I made up a way to explain fatigue!
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@marylynbirds
I made up a way to explain fatigue!
I have been trying to search but to no avail so I’ll see if tumblr can offer me some help! I’m looking for advice/resources for coping mechanisms for college with autism. Every time I look it up I just get stuff for people around a person with autism but not for the autistic person themselves. I’m open to any personal tips, experiences, or anything that could be useful! Especially pertaining to burnout. I’m gonna tag @grison-in-space since you’re who pops into my mind for academia!
There's a few things that I have done/am doing to make college more feasible. A few of these will be easier to realise than others.
- the most rigorous one was switching degrees... We have 2 types of universities here and one is usually easier than the other. Switching universities/programs allows me to spend less time on studying because the coursework is more practical and easier.
- I have the privilege of not having to work to make ends meet. We have a pretty decent student loan system and there's a subsidy I am elligable for + parents who are able and willing to financially support me. I understand this is typically not something you can control. But try looking for subsidies etc that you are eligible for in your country, a student counciler may know of one/a few.
- prioritise. For me my studies are my top 1 priority after my mental health. This means I direct my energy to studying and going to classes rather than social events. That being said, things like sports are very important for your mental health, so keep that in mind. Just make sure to plan your time accordingly
- make sure you take enough time off. I generally don't do anything for my studies in the evening and the weekends and breaks. Sometimes it can't be avoided but by taking time off often I can keep going until summer comes around.
- learn what works for you! For me it helps to limit events out of the house, but if that's how you recharge, go for it!
- take it easy. If taking a course less this semester means you won't burn out it might be better if you drop it for now. This might mean you have to stay in college for a bit longer. There is no shame in doing so, around these parts it's very normal to take an extra year.
- I don't expect myself to keep the house perfectly clean and tidy, I'm okay with livable. Same for food, if I know I have a long day I get something to heat up in the microwave rather than cook something myself.
- identify what gives you more energy and what takes it away. Make choices accordingly, even if they might be hard (I ended up quiting singing in a band because it no longer gave me the boost it once did, instead I dreaded going to band practice).
- try to create routines if those help you. I take a moment every night to update my planner and put down everything I'd usually try to remember, even charging my toothbrush is in there.
Idk what else to mention. I feel like these are quite general but I know I needed to learn all of this so I'll just leave this here...
What Does Being Autistic Feel Like?
Neurodivergent_lou
Fruit & Autism
The Autistic Teacher
Yup, that's me! There's a few fruits I like, but if even one grape has gone bad or tastes/feels weird I'm can't get myself to eat the others from the batch.
My birthday is next Wednesday and I celebrated with my family today bc of scheduling. I got a few books and also loop engage earplugs! I'm so excited to try them soon! I expect they will be very nice when we have to work individually in class but people are chatting. Or when I'm trying to study/work in common areas at uni or my internship!
Like when other autistic people (high masking/low support needs) say they told someone they are autistic and they go "oh!, I could never tell!" or "really??? you so normal" , when I tell people they like "oh , yup" as if already knew lol or "yeah lol" , I'm very obviously autistic, so just wanted to add to that sort of post that I see constantly in the autistic community
I've gotten both responses... My last internship coach was like: "yeah I know". But she's audhd so knew what to look for. The coordinator there on the other hand was quite surprised because "you can't really see it". The thing is, I think there's definitely ways for people to tell I'm autistic, they just have to know what they're looking for. They just don't know bc I'm not a boy who is obsessed with math and trucks I guess...
Things you shouldn't feel bad about
needing accommodations
taking breaks
relying on other people
needing help
struggling with something more than others
your food
crying
panicking
going to therapy
taking medication
your sexuality/gender
taking up space
not going to every social event
The amount of friends you have (quality over quantity)
stimming
getting excited
liking "basic" things
liking "cringey" things (cringe culture is dead)
Having made / making mistakes
needing time to grow
not being able to meet all your goals imminently
feeling like you move slower than others
where you are living
not living an "aesthetic" live
struggling with social situations
AND SO MUCH MORE ILYYY
Autism & Summer
I know Summer is nearly over, but I think this could help a lot of people.
The Autistic Teacher
I've had my own love-hate relationship with summer.
I love hot weather bc I'm always cold.
I like not being stressed out due to my studies and internship.
But I do miss a certain sense of structure. And this year, I've realised I'm more sensitive to bright sunlight than I thought, and I wear glasses, so can't wear (cheap) regular sunglasses without getting a headache in the long run. This is what I did this year to help myself.
