Dyfying Dystonia

Welcome to Dyfying Dystonia, follow my Running and Triathlon journey as I dedicate my race and training seasons to raising awareness and support for Dystonia (DMRF Canada). On your marks, get set, go…The sound of the start gun echoes through the air and I am off on an incredible journey that continues to pave a path that I am grateful for everyday! 

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Tomorrow I take on my first 50k Ultra to continue to raise awareness and support for Dystonia! I have launched the Campaign Dyfying Dystonia’s High Five 🖐🏼 for $5 Campaign, you can send me a Virtual High Five to cheer me on along the way by donating $5 to @dystonia_canada by clicking on the Link in my Bio!! #ultrarunning #50k #run #awareness #neverstop #youcandoanything #dyfydystonia #dystoniastrong #bebrave #befearless #dontletfearstopyou #running #dystoniaawareness #dystoniamovesme (at Kingston, Ontario) https://www.instagram.com/p/CPMkyRJHArY/?utm_medium=tumblr

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PLEASE READ & SHARE Thank you so much to everyone who has taken the time to read my nomination and vote, I’m absolutely honoured to have made the top 10 with these other fabulous woman ❤️ Please consider voting for me for this incredible award!! Voting closes Friday February 19th 🙌🏼 Link to vote ⬇️ https://www.surveymonkey.com/r/9CCL3VR (Click done at bottom after voting) (at Kingston, Ontario) https://www.instagram.com/p/CLPdtGAhrb1/?igshid=vvxdu4pswhc1

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I’m truly honoured to have been nominated and make the Top 10 for my home town ‘2020 Survivor’ award!! Please take a moment to consider voting for me to be awarded Kingston’s Inspirational Woman of the year “2020 Survivor” Award (My story/ nomination about living with Dystonia is below) Thank you so much ❤️ Link is in my Bio and below Link to vote for me ⬇️ https://www.surveymonkey.com/r/9CCL3VR #runner #triathlontraining #triathlete #awareness #award #nomination #top10 #vote #ironman #dystoniaawareness #warrior #ygk #fitnessjourney #dyfy #run (at Kingston, Ontario) https://www.instagram.com/p/CLMwAxUB2xC/?igshid=1aggl9sf55n2x

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Let’s talk Dystonia for a moment although I’m often seen teaching fitness classes, running or training for Triathlons this is the other side. For the last week or so I’ve been dealing with muscle pain/ tightness, ear aches and headaches, stemming from muscle contractions and tightness in my Trapezius and I believe my SCM. If you’ve never heard of Dystonia it’s a Neurological condition that’s causes involuntary muscle contractions and twitches and affects approximately 50,000 Canadians alone and unfortunately there is no cure 👎🏼 .... BUT I’m on a mission to change that so stay tuned for my next big challenge to continue to show Dystonia that it won’t stop me! “I’m through accepting limits ’Cuz someone says they’re so. Some things I cannot change. But till I try, I’ll never know!” Elphaba #dystoniaawareness #dystoniastrong #findacure #staystrong #nextbigchallenge #staytuned #pushthelimits @dystoniamrf @dystonia_canada @chronicallybadassclub (at Kingston, Ontario) https://www.instagram.com/p/CLA55KEhOds/?igshid=icco21rattgj

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Well @mercer654 and I have officially completed the Cabot Trail with a mixture of Running, Snowshoeing and Cycling. We must now bid farewell to Nova Scotia and head on over to Iceland where we will specifically only Cycle Ring Road, 1,332km goal 42 days 🙌🏼🚲 @the_conqueror_challenges #iceland #ringroad #cabottrailcomplete #run #cycle #nuunambasador2021 #letsgo #virtualevents (at Kingston, Ontario) https://www.instagram.com/p/CKg_KrNhuw7/?igshid=1tkp29ml899fz

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Let the hair be a good indication of the craziness of that Apple Fitness Plus Workout 💪🏼 #apple #fitness #plus #wildjustlikethehair #fierce #coreworkout #hiitworkout #stretch #dystoniawarrior #dystoniastrong @applefitnessplus (at Kingston, Ontario) https://www.instagram.com/p/CJBwr3TB7Jy/?igshid=d096hrh4v6as

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Thank you so much @city.of.kingston @mayorpaterson for lighting up blue to support Dystonia Awareness Month @dystonia_canada (at Kingston, Ontario) https://www.instagram.com/p/CFErIrVhzIV/?igshid=1o6ahdkepkj76

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Day 7 of ‘The Dystonia 600’ today I was joined by some awesome friends for 10k, even Squirt ran with us!! 70km completed so far in the past 7 days with 230km to go!! Be sure to follow @huafrid_billimoria and I as we continue to Dyfy Dystonia throughout the rest of September 💪🏼 #run #10k #friends #dystonia #awareness #september #dystoniaworld #dystoniamovesme #dystoniawarrior #dystoniaawarenessmonth #dystonialife #dystoniastrong #bluefordystonia @dystoniauk @dystonia_canada @dystoniaeurope @dystoniafighters @chronicallybadassclub @dystoniamrf (at Kingston, Ontario) https://www.instagram.com/p/CE1tyAFBQtu/?igshid=jtef4vfuttxe

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Yesterday was Day 6 of ‘The Dystonia 600’ and I was again joined by my incredible Mom @skidson2 for 10k! Join @huafrid_billimoria throughout the rest of September as we continue to take on 10k a day!! #run #dystonia #awareness #10kaday #september #dystoniaawareness #dystoniaworld #dystoniastrong #thedystonia600 #dystoniawarrior💙 @huafrid_billimoria @dystonia_canada @dystoniamrf @dystoniaeurope @dystoniafighters @dystoniauk (at Kingston, Ontario) https://www.instagram.com/p/CE1spXcBAyl/?igshid=1r3bd1tu4mbj6

