Life and after loss - my story
I was finishing my last conference call of the day and putting on my out of office message. Our bags were packed and all we had to do now was collect our son from nursery, have some tea and then get a very early night, ready for the 5am flight to Greece the next day for our very much needed family holiday.
But there was one thing I knew I needed to do. I’d missed a period this month, but I was super busy at work so it was probably just that, right? I just wanted to rule out pregnancy so I could relax, and maybe enjoy my holiday with a few beers thrown in on the beach. After all, my periods had always been erratic so I was sure it was nothing.
But then there they were. Two lines. I took the second test in the packet just to be sure and this time the lines were even stronger. I made Christian go to Tesco to get a fancy one that told you how many weeks. No denying it now, I was 2 -3 weeks pregnant!
Shocked but overjoyed was the best way to describe our emotions. We’d always thought we’d be happy with our amazing little Jude…and we were… until we found out that he was about to have a brother or sister and then we knew that this was exactly what we needed to complete our little family. Our holiday took on an extra special meaning, and I didn’t even care that I was missing out on booze on this all-inclusive holiday, because we had something so amazing around the corner that far outweighed anything else.
One morning I swam out to a big rock in the middle of the sea to watch the sunrise. I sat on the rock, stroked my belly and talked to my baby. I told him/her how surprised we were but how excited we were to meet them. I told them all about Jude and how he’d be the best big brother ever, and about all the things we’d enjoy as a family of four. This time around I vowed that I would be more relaxed, less stressed and I promised I would try and be the best mummy in the world.
When we got back home life carried on as normal. We trudged through a typical rainy autumn in Manchester, but it was tinged with a kind of “Ready Brek” glow and we both marched round with soppy smiles on our faces – I was sure people could tell! We went for a private scan when I was 6 weeks and there was our beautiful little butterbean developing nicely. The sonographer even showed me the tiny little heartbeat!
We drove home from the scan with grand plans about the future – there was so much to consider – names, what we’d need to buy, where the baby would sleep. I was happy, healthy, and confident that everything would be just fine. I’d had a textbook pregnancy with Jude and breezed through it with very minimal symptoms other than feeling a bit tired. It was still early days yet, so I told my sister and a few close friends, but it wasn’t the closely guarded state secret that it had been when I was pregnant with Jude. After all, he got here safely so I could relax. Why would this time around be any different?
Then one day, I started to get some cramping. Dr Google told me that this was perfectly normal and I remembered I’d had them with Jude so I was very relaxed about it. It was very likely to be a bit of ligament pain and even when I started getting some light spotting, I wasn’t worried. I told myself it was probably implantation bleeding which was pretty normal at this stage so I ignored it, hoping it would stop.
The following day the bleeding had got a bit heavier so I booked a private scan, again just for reassurance. I arrived at the clinic and confidently told the sonographer that I’d had some bleeding but I just wanted to check it out. She nodded kindly and asked me to lie down on the bed while she rubbed the freezing cold jelly on my stomach. Thinking back, my mind was totally preoccupied with how soon I could get myself sorted and just get out of there. I had to go straight from the clinic to collect Jude from nursery, and if she didn’t hurry up then I knew I’d hit heavy traffic and be late.
As she moved around my stomach she asked whether I was OK to have an internal scan “just to make sure” and I agreed, but I wasn’t expecting that there’d be any issues. Again more cold jelly, a bit of discomfort and a bit of angst about the time ticking away. Then she said something I was completely unprepared for…
“I’m so sorry. There’s no heartbeat”
I still struggle to find words to describe how I felt at that moment in time. The only way I can describe it is like when you have one of those dreams where you’re falling and you wake up with a gasp. But this time the falling sensation continued and there was no waking up from this one. I think back to that day now, and I remember thanking her for checking. I was apologising, saying how sorry I was to have put her in the situation, and how horrible it must be doing her job when there’s news like this to deliver. I didn’t cry. I couldn’t cry. I felt too shocked and numb. I just wanted to get out of there and go and get my baby boy from nursery and hold him and smell him. I called Christian on the way back and he was worried. He told me to just get myself home safely.
Sure enough I hit the dreaded traffic as predicted. I was in such a state of shock I’m surprised I even made it to nursery in one piece. I was just on autopilot. I arrived at nursery, plastered on a smile, chatted politely to Jude’s teacher, and listened in a vacant daze on the way home as he shared all the tiny details of his day. By the time I arrived home he was asleep in the car seat, so I carefully extracted him and laid him on the sofa to finish his blissful nap. I remember thinking at that moment how beautiful he looked, and then I was overcome with an immediate, overwhelming feeling of grief as it hit me that I would never ever know what his little brother or sister looked like and would never get to see their face.