Last year, I was experiencing a lot of stress in anticipation of a trip abroad. I had the chance to go again this year and decided against it; it saved me a lot of stress. I'd like to travel again in the future, but this summer, I had to prioritise resting and getting ready for the next academic year. Something else that helped a lot was using a new planner. There was an online sample that I could view, so I first copied (by drawing) the pages in an old bullet journal to see whether I liked this layout, I started using the actual planner at the start of August. It has been a great help to visualise what chores I have to do and when I can make plans. It created a sense of certainty without being stuck following a schedule. I take some time every evening to consider what chores I have to do the next day, what appointments I have the next day (if any) or if I can just game and watch my favourite show. This planner is called the 'balansplanner', unfortunately, it's only available in Dutch tho...
I've also accepted it's okay to "waste" my time. I am not wasting my time in summer; I am RESTING. Which is definitely needed after a year of hard work. So yeah, I did watch 3 seasons of a new tv-show in a week. It's not hurting anyone, and I'm enjoying myself. Having elaborate plans every day or even being creative every day means that I might not be resting as much as I should be, so I've let go of expectations like that. All in all, I had a lovely summer. I made some plans with friends and family, but not too many. I have been creative but also allowed myself to just sit back and relax. I feel rested and ready for the next academic year, which starts in September. I know the same may not be true for everyone, but I hope next year will be better for you <3
hey btw all of your days can look different. you can be really productive one day and do nothing the next day and have high support needs the next day. you can stim a lot one day and not at all the next day. you can mask really well one day and be unable to mask the next day. doing your best means whatever you can do THAT day, and that's allowed to change. :)
I wanted to share some of my special interests that I currently have or have had in the past, some I'm a bit unsure of but whatever! Anyone relate?
- I used to play with playmobile A LOT, I asked for more for my bday every year, I got an extension to my house. Loved the stuff. (I would always set everything up and then be done playing lol)
- singing, I was in a choir from ages 5-14 (with a brief break bc I had to take swimming lessons) then I joined a small church band and took singing lessons, when I moved I also made sure to join a new band, did that for like 9 years (this meant performing once a month and practice every week for 9 years, with more busy periods as well). I only recently decided to quit bc of multiple factors but I think I've let go of singing as a special interest .
- gymnastics, did that for 13 years, at some point I trained 3 hours per week and assisted 2 more hours. I wasn't very good, but I managed to get a nice score on my level. I was afraid I'd fall/hurt myself 90% of the time. Idk how I kept up with it for so long.
- the sims! My parents got me ts3 when I was around 9 yrs old. I'm in a bit of a sims dip currently but could play ts3 and ts4 for entire days without getting bored for years on end. I still watch a lot of sims 4 content and know a lot of lore and hacks etc.
- Just Dance (2023). I always liked dancing, but it was when I saw a JD streamer when I decided to get a switch and JD2023. I play pretty much every day for at least 30 minutes and love learning more about the lore and can't help sharing it with people if we play together.
- sewing, this one has its moments. But there were a few weeks when I was just sewing almost all day long after coming home from uni no matter how tired I was, I was desperate for more projects. I'm currently working on a quilt.
- werewolves/vampires, I was obsessed with them when I was in high school. I read all he fics on wattpad and tried writing my own xD. I watched a lot of shows on Netflix in lightning speed as well. These days they're cool but I'm no longer as taken by them.
These are just a few from the top of my head, there might be more, especially from my childhood. Let me know what your special interests are! Maybe we have some in common?
I’m done hating myself! I’m done hiding my autistic traits! I’m done with feeling ashamed and unloveable! I am worthy. I am worthy. I am worthy.
This makes me so happy to see! This summer I started a WIP with an autistic protagonist and it’s been such a relieve to just write about things based on MY experiences and MY way of thinking without worrying about how an allistic person would think and go about things
for my birthday I want y'all to do me a favor
do something nice for yourself!!!
And enjoy this picture of my cat
I’m Still Autistic Even Though…
Neurodivergent_lou
It’s poll time again! I’m curious to see how it compares to myself!
How do you get most of your inspiration for your fics?
The world at large
Songs/art pieces
Movies/TV shows
A mix of all three
Other (put it in the tags)
Personally, it’s a mix of all three for me!
- Sabel ✨
Autism: A Senior Perspective
Recently there was a post on here where someone was saying how everyone automatically hates us because of our autism. How they may act nice to our face, but trash talk us once we’re out of earshot. How everyone will abuse, even kill us, because they can’t stand our autism. I replied that they were just wrong about that. That everyone doesn’t automatically hate us.
