ENDO GAL

Endo Gal is about a 20 yr old gal's uncensored thoughts and embarrassingly intimate experiences with endometriosis and how she learns to navigate a life she hasn't even started yet with a chronic illness.

[endogal]

FUCK YES LENNY LETTER

https://www.instagram.com/p/-MGSaTC1A-/

It’s 12:41 am here in my hot room in ‘straya and I just saw LENNY letter and Endometriosis in my inbox and I’m flawed, speechless, will probably cry as I’m very hormonal at the moment at everything Lena Dunham said in her piece ‘sick girl’, we are so alike from our thinking to even our experiences with endo! I can’t believe it my spirit animal is becoming my acual spirit might wake up as lena herself tomorrow - jokes it is already ‘tomorrow’  but I also have work really early in the morning so am tossing up about writing a full blog post vs. sleep (even though I will be awake all night anyway as my mind is racing and I have too much endo shit too talk about! LENA WAS ON LUPRON AS WELL!!! - I was on ZOLADEX Australian version! Lena and I need to talk about all things menopause in your twenties because that is such a normal thing to go through, hot flushes, no libido, moody psychopath, headaches that are worse than migraines- go figure- .... ahh must get some sleep! 

[endogal]

😷 Of course as I start my Tumblr & plan to go away to celebrate being well, a flare up comes on ten fold! It's funny how you're body knows when something enjoyable comes up! Irony and a half I say! Have been dealing with the usual rollercoaster of painsomnia, chronic fatigue, pushing through the pain in public etc. etc. I'm hoping this week is the back end of the flare until next month! Fingers crossed another blog post will be up by Sunday! Health and happiness to fellow ENDO GALS and chronic illness sufferers! 🐣 #ENDOGALTUMBLR #endoflaredontcare #endendo #endometriosis #adenomyosis #endowarrior #spoonies #womenshealth #periods #endoaware

[endogal]

🍋🍋 We all hear about the benefits of lemons for ENDO and ADENO but I swear by it! It helps with the horrible bloating we get and with sugar cravings I find. Especially a lemon, turmeric, ginger and honey tea before bed helps with pain! 🍋🍋 #ENDOGALTUMBLR #endendo #endometriosis #lemons #chronicpain #womenshealth #periods #endowarrior #endosister #spoonie #endo #adeno #chronicillness

[endogal]

@end_oh I 💛 this Instagram and her cute little captions! ☀️ today marks day one of my period. I'm moody, in pain, feel nauseated and migraines! I don't want to move from bed & to top it off I'm meant to be going away for a little getaway tomorrow to celebrate being the healthiest I have been since puberty after 10 months of not eating or getting out of bed, and pain 24/7, ZOLADEX and 2 surgeries - and IRONY takes it turn and just wants to laugh because I'm a girl who has ADENO and periods cause flare ups! 😂 just have to laugh! #ENDOGALTUMBLR #endometriosis #adenomyosis #pain #endowarriors #endosisters #womenshealth #uterus #ovaries #periods #endow #endendo

[endogal]

NY TIMES ENDO ARTICLE

http://well.blogs.nytimes.com/2015/03/30/endometriosis-is-often-ignored-in-teenage-girls/?ref=health&_r=0

Finally, an article on ENDO that is shared on a global media platform. The more awareness we raise the closer we get to an early diagnosis and save years of the torment we all go through due to pain and not being heard by those around us! 

[endogal]

ENDO GAL IS BACK

Since I started this blog in November ‘14 it was 2 months since my first Lap where I was diagnosed with Endo and an ANGRY uterus.  As my Endo was basically my whole pelvic wall and in the pouch of douglas they only excised the big blobs and put me in a pseudo-menopause with the treatment of ZOLADEX aka. the DEVIL. During this time I was trying to handle each day one by one, trying to not lose my mind and overcome living in horrendous pain with no one around you to understand, so I couldn’t really fathom the thought of writing blog posts when I mentally could only handle life one hour of each day at a time.

I’m sure my fellow peeps who live with chronic ilnesses understand, as you all endure it far worse. I’m grateful mine was only for a year and a bit of insane chronic pain.

Today is now 31/03/2015 the last day of March, which is the last day of Endo Awareness Month. It is exactly 8 weeks today since my 2nd Laparoscopy of the whole excision of my peritoneum, 8 weeks since no pain medication at all excluding Voltaren and paracetamol of course, and 3 months since the Zoladex implants. And the first time since puberty that I feel like a normal** human being.  

So I am back with a vengeance hopefully unlike my ENDO to raise awareness for Women’s Health and too share my experiences with ENDO and everything all us girls go through in finding a diagnosis and seeking help!

**Normal, what is normal? HMMM philosophical or what! Those close to me will say I’ve never been normal nor will I be but that’s all gee! 

[theleanove-r]

Getting a bit too comfortable with crying, especially in public!

i used to be one of those people who was always pretty composed, and i rarely cried + i was really proud of that but tbh this past year i have cried more than i have in my whole life + crying in public has become a thing for me like surely i can pull it together but clearly i can’t

[endogal]

"Not only do I have permanent bitchy resting face, but I'm in chronic pain too so it adds a bit of extra flava"

- rcm

[endogal]

Pain is inevitable, suffering is optional.

