When you get a random spike of intense pain that fades away after a few seconds
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@haleypobbg
When you get a random spike of intense pain that fades away after a few seconds
Abled people: pain is only temporary
Me, a human knot of Suffering: truly Inspiring brenda
If you see me looking zoned out itâs cuz im having a therapy session with myself in my head
Fucking painsonmia
me: yeah i have a chronic illness, so there isnt really any way to cure my-
someone: okay but
me:no
someone: have u ever
me: fuck no dont do it
someone: tried
me:dont say the thing dont you fuckin dare
someone: yoga?
me:âŠfuck, fuck, why? why did you do it
this coming year iâve decided iâm gonna try to stop saying things like âi hate my backâ and instead say âi hate it when my back hurtsâ or âi hate back painâ bc idk it feels like saying âi hate part of myselfâ is bad somehow? like maybe pitting myself against myself isnât gonna help and instead I should try to remember my back is part of me and weâre in this together
âIâm a sad music person. I steal flowers instead of clothes but still manage to get into trouble because of it. Iâm also a sunset person, a starry night person, a philosophical talk at 2a.m. with my dad after he picks me up from a party. I donât trust myself a lot of times so donât expect me to trust others. Iâm a âsave everything just in case Iâll need in the futureâ person, Iâm the pep talk giver and hate to be in the receiverâs position. Iâm a âcry in the bathroom whilst watching my tears drip in the mirrorâ person. Iâm sarcastic if you notice my words, moral and most inspired at nighttime. Iâm still sorting out who I am and who I want to be. Iâm lost but I can be found. Iâm the light at the end of the tunnel.â
â
identity.
physically, yes, i could fight a bird. but emotionally? imagine the toll
I will never not repost this
Donât feel pressured to find a silver lining in your suffering.
Add âdistressâ to your pain scale
Pain scale? More like pain in the booty. No two people seem to read it the same way, and chronic folks tend to downplay their pain.
So hereâs an idea: when asked to rate your pain, provide a number to rate your distress levels in addition to your pain levels.
Some examples:
âIâm at a 5 on the pain scale, but my distress is basically a 1 because this is my usual.â
âIâm at a 3 on the pain scale, but my distress is a 7 because this is new pain and affects a part of my body thatâs very important to my work.â
Itâs a great way to consider how your pain is impacting youâand to get a doctorâs attention where itâs actually needed.
OP is a genius
When I forget to refill a prescription...
âBut donât let your illness stop you!!!1!1!!â
Iâm not âlettingâ my illness stop me it just plain IS stopping me itâs an ILLNESS it makes me ILL thatâs what it DOES.
Everyone needs to read this.
Seriously. If I had that much control over my illness, I wouldnât fucking be ill, now would I?
TOdayâs MOod?
Living with Chronic pain is so weird.
In every quiet moment thereâs pain.
If some asks me how I am I usually say âfineâ or âgoodâ or âa bit tiredâ
because those are easier to say than âIâm in a lot of painâ âIâm this close to passing outâ âif I move to quickly I will throw upâÂ
and sometimes when people say âHow are things going?âÂ
I shrug and say âthe usualâ
and they assume that means everythingâs fine because for them that is the usual
but for me the usual is pain.
for me the usual is pain