The more I thought about it though, the more I saw this was an opportunity for those of us who are older and are autistic, to share our perspectives, our experiences. I think it might help those who are young to know what we went through, how we coped, how our lives have turned out. Most importantly that it can get better.
I’ll start:
I’m 62 years old. Looking back with what I know now it’s clear that I was definitely autistic as a child. Today, my teachers would have pressed to get me tested, but in the 1970s, well autism wasn’t on anyones radar. I doubt my parents would have gone along with that anyway. They were the, “Straighten up and do what you’re supposed to”, and “Boys don’t cry” attitude so common of their generation. I had significant trouble with social interactions, I stuttered, and fought like hell to not melt down in loud and overwhelming situations. Public school was unfortunately full of those. I liked procedure and process, there was a right way and a wrong way to do things and I would get upset if someone broke ‘the rules’. I would obsess over particular subjects. Actually I drove some of my teachers nuts. They would give me a writing assignment and I would turn in a top quality report, but I would have somehow twisted what they wanted into what I wanted to write about.
High School was very confusing. People started dating and going to dances, and all that. I kept asking, only half as a joke if I had missed a class or something because it was all so strange to me. I went off to University and really did well there. My grades weren’t good, (I had to work well over full time to afford to stay in school) but I loved academia. The order, the quiet of the library, being able to study a subject that I was totally onto because I had chosen it as my major. The people I worked with, at all of my jobs, grew to understand my ‘quirks’ and were fine with them. I only wish I hadn’t had to work so much. My middling grades meant that by the time I graduated, I was mentally exhausted, and didn’t qualify for Grad School.
So, I got a job and had to move across the country. There I met someone who I have spent the succeeding 36 years with. They understand me, accept that sometimes I’m a bit odd. Sometimes I react badly to things. Sometimes I just have to say no, and they roll with that.
So I’m now approaching retirement. In the last few years I finally figured out that autism was the reason for all the trouble I’ve had over the years. I’m not lazy, or dumb, or anything like that, I’m autistic. I’m neurodivergent, and that’s the way it is. The worst time frankly was in my childhood and my teens. Since then I’ve learned how to deal with the world. I’ve found people who like me for me, people I don’t have to mask or put on an act around. I’ve found other autistic people and am not the only one anymore. I figured out what jobs suited my talents, and limitations (Retail? No! Computer Wizard or someone who makes things work in the background? Yes!) I’m approaching retirement and honestly things are going pretty well now.
So fellow Autistic Seniors, (That is to say anyone that thinks of themselves as older than most), what was your experience living your life as an autistic person? How have things turned out for you? What advice would you give to children or teens that are struggling to cope?
Autistic Terminology
I CAN Network Ltd
My journey studying with Autism (higher education)
Not sure if this is going to help anyone, but I wanted to share some of my experiences studying with autism (in the Netherlands specifically). I guess I just want to show, even though I'm doing well academically now, there is more to that than just being smart, I had to grow a lot before getting where I am today. Buckle up; it's a long one. (disclaimer after writing: it doesn't focus a lot on autism explicitly, but it definitely had a lot of influence)
tl;dr: I had a number of struggles, made some decisions, and am doing better now! First, some context: in the Netherlands, there are several forms of higher education; the ones that are important in my story are Universities of Applied Sciences (or: Higher professional education. HBO in Dutch) and Research Universities (WO in Dutch). As the name implies, a WO focuses on research, thinking analytically and critically. It has higher entry requirements than HBO. It has a relatively high teaching speed and requires a lot of self-study; in general, it is considered a lot harder than HBO. Study programs at an HBO are more practical, and your future profession is a lot clearer from the start (the programs are more specific), and there is more supervision (and, in my experience, group work, though this may vary).