Christian and I cried a lot that night, and there were a lot of clandestine crying sessions in the kitchen or bathroom so we could hide it from Jude. There are only so many times you can pretend you've hurt your toe, or that you just feel sad because it’s bedtime – toddlers may be little but they’re not stupid!
The next few days passed in a total fog as I found myself feeling completely lost and without a sense of purpose. So I did what I always do to anchor myself and threw myself into work, where I felt safe and where my world hadn’t completely changed. We were planning a big event and I distracted myself by delivering goodie bags all over Manchester, listening to the radio to keep myself distracted. I knew that I needed to call someone and find out what I needed to do from a medical perspective but I just wasn’t sure what to do, or who to phone, or where to even start. There was no guidance on any of this, and the hospital website or my midwife notes don't tell you what to do if your baby dies.
I wish this was the bit where I could say that the NHS were amazing and wrapped their arms around me, guiding me skilfully through a seamless process of management and support – but this couldn’t have been further from the truth.
This was now November 2020 and we were still in the peak of the pandemic. Things weren’t looking good as infection rates were spiking and the writing was pretty much on the wall for Christmas – we knew another lockdown, or at least more tough restrictions, were just around the corner. This meant that our NHS was feeling the strain and things were already very broken.
I was passed from department to department and given different advice about where to call or who to speak to. Nobody seemed to know what to do with me. I was given one phone number that was supposed to be for the Early Pregnancy Unit but it just rang out continuously. One day a man answered and in sheer exasperation of speaking to an actual human I just blurted out “Hi, not sure if you can help me but I’m 8 weeks pregnant and my baby has died and I don’t know what to do”
The phone went very silent, and he sheepishly explained that he worked at the hospital but he was in the finance department and the switchboard had mixed up the phone lines. It was all just so surreal that I joked with him about how he’d have a lot of women discussing their vaginas with him today unless he got the issue fixed! There I was again – cracking jokes and trying to make other people feel better because I just didn’t know what else to do or how I was supposed to be handling everything.
Eventually I rang my GP and spoke to the receptionist and told her what had happened to me, and asked if I could make an appointment. “I’m so sorry to hear your news” she said. It completely broke me, and I sat there on that call and realised why. “Thank you” I said to her “because you are the first person in three days I’ve spoken to about this who’s actually acknowledged that I’ve lost my baby and has been kind to me!”
I won't rake over the catalogue of errors and lack of support from the hospital because on reflection, I’ve processed it all now and I guess they were just trying their best, desperately trying to keep their heads above water in the middle of Covid like the rest of us. But pretty much every interaction with the hospital was painful and draining and I had to explain again and again what had happened. What shocked me most was how the people I spoke to displayed pretty much zero empathy and understanding. You’d have thought I was calling up to talk about something like removal of an ingrown toenail, or book a flu jab – it just all felt so impersonal.
Eventually I was given three options:
Wait and see whether nature took its course, which would mean my body rejected the baby naturally
Have medical management which was essentially a pessary to bring on a miscarriage
Opt for surgical removal of the womb products (yep - that was actually the phrase that the doctor used… womb products!)
Option 1 was out of the question. I didn’t feel I could bear to carry on day to day, knowing that I was carrying a dead baby inside me. And as for “nature taking it’s course” well – me and Mother Nature were barely on speaking terms by this point. I was furious at how callous and cruel she’d been, so why should I trust her now?
Option 3 involved sedation and possible general anaesthetic and I really didn’t want to spend any more time than I had to in hospital in a pandemic, so I opted for medical management.
The idea was that you insert a vaginal pessary with a tablet, go to sleep and it brings on labour within 12 – 24 hours. I knew this would be hard and horrible but I braced myself for the fact that I was going to go through a delivery but at the end of it I wouldn’t have an exhausted but smiling photo for social media with a cute wrinkly baby pressed against me. It all just felt so unfair that I had to go through that pain but have nothing to show for it. Still, I got home from hospital, had a big glass of wine, a nice bath, tried to relax, used the meds and waited. And waited. And waited. I went to bed and expected to be woken by labour starting but it never came.
Another trip to the hospital a few days later and I was asked if I wanted to give the meds another go. I agreed, and set off home again to repeat the process all over again…and once again, nothing! I was furious with my body – why could it not get anything right? So it couldn’t manage to carry my baby safely, but it wasn’t willing to do what it needed to deliver it either? Why could it not even do the simplest thing to help me out? I blamed myself completely and became so angry and resentful of my body. What was wrong with me?
A few days later I was back at the hospital again where I sat anxiously in the grim waiting room. By now we were approaching Christmas and one of the staff was merrily hanging tinsel on a tree in the Early Pregnancy Unit and whistling festive tunes. I remember one poor woman coming out of a side room sobbing (presumably having had horrific news about her own pregnancy) just as the sound of Noddy Holder screaming “It’s Chriiiiiiistmaaaaaaaas!” reverberated across the ward thanks to Heart Radio! It was just the most surreal thing and against my better judgement I just started to giggle at the utter contrast of this completely bizarre situation I’d been catapulted into. When I told Christian the story later that day, I realised that this was the first time I’d actually laughed in weeks!
