I don’t think healthy people every really get chronic illness.
I have a friend I know from when we were both 6. She is the only person living nearby and so she saw me go from walking through limping to wheelchair on a daily basis. I keep her updated on my health even tho we rarely hang out anymore. She was gonna come over yesterday and I had to cancel. She asked if I can’t hang out later that day. When I said i won’t feel better later, that if I feel that bad in the morning later will only get worse she got annoyed and “joked” that I’m just finding excuses. And I was surprised, she knows all about me being disabled after all? So, a bit taken aback, I told her it’s a normal thing for me.
“But you got the diagnosis now, aren’t you better?? I thought you’ll get better now”
She was honestly surprised and it made me realize a thing. They don’t get it. They don’t get that getting diagnosed only equals benefits like welfare or parking spot for us, and sometimes better pain meds but that is just like pushing luck. That it’s a forever thing. That that one day we felt good a week ago was just a bright spot and doesn’t mean we won’t need our aids anymore, cause chronic illness is not linear and will make a great comeback in next four hours, and the next good day is planned on when we’re 70. Cause when abled people are sick, they get better. And our illness is just an excuse for them. And when we say we will never get better they think we’re being dramatic and pessimistic. And I don’t think they’ll ever get it, cause to get it you need to live it. And I want my friends to stay healthy and not go through hell.
This is definitely okay to reblog and abled people are encouraged to reblog cause maybe it’ll help others understand
Hello it’s me Lexa and this post is relevant again as I just had the Legit Same Talk with someone and I exhausted my number of fucks to give
Hiya.
I just wanted to say I'm sorry what happens with you and ehhh... can get it tbh 🥹 I have a few chronic illness and mysterious illness/ condition. All can be kept at a level or handled pretty easily so I really don't mean this like a vent. But I really get it when you feel like you explain things to a blank wall, cuz they don't want or can't understand. (F.e. I have celiac disease and etc, and peps keep asking like "WhAt aRe yOu EaTiNg ThEn?" And I came up with a pretty come-back line like "Light :3 I just photosynthesize yk")
So I just wanna say I dunno... hold on? I guess 🥹 And if someone doesn't believe that you're not "looking for an excuse", you just feel bad, and ohh, surprise it won't fade within a few hours or disappear cuz you got a paper, well... maybe they don't even want to believe it
You're still cool, and strong and amazing so shit on them <3333
(When I hear stories like that I feel damn lucky and proud of my plantonic gf/ soulsmate cuz she somehow gets my all things damn quick. So yeah. I think I can't be more gratefull for her..)
