The ramblings of an IC patient by Tali Keteri

I am a freelance writer/blogger, vocalist/songwriter/musician, horror genre enthusiast, and avid Interstitial Cystitis and Chronic Pelvic Pain awareness advocate. I believe in kindness and respect for others who may be struggling with their own demons and...

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Take Charge Of Your Pelvic Pain With The FREE Webinar "Say Goodbye To Your Pelvic Floor Dysfunction & Transform Your Lady Parts" By Women's Pelvic Health PT and Specialist, Isa Herrera.

Take Charge Of Your Pelvic Pain With The FREE Webinar “Say Goodbye To Your Pelvic Floor Dysfunction & Transform Your Lady Parts” By Women’s Pelvic Health PT and Specialist, Isa Herrera.

Every once in awhile when I’m at work or out with friends, someone casually drops the mic when speaking to the newest member of the friend group about the things I’ve done in my past.

It’s not a bad thing. It’s just a thing that happens.

Often.

The drop doesn’t occur because someone wants to embarrass me or throw me under the bus  but is instead just the way information tends to roll out when…

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Why Opening Up About Your Pain Can Help You Gain Back Your Control

Why Opening Up About Your Pain Can Help You Gain Back Your Control

The last post I wrote was over a year ago.

A year.

One whole year plus some days.

The reality of the time span actually causes a feeling of disbelief for me that is, to say the least, a bit unexpected. It’s like the 365 days  were sort of a blur that flew by without my realizing it.

I receive messages daily from wonderful people who need to understand why I stopped–Why I just disappeared. They…

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How working in critical care as a veterinary technician gave me a new perspective on the cat and my own struggles with Interstitial Cystitis

How working in critical care as a veterinary technician gave me a new perspective on the cat and my own struggles with Interstitial Cystitis

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When I first began working in animal care in 2005,which just so happens to be the same year I began dealing with the chronic pelvic pain conditions IC

, PFD

, and VV

,  I primarily cared for animals that had been abused and neglected. I saw first hand the horrors that humans can inflict on the creatures who trust us to have their best…

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Community Post: 5 Ways To Not Fall Victim To The Chronic Pelvic Pain Cycle

Tips to help gain control of chronic pelvic pain symptoms.

Tips to help gain control of chronic pelvic pain symptoms.

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5 Ways To Not Fall Victim To The Chronic Pelvic Pain Cycle

Many who suffer with chronic pelvic pain conditions tend to fall into the pain cycle making it harder and harder to move forward. Here are some tips to help you break the cycle!

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5 Ways To Not Fall Into The Chronic Pelvic Pain Cycle

5 Ways To Not Fall Into The Chronic Pelvic Pain Cycle

                                                                  Be the rock that breaks the wave.– Tali Keteri

       1.  Don’t get lost in the pain

It’s easy during a flare up to focus solely on our discomfort. The sudden onset or worsening of already persistent pain becomes the only aspect in that present moment of our lives that we can think about. Our brains tell us repeatedly that what…

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Welcome to the new IC Ramblings!

Welcome to the new IC Ramblings!

I had ceased my hiatus about a month or so ago to warn you all that the site would be under construction for a few days while I transferred the blog into a self hosting situation (I’m using Blue Host, in case you were wondering. If you weren’t wondering, too bad. I told ya anyway!). I clearly was beyondnaive to think that someone as html code challenged as myself would be able to get a brand new…

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New IC Ramblings site! Bear with me!

New IC Ramblings site! Bear with me!

Hello everyone!!!

I wasn’t going to let the site go live until it was complete (it’ll probably take me another 3-5 days) but I’ve been hearing from some worried people that I shut it down without telling anyone!  I promise it’s not going anywhere…just needed a makeover and rejuvenation session.

  Within the next week or so I will be writing a more official statement and introducing everyone to…

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Ever had a UTI or gotten lemon juice in a cut? That's what an IC bladder feels like every time someone with IC has to pee.

Ever had a UTI or gotten lemon juice in a cut? That’s what an IC bladder feels like every time someone with IC has to pee.

SEPTEMBER 13TH What would you say to a close friend or family member to try to get them to understand more about your IC struggle. Don’t use anything you’ve ever used before. Try a completely confident approach and something that people not of our “IC world” can relate to and think outside of the box. This is mine- I continuously ask people if they’ve ever gotten lemon, tomato, or other acidic…

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Ever had a UTI or gotten lemon juice in a cut? That's what an IC bladder feels like every time someone with IC has to pee.

Ever had a UTI or gotten lemon juice in a cut? That’s what an IC bladder feels like every time someone with IC has to pee.

SEPTEMBER 13TH What would you say to a close friend or family member to try to get them to understand more about your IC struggle. Don’t use anything you’ve ever used before. Try a completely confident approach and something that people not of our “IC world” can relate to and think outside of the box. This is mine- I continuously ask people if they’ve ever gotten lemon, tomato, or other acidic…

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Ten years ago my life changed in ways I could have never imagined. Today, I share a little piece of that journey in hopes of healing the last remaining bits of me that have fought so hard to stay h...

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10 years ago I was diagnosed with an incurable and debilitating medical condition. Today, on the anniversary, I celebrate life.

10 years ago I was diagnosed with an incurable and debilitating medical condition. Today, on the anniversary, I celebrate life.

Ten years ago my life changed in ways I could have never imagined. Today, I share a little piece of that journey in hopes of healing the last remaining bits of me that have fought so hard to stay hidden and silent for all these years. Today, I share a secret; A secret that others may or may not relate to; A secret that people who have never experienced a chronic pain condition may never be able to…

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A small reminder for those struggling with IC

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Why stepping away from it all is sometimes the only way to heal from within

Why stepping away from it all is sometimes the only way to heal from within

As many people in the Interstitial Cystitis community know, I have been an active voice in the IC and Chronic Pelvic Pain awareness movement for almost 10 years. When I was first diagnosed in 2006, after years of unanswered questions, debilitating pain, and feeling completely isolated, I began a journey that would enable me to help thousands of chronic pelvic pain patients feel less alone, more…

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The best memes from 2014

This year for IC awareness month, I decided to implement a project/contestthat would harness the every growing popularity of the “self made” meme. In the beginning, there was some confusion about how to go about making IC based memes for those not so social media/internet savvy folks but after some careful explaining and posting lots of Chuck Norris inspired memes for demonstration purposes,…

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Tali Keteri's Personal Writing & Critical Thinking Project for IC Awareness Month 2014

Tali Keteri's IC Awareness Month- Personal Writing & Critical Thinking Project.

Last year I implemented a new kind of writing projectthat spanned the entire month of September as a way to help fellow ICers become more comfortable with talking about the many different emotions having a condition like IC can make us feel. I received such amazing feedback from those who chose to be involved and continued to hear from so many people who wanted to have another writing project in…

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Tali Keteri's 2014 Interstitial Cystitis based Social media meme contest-- a supported IC-Network project

     Last year I had the privilege of running and contributing to the writing, poetry, and blogging portion of IC awareness month for the IC- Network. This year, I decided that since the majority of time in September of 2013 was spent helping fellow ICers become more comfortable when writing or talking about the intricacies and personal sensitive nature of this condition, we should use our new…

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