I eventually saw the doctor and was told that surgical removal was the only way, but I still couldn’t bear to think about my baby just being sucked up into a machine and disposed of as if it never mattered. I begged and pleaded with the doctor to let me have one more try with the medication and she reluctantly agreed, but told me that if this didn’t work I’d have to undergo the surgical removal under anaesthetic or I'd be at risk of infection.
I don’t know what was different about this time, and whether it was physical or mental but it was a case of third time lucky. I began to get strong contractions at about 11pm that night and lots of very heavy bleeding. I took painkillers and tried to get some sleep but it was just too painful and I laboured for most of the night. Eventually my baby was delivered in its amniotic sac, next to the placenta at 6am on 1st December. Tiny and perfect, but sadly just never to be part of this world.
What were we supposed to do now? Because a baby is classed as a foetus before 24 weeks then there’s no obligation to register a death and medically it's viewed as a collection of cells. When I eventually found the strength to call the hospital to tell them I’d delivered the baby, and asked what I should do now, one of the nurses said it was up to me but I could dispose of it in the toilet if I wanted! This really shocked me, and I’d love to say I gave her some very astute feedback about how insensitive she was. However I’m afraid to say that I just put the phone down and took myself off to bed where I stayed all weekend, crying and looking at my scan photo. I wish I'd had more strength now to tell her how awful that was.
We eventually planted a beautiful bay tree in the garden and buried our baby under it in a little ceremony. We also buried a little note alongside him to tell him all the things we wished we could’ve said to him. I always say “him” because whilst I don’t know for certain, I always imagine that we would’ve had another little boy, a little carbon copy of Jude. My note that went alongside him apologised over and over again as I blamed myself and my body for letting him down and not being able to bring him safely into the world.
As weeks passed, I threw myself into my job and kept busy. Things were fine when I was busy and I would work ridiculously long days and then do things after work with Jude to distract myself, because when I stopped I had time to think. And when I had time to think I got sad. REALLY sad. I dreaded bedtime when I’d lie there awake, alone with my thoughts and my sheer, all-consuming sadness.
Thankfully I stumbled across The Miscarriage Association website, which shared very open but heartbreaking stories of miscarriage and loss. I began to realise that all these feelings were perfectly normal and gradually I stopped blaming myself and hating my body. I decided that I would channel my energies into something positive, so I signed up to do a half marathon in September 2021 which I wanted to run to raise money for The Miscarriage Association.
The half marathon was not to be…as in March this year I found out that I was pregnant again. This brought the same shock, but this time the excitement was replaced by terror. I already knew that two blue lines don’t always equal a baby, so I spent the first 12 weeks in a constant state of anxiety, convinced that my body wasn’t up to the job and that the same thing would happen again.
Anyone who has had a pregnancy after a loss will understand the panic and worry that each new days brings with it. Rather than thinking “I’m a day closer to meeting my baby” you think “today is the day that things are bound to go wrong” and I’ve spent the last 7 months checking for blood, freaking out at every ache, pain and twinge, and feeling an overwhelming sense of dread at every scan – convinced there won’t be a heartbeat again. My brain continually tells me that it's only a matter of time before the worst happens again.
I have eight weeks left until my due date, and I wake up every day convinced that I’ve just borrowed him for all this time and today will be the day he’ll leave me. On top of the usual pregnancy tiredness, I’m exhausted through carrying the constant guilt about not enjoying this pregnancy. I feel selfish and ungrateful when so many people in the world just don’t fall pregnant again after a loss. I know I'm one of the lucky ones though, and my heart truly goes out to those people who desperately long for a healthy pregnancy.
Miscarriage is still so taboo and it makes people really uncomfortable to talk about it. When Meghan Markle talked about her miscarriage (which happened around the same time as mine) I was shocked at how cruel people were towards her, saying she’d made it up for attention and other disgusting things. I can only assume that they reacted like this because her willingness to discuss it so openly made people uncomfortable and they just didn’t know any other way to deal with it.
There definitely needs to be more support and understanding out there for women who’ve lost pregnancies, and for their partners. This could be something as simple as teaching medical professionals about respectful and empathetic ways to connect with women who have experienced pregnancy loss, or learning how the language they use can have such an impact.
The Miscarriage Association and Tommy’s do some fantastic work in this space and I hope, all being well, to be able to run that half marathon for them next year. There’ll be some tears at the finish line (a combination of emotion and some pretty mean blisters, probably!) but my experience has made me determined to raise money and awareness of this.