melbird @melbird - Tumblr Blog

i dont mean to victim blame but why do these vampires keep talking to daniel molloy when they know he's daniel molloy

throwing this one in the tags for visibility but how do y'all handle drinking/eating/doing things while in bed on your side or back? i can't sit up in bed even to do those things most of the time and it's making a mess for the things i'm even able to do (i'm barely able to use my laptop like this). dyspraxia is probably not helping but i think not having the option to sit/stand up and do things is affecting basic stuff like that pretty heavily at the moment

m-e-isannoying

Okay, this is gonna be a bit long probably...

Drinking:

I use normal drinking bottles (mine are the plastic ones from sigg) when I'm doing okay or for stuff that has sugar.

I also have a bottle with a hose (?) (like those things you use for hiking where the bag with water is in your backpack and you can drink from the hose without having to get the bottle). This is really good cause I can drink relatively independently even with relatively severe muscle weakness.

Stuff with soup like consistency:

I drink protein shake from a shaker. It's similar to the bottles and I can drink it on the side and on the back.

Eating soup with a spoon while lying down doesn't work too well...

Eating:

I have a bedside table that can be on the same height as my adjustable bed. Most of the time I eat while lying on my side. Sometimes I put the plate on my chest, when I can only lie on my back. Rarely, someone needs to feed me.

Doing stuff:

I mostly do stuff on my phone (like drawing, writing, organising etc.). I also have a laptop in a laptop holder that's attached to my bed. Friends mostly sit/lie on my bed. Knitting is pretty easy to do while lying in bed.

I kinda have a long post about creative stuff and so on as a bedbound person and there is another link to the bedbound master list somewhere in there.

💬 12 🔁 6 ❤️ 33 · The Bedbound Activity Masterlist: Part 1 · My answer is a bit long... Remember to pace during reading if you need to and

Hope that helps!

melbird

thank you for your reply! it'll be good to have a look through that and see what things could help. i think some of it isn't stuff i could do unfortunately (i was using bottles before but negotiating that with carers was tricky for me) but it's nice to have a starting point, to have options and to not feel quite so alone dealing with all of this. i haven't gone through all the resources you've linked yet (i think that might take some time) but i appreciate you having spent so much time to consolidate all of that together

#i guess a weird part of this post is the dual purposes of trying to see what other people do and what i could be doing #which is hard to negotiate #i don't really know what i'm doing #migraine is making words hard sorry

managed to argue the gp into giving me more oramorph "for emergencies, when you'd end up in hospital otherwise". yes! that is exactly what i asked for! and what the hospital originally prescribed them for! glad we're on the same page now!

#i do have to keep a stricter medication diary now to track the oramorph + tramadol usage to demonstrate to them that i'm doing it right #and because i want a part slow release for the tramadol which they don't really want to do despite it being more sensible for flexibility #because if it's slow release 24/7 my sleep schedule will fuck that up and also i have to take the maximum dosage at all times #there's never a time where i'm guaranteed to be awake anymore. even the carer slots are fuzzy #head cloudy something something i forgot

maidslime

Ok like. Imagine life without ads. You wake up, check your messages across a variety of apps, no ads. You get up and put on the tv while you prep your breakfast, no ads. Maybe you drive somewhere and switch on the radio, no ads. Maybe you drive a long distance, yet somehow, not a single billboard on your path. You pick up a newspaper or magazine to pass the time, no advertisements only articles. You turn on your game console, the home screen is just about your games, no ads to buy more. You open a streaming app, you don't pay extra for no ads, there's just no ads ever.

Think about how much of your time is spent looking at ads. "Download ublock" yeah I know, I have. But that doesn't change that the world is covered with endless advertising. Imagine never seeing that again. How much better our lives would be.

vixvigil

it’s never a normal temperature anymore it’s always some fucking bullshit

throwing this one in the tags for visibility but how do y'all handle drinking/eating/doing things while in bed on your side or back? i can't sit up in bed even to do those things most of the time and it's making a mess for the things i'm even able to do (i'm barely able to use my laptop like this). dyspraxia is probably not helping but i think not having the option to sit/stand up and do things is affecting basic stuff like that pretty heavily at the moment

#cripplepunk #cripple punk #physically disabled #physical disability #bedbound #← not fully in my case but that's the crux of the issues #please do not give advice if you have not experienced this personally #actually getting the food/water/etc is sorta okay given the carers can help with that but i'm at a bit of a loss for anything else #maybe i need to buy new straws because the only ones i have are hard metal ones which seem a lot less helpful for this purpose #advice wanted #head cloudy something something i forgot

ughhhh telecare is going to take longer to fit than i thought i really hope this spate of pain and getting stuck doesn't result in me going to a&e before then

#maybe the keysafe will be faster. we'll see #i came off hold while typing the last post thus the times. was on for a good while though #think i have to do occupational health tomorrow though that'll probably take too long to do while still waiting for a call from the gp #sigh #head cloudy something something i forgot

on hold to the telecare team gotta ring to self refer to occupational therapy have a gp telephone appointment some time this afternoon. so many calls to do

#got discharged from the occupational therapy team i was with because that was a short term service and i need things that they couldn't do #namely positioning in bed and properly sized compression stuff for my ankles #telecare needs to fit a keysafe first and then fit the telecare system #so many things to do and to be done and to wait and wait and wait #how many outstanding referrals do i have at this point. at least 5 not including occupational therapy or mental health stuff #got the appointment tomorrow morning i still don't know if i can do #fuck me.#head cloudy something something i forgot

wifegideonnav

gonna be honest i don’t know how many more ‘enter the 6 digit code we sent to your phone’s i got left in me

wifegideonnav

gonna be honest i don’t know how many more ‘enter the 6 digit code we sent to your phone’s i got left in me

so i can't stand up again. that's great.

#i feel sick it's too hot i haven't eaten enough and i need the bathroom and can't get up. kill me #going to have to ring the gp in the morning but even if i convince them to give me the stronger meds they won't arrive until tuesday #at which point would i even be able to get them #i can't have this happen just before getting the keysafe fitted i will scream #head cloudy something something i forgot

melbird

i think the word slop for me is what moist was in the 2010s

melbird

people calling things brainrot also falls into a similar category

#maybe i just hate what it signifies but i do fully hate the word slop #brainrot does have the weird veneer of ableism on top of that though so they are distinct causes of anger in my soul #head cloudy something something i forgot

i think the word slop for me is what moist was in the 2010s

#it causes such an irrational hatred in me. i hate it i hate how it sounds i hate what it is #the word slop is 95 times out of 100 worse than whatever you're calling slop #i hate how many times i'm having to write and read it to get the point across #head cloudy something something i forgot

phleb0tomist

this disability pride month, consider branching out. learn a bit about a disability you don’t know much about. donate to a charity for a condition that doesn’t affect anyone you know. speak up for and value the lives of the disabled people who are so isolated you’ll never meet them, people who are institutionalised or can’t go outside or speak or type. show some love to disabled strangers in any way you can.

parakeet

PlayStation putting out a legal notice saying they’re removing 500+ movies from user accounts days before announcing they’re getting rid of physical discs for