When you get a random spike of intense pain that fades away after a few seconds
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YOU ARE THE REASON
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@haleypobbg
When you get a random spike of intense pain that fades away after a few seconds
Abled people: pain is only temporary
Me, a human knot of Suffering: truly Inspiring brenda
If you see me looking zoned out it’s cuz im having a therapy session with myself in my head
Fucking painsonmia
me: yeah i have a chronic illness, so there isnt really any way to cure my-
someone: okay but
me:no
someone: have u ever
me: fuck no dont do it
someone: tried
me:dont say the thing dont you fuckin dare
someone: yoga?
me:…fuck, fuck, why? why did you do it
this coming year i’ve decided i’m gonna try to stop saying things like “i hate my back” and instead say “i hate it when my back hurts” or “i hate back pain” bc idk it feels like saying “i hate part of myself” is bad somehow? like maybe pitting myself against myself isn’t gonna help and instead I should try to remember my back is part of me and we’re in this together
“I’m a sad music person. I steal flowers instead of clothes but still manage to get into trouble because of it. I’m also a sunset person, a starry night person, a philosophical talk at 2a.m. with my dad after he picks me up from a party. I don’t trust myself a lot of times so don’t expect me to trust others. I’m a ‘save everything just in case I’ll need in the future’ person, I’m the pep talk giver and hate to be in the receiver’s position. I’m a ‘cry in the bathroom whilst watching my tears drip in the mirror’ person. I’m sarcastic if you notice my words, moral and most inspired at nighttime. I’m still sorting out who I am and who I want to be. I’m lost but I can be found. I’m the light at the end of the tunnel.”
—
identity.
physically, yes, i could fight a bird. but emotionally? imagine the toll
I will never not repost this
Don’t feel pressured to find a silver lining in your suffering.
Add “distress” to your pain scale
Pain scale? More like pain in the booty. No two people seem to read it the same way, and chronic folks tend to downplay their pain.
So here’s an idea: when asked to rate your pain, provide a number to rate your distress levels in addition to your pain levels.
Some examples:
“I’m at a 5 on the pain scale, but my distress is basically a 1 because this is my usual.”
“I’m at a 3 on the pain scale, but my distress is a 7 because this is new pain and affects a part of my body that’s very important to my work.”
It’s a great way to consider how your pain is impacting you—and to get a doctor’s attention where it’s actually needed.
OP is a genius
When I forget to refill a prescription...
“But don’t let your illness stop you!!!1!1!!”
I’m not “letting” my illness stop me it just plain IS stopping me it’s an ILLNESS it makes me ILL that’s what it DOES.
Everyone needs to read this.
Seriously. If I had that much control over my illness, I wouldn’t fucking be ill, now would I?
TOday’s MOod?
Living with Chronic pain is so weird.
In every quiet moment there’s pain.
If some asks me how I am I usually say ‘fine’ or ‘good’ or ‘a bit tired’
because those are easier to say than ‘I’m in a lot of pain’ ‘I’m this close to passing out’ ‘if I move to quickly I will throw up’
and sometimes when people say ‘How are things going?’
I shrug and say ‘the usual’
and they assume that means everything’s fine because for them that is the usual
but for me the usual is pain.
for me the usual is pain