[endogal]

The "THAT WAS FUCKING DUMB" LIST

A list dedicated to fucking dumb things I did/do that only my ENDO gal pals will understand!

- Going to Splendour in the Grass when I'm passing blood clots the size of Pikelets whilst drinking redbull voddies and smoking my lungs away.... THAT WAS FUCKING DUMB

- 2 days after surgery going to a friends 20th birthday breakfast.. pretty fucking dumb.

- Eating anything drenched in SOY, WHEAT, GLUTEN and EGG... always fucking dumb, especially when you know the consequences of such a dumb thing to do..... so fucking dumb.

- Driving, working and doing uni in CHRONIC PAIN, all tasks that we push through because we have to on a daily basis. This is quite exhausting if I do say so myself. 

- Considering cancelling your surgery because you have experienced 2 days of blissful level 1 - 0 pain levels for the first time in 5 months, then you decide to celebrate this new lease on life by drinking, smoking ya ciggies and singing bloody karaoke. And then the next day experiencing pain you never thought imaginable..... NOW THAT WAS FUCKING DUMB

- Having Sex.. THAT SHIT HURTS

- Dancing on the d-floor for a whole of 30 seconds at a friend's 21st which you're already painfully (punny) sober at, and smoking ciggies coz ya bored, even though you haven't smoked in 6 weeks. All the whilst it has only been five weeks after surgery and 1 day after second round of a Zoladex Implant.... SHOULD PROBS STOP SMOKING CIGGIES, DUH!

- Making plans like a normal human being .... definitely dumb! 

- Not listening to your body when you are passing 2-3 blood clots a day on avg., in actual fact you're in a fuck load of pain.. but you still continue to do your everyday things a 20 yr old gal would do for FIVE months straight. All due to the fact you think what is happening to you is all in your head, as Dr's have told you from day dot, that your bloods and ultrasounds have come back fine and you DEFINITELY can't have ENDO probs just constipated... um yeah right that's why I'm having blood clots?THEN AFTER ALL THIS YOUR BODY CRASH'S AND FOR A MONTH PRIOR TO THE SURGERY YOU CAN'T EAT A THING NOT EVEN CHOCOLATE DUE TO THE NAUSEA YOU ARE EXPERIENCING! - Yeah, that was fucking dumb!

- When having PAINSOMNIA you do stupid activities such as dieing your hair, hating it, making D.I.Y vitamin c hair stripper to get rid of it, doesn't work, and it's 2:30 in the morning and all you are left with is vitamin c in your hair, pain and still have your too dark hair emo hair colour. (Vitamin C to keep up with the holistic health thing!)

- Eating chocolate 24/7, even though it contains all the foods you can't have, but FUCK give me something!!!!! .... I always regret it when I eat chocolate, yet I always do. SO I'M ALWAYS DOING FUCKING DUMB SHIT!

[endogal]

INTRO

After being diagnosed with ENDO 7 1/2 weeks ago through laparoscopy, I started Googling. Googling to find answers. Answers on how to live with ENDO, cope day to day and most importantly how to deal with the chronic pain and have pain free sex!

Because let’s be honest I already Dr. Googled diagnosed myself a very long time ago with a whole big buffet breakfast variety of diseases to see what the great Dr. Google had to offer, coinciding with my symptoms of course! 

But, nothing was coming up! Seriously? Not only was I re-cooperating with a traumatic post-op*

  * Please note sarcasm, only traumatic thing I was going through was trying to get the gas out of me and walking around like a baby tyrannosaurus who burped 24/7 

…but my one trusted confidant GOOGLE** had NO answers for me.  

**GOOGLE is clearly the Mecca of quick satisfying and reassuring ANSWERS! 

So this was all very distressing especially when looped out on pain meds.

I wanted to create a blog, which isn’t afraid in sharing the intimate, raw and uncensored details and challenges I have and will experience with ENDO.

But to also find the humour within this chronic disease. Because all you really have at the end of the day is trying to keep yourself sane and trying to find the humour within this chronic and excruciatingly painful disease. 

If by writing this blog, a girl who is Googling the How To’s of ENDO comes across it and finds a safety net within and in someway I can educate/empower her with how to deal with life and ENDO.then I’m definitely a happy camper with that!   

I also want to raise awareness for this incurable and insufferable disease so no other Gal doesn’t have to endure what I endured/ will endure for the rest of my life (fingers crossed there’s a miracle, called Zoladex which I’m currently having on a monthly basis).

Because for me, it wasn’t, unfortunately, until my “hypochondriac” symptoms turned for the worst at the start of this year. And I would’ve appreciated a blog like this.

If I knew what I knew, back five years ago when I started to ask Dr’s to investigate my range of health issues, or what we say ENDO issues. I would’ve persevered and would’ve gotten this surgery/diagnosis a whole lot sooner!

Endo Gal is a blog not afraid to get into the nitty gritty of life with ENDO, and what it’s like having to re-evaluate your life you haven’t even started yet at 20! 

*** This blog shares the individual’s own experiences and symptoms with ENDO. Anything posted on this blog should not undermine the opinions of a health professional. It is in no way ignoring other chronic illnesses, mental and/or physical.