forgot my email lol
it’s been a while, sorry for going completely mia i forgot my email and a lot of other stuff has happened, so for a quick catch-up:
bad things - did many tests which always sucked because i always had to drink that nasty lemon-lime dye stuff which always made me so nauseous i could never finish it all
- got a colonoscopy with dilation a few weeks ago that seemed to help for the first few days but now i’m back to the daily pain/bubbling/occasional nausea
- tried to establish a medical home and was told only after it was already established that my referrals to my gastroenterologist had been terminated and would need to be reinstated, except now i don’t have enough time to get those referrals reinstated before my next $21,000 remicade infusion so i can get it covered by insurance, because i (and nobody else either) can pay that much out of pocket. my infusion is on the 19th of july, the earliest appointment they have available at my new medical home is the 22nd of july, except by the time i actually get the correct paperwork filled out so i can set up an appointment, they’ll probably be pushed out another couple of weeks. i just started crying when i finished calling everybody because if i’m still sick right now after the colonoscopy and still reaping the benefits of my last infusion, how sick am i going to get when i can’t get my next infusion on time? will it be pushed out so far that my body will develop the antibodies against remicade and we’ll have to figure out a new treatment plan, all because some rep at my health insurance didn’t tell me the referrals would be terminated until after i unknowingly terminated them? jesus fucking christ. i don’t know what’s going to happen and i am honestly scared. what the fuck is american healthcare
in another note, some good things that have happened - i’m going to college next year! i took a gap year this year after graduating high school to work and get as well as i could and i am so ready for college you wouldn’t believe it. i got accepted into the film program into the school of my choice and i am so so excited :’) i am just really really hoping being sick won’t get in the way of anything hh
- i saw rocketman (twice in the past week, planning on going again soon) and it is safe to say that’s one of my favorite movies. i bought the soundtrack today and have been listening to it nonstop, and every time i think about it i get so so happy inside, i love every single thing about it and it also kickstarted my love for taron egerton lol. please if you haven’t seen it yet i highly reccommend it!! there are definitely quite a few things that could be triggering in it, so definitely look into that first but it delivers so well on so many levels. thank u kings