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Day 5 of ‘The Dystonia 600’ today for my 10k I was joined by my amazing Mom @skidson2 and Moo 🐶, well Moo brought me through the home stretch. You can support @huafrid_billimoria and I all month long through following us, commenting or donating here https://dystoniacanada.org/casey #dystonia #dystoniaawareness #10k #followus #dystoniawarriors #dystoniastrong #run #bluefordystonia #september #dystoniaworld @dystonia_canada @dystoniaeurope @dystoniamrf @dystoniafighters @chronicallybadassclub @womensrunningmagazine @dystoniauk (at Kingston, Ontario) https://www.instagram.com/p/CExW_rSBhzW/?igshid=pnbsf6208lu5

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Day 4 of #thedystonia600 10km a day for the whole month of September for Dystonia Awareness and Support!! Today’s motto ‘Doughnut🍩 ever give up’ Never heard of Dystonia comment below ‘Tell me more!’ to find out what Dystonia is. You can support @huafrid_billimoria and I by following us, commenting or donating (link below to donate) #dystoniastrong #dystonia #awareness #strongertogether #run #10km #dontgiveup #doughnuts🍩 (at Kingston, Ontario) https://www.instagram.com/p/CEugcL-B8yG/?igshid=ryetxy2nlk7t

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Day 3 of The Dystonia 600!! Legs are a little sore so today will be a mixture of running and walking, but hey in the end 10km is 10km!! Doesn’t matter HOW you get there what matters is that you get there!!! #thedystonia600 #run #10km #dystoniastrong #pushthrough #dystoniaawareness @dystonia_canada @dystoniaeurope @dystoniamrf @chronicallybadassclub @huafrid_billimoria (at Kingston, Ontario) https://www.instagram.com/p/CErx9iYBD56/?igshid=7tae8164kz0h

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Wow what a day!! First 10km complete for #Thedystonia600, plus 20km Cycle and a HIIT class, someone is going to sleep very well tonight 😴 So off to bed I go in preparation of tomorrow’s 10km run for ‘The Dystonia 600’ #dystoniaawareness #keepmoving #dystoniamovesme #dystoniastrong #run #600km #september @huafrid_billimoria @dystonia_canada @dystoniamrf @chronicallybadassclub (at Kingston, Ontario) https://www.instagram.com/p/CEnjJo4BWgf/?igshid=123sb2w5imv83

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What a fantastic morning filming for Dystonia with @fwimedia and one of my besties @totaltrigirl. Thank you so much @fwimedia for making the trip to Kingston to film my Dyfying Dystonia Exercise Series and thank you so much Kyla for joining me 💙 @dystonia_canada (at Lake Ontario Park) https://www.instagram.com/p/CDmiRfrBrZ8/?igshid=u8hu9njgfsxn

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Some new gear has arrived and I’m super pumped! First thank you so much to @jakroocanada your service, customer support and product quality is absolutely amazing!! This is the company that I have used for all my Triathlon race gear and I very highly recommend them! The bonus there are no minimum orders and I received my Custom order in 2 weeks!! So please check them out they also operate out of the US @jakroousa. #customgear #racegear #triathlon #run #bike #dyfythestorm #dystonia #awareness #dmrfcanada #canada #jakroocustomapparel (at Kingston, Ontario) https://www.instagram.com/p/CA_YfWDBXlu/?igshid=iy2kyxzto2l

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Chucks Run, Walk & Wheel event has officially kicked off if you missed the Opening Ceremonies it will be shared later. First thank you so much to everyone who has donated so far to my Team Dyfying Dystonia, your funds are going directly to an amazing organization Dystonia Medical Research Foundation Canada with hopes of one day finding a Cure for Dystonia. Secondly thank you to everyone at DMRF Canada and the Saundercook family (Bill Saundercook) who continue to dedicate so much time and effort into organizing this fantastic event. I’d also like to thank my incredible friends (Andrea, Melanie & Kyla) and my Fiancé Adam for joining me on my Run this morning, couldn’t have done it without you 💙 Today I dedicated 26.2km (a bit more than I had originally planned lol) to Chucks Run and Dystonia. Running was great until 17km and then Dystonia decided to spice things up a bit with foot cramping. That’s okay though because as challenging as it may ever be never forget FORWARD IS FORWARD, it doesn’t matter how you get there or when you get there it’s the fact that you had the courage to try! It’s not too late to donate (link below) as I aim for an Ironman 70.3 here in Kingston on June 28th!! https://raceroster.com/events/2020/30037/chucks-virtual-5km-run-walk-and-wheel-for-dystonia/pledge/team/14 #digdeepfordystonia #chucksrun #dystonia #awareness #support #run #walk #wheel #dyfy #nevergiveup #gothedistance #26.2km #runnersofinstagram #runner @chronicallybadassclub @dystonia_canada @jakroocanada @womenrunning @runnersworldmag @runningroom @womensrunningmagazine @inspiringwomenygk (at Kingston, Ontario) https://www.instagram.com/p/CA3JQtIh7K4/?igshid=jbkpfjnw3au8

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Absolutely perfect day for first outdoor ride of the season!! 47km on the Parkway 🚴🏽‍♀️🚴🏼‍♂️ #bike #cyclinglife #sunshine #livbike (at 1000 Islands Gananoque) https://www.instagram.com/p/CAdp0X2Bq_6/?igshid=fn5wvf357982