Without getting too much into the Dutch educational system: I followed the 6-year program that would allow me to go to a WO immediately after high school (at the age of 18). I chose to study history and then do a masters to become a high school history teacher. I also started a part-time job in September. I had to travel for a little over an hour to get to class. And... I had no idea I have autism.
year 1
I loved it. I loved the academic environment, learning all the new things, and going to classes. At first, things seemed great! Until exams came around. Even though I had been making my homework passionately, I didn't pass any of the three exams. (Do note that I had to pass 9 out of 12 courses to be allowed to stay in the program, so missing the first 3 already was a big deal). The student councillor wasn't too worried. He told me to follow a course on study skills (which helped a lot! I do recommend looking into the resources your school offers, I paid maybe 5 euros for 6 sessions of coaching). And he told me that if I was worried about the 9 out of 12 rule (BSA for those familiar with the system), I could unenroll before February and try again next year. Even though my study skills improved, I didn't have enough time to apply them in the second block, so I also failed those 3 exams (and the resits). I also felt like I needed a break, I was so tired and decided to do as the student councillor had advised: I unenrolled before the start of the 2nd semester.
year 2
I spent the next semester putting in a few more hours at that part-time job I mentioned earlier and even got more responsibilities over the summer. I also decided I wanted to move out and live in the city where I was also studying; it'd save me about 3-4 hours of travelling every day. I moved into a little studio that summer. I kept my job in the town I came from. The first semester went by pretty smoothly! I failed 2 classes but was probably able to pass them during resits. I was tired a lot and spent more time on the part-time job than I wanted, so I quit (maybe the semester didn't go by as smoothly as I remember, lol). The second semester started in February 2020, and a few weeks in, we went into lockdown. Tbh, the combination of having quit my job and having no obligations besides doing my homework and showing up for online classes was great. It allowed me to rest and focus on my studies (which I was still quite passionate about). (I know a lot of people had a terrible time during lockdowns and had very negative experiences due to covid. I count myself lucky that I didn't). I passed all my classes that year and moved on to the second year (out of three).
year 3
I was doing a lot better at this point. I felt capable and even became a student mentor for the upcoming first years (I had to show them around the campus once and just be available to answer basic questions. Because of covid, we had a weekly check-in online).
I also moved to a bigger studio during the first term, it was hectic, but I managed to write the two essays that needed to get done and passed both with a good grade. HOWEVER. My mother had gotten slightly concerned and started wondering if maybe I had autism (like my 2 brothers and both my parents...)(for context: my mother is a kind of social worker who specialised in autism, so she was making a VERY educated guess) because little things seemed to stress me out much more than is considered 'normal'. The second term was terrible. I had no idea how I was supposed to write my essay, and the teaching style did not at all match my study style. I spoke to the student councillor again and cut down on the workload. At the end of the first semester, I was put on a waitlist to get a diagnosis, and I also applied for additional financial help because I was not able to have a job while studying (because of the suspected autism). During the second semester, things went downhill quite quickly. I was tired and had lost motivation. In April, I decided I would switch study programs and go to an HBO after the summer and follow the English teacher program there.
Year 4
Things were very different at HBO. I actually felt like I was back in high school. My co-students seemed to have much less discipline than me, and most were a few years younger. I am fairly certain that people thought of me as a teacher's pet (which I am, tbh) and possibly a bit arrogant because I was not shy in letting people know I knew the answer. I quickly noticed I had a big advantage in multiple facets: study skills, self-discovery, English proficiency (my history courses were all in English) and history (specifically British and USA). This allowed me to focus my energy on other things: such as adjusting to the new social situation, my new relationship (I met him at the teaching program, lol) and getting a diagnosis. I passed all my courses in one try, except my speaking exam (pronunciation is my weak spot, I passed the resit). I didn't have time for a job or a lot of extracurriculars, but I managed to get through the year pretty well with good grades. I also was officially diagnosed at the start of the second semester. year 5
This was the past year. It was tough, but again, I managed to get through the year with good grades. Do I think I could keep up a full-time job as a teacher? Maybe not the best idea if I also want to have a social life. But I feel like I am getting the hang of things and am getting more aware of my needs (especially in relation to my autism). I did experience a lot of stress the past few weeks as I had to finish a few reports and am looking for ways to get help with reports I have difficulty with. Making the decision to go from WO to HBO was quite scary. It was not what I had in mind, and it'd mean adding a whole lot of years to my student debt (we actually have an okay system here). During this year, I was actually able to have part of my student debt erased, so that was a big relief. Idk how many of you will make it to this point of the post. And I don't know if any of you got any wiser from reading about my experiences. I hope it gave you some hope that not everything has to be perfect from the start. It took me some time to find out what was best for me; it's okay if you need more time. Anyway, I might make a post about what it is like to study with autism. If you have any questions about: - studying in the Netherlands (with or without autism) - picking between WO or HBO - what regulations I applied for to get additional funding and have part of my student debt erased (these are regulations for Dutch students with disabilities, not just autism) - or anything else you think I might be able to say something useful about feel free to leave a comment! (I am fluent in Dutch, so if that's easier for you, that's fine!)