

Since I started this blog, I’ve been posting my health help, and since I’ve gotten such positive responses, I thought a master post might be might be easier to reach more people and give them resources. While I prep for fibro, this stuff is helpful for most chronic pain/illness conditions. I’ll be posting more in the future, but this is what’s been done so far.

I didn’t know any of this stuff when I started out, it’s been learned through trial and error. Please reblog and share to help chronically ill people and the people around them. 

Here is the tag - “pete’s health help” - where all these posts can be found on my blog.

If you have any questions, my inbox is open xx

Please check out The Mighty, free and customisable to your illness, like Facebook for spoonies, including helpful articles and community.

Terms: 

Flare wear - my phrase for comfort clothing chosen based on symptoms to help you survive a flare

Pain-drain - how pain expends energy (credit to @creativeronica) 

Painergy - restless muscles and stretching due to pain (credit to @sailor–spoon)

Painsomnia - too sore to sleep

Spoonie - a chronically ill person, comes from Spoon Theory

Information

Breathing complications

Changing medication

Different types of flares

Fatigue cycle

Fibro and fatigue

Medication and dehydration

Painkillers with a pain condition

Products 

Drug free pain relief

Elastic shoelaces

Flare wear (including links) 

Hygiene in flares

Products for chronic pain (and links to buy them)

Products for under $20 (links provided)

What helps besides medication

Prepping

Bedside box

Bedroom checklist

Emergency bags - home and hospital

Flaring on a couch

Further information

General advice 1

General advice 2

General advice 3

General advice 4

Quick first aid kit

Setting up a house 1

Setting up a house 2

Setting up a house 3

Setting up a room for flares

Travel first aid kit

Food

If you’re a fall risk/can’t access food

Makeshift kitchen

Medium level spoons

Self Care

Anxiety

Art and kind words

A bath specifically for aching muscles

Emotional therapy that helps with chronic pain

Fairy lights

Gentle reminders

Just say ‘Apricot’ - a code for illness among friends

Lack of planning (why you need to cut yourself a break)

Studying with a chronic illness

“Ugly” symptoms 

Why “push through the pain” is bull

Answered Asks

Cleaning

How to get a doctor to listen to you

Researching for diagnosis

Products for staying warm in winter

Trembling and fibro

What does your fibro timeline look like? 

[enbyriot]

when ur the only chronically ill person in ur friend group

[dammajamma]

• i don’t know shit

• i don’t get stuff

• and i don’t understand things

[autistichirohamada]

You’re so fucking ableist and gross if you think disabled people living off benefits get “paid to do nothing”.

[purpleweredragon]

[crashorpie]

[image: the “is this a pigeon?” meme. anime glasses man, labeled “abled people”, gestures to a butterfly, labeled “disabled adult”, and asks “Is this a child?”]

[asexualsafetag]

Reblog if you support people of all genders and sexualities 🌈🏳️‍🌈❤️💛💚💙💜🏳️‍🌈🌈

[positiveautistic-deactivated202]

Remember the time you thought you never could survive?

You did, and you can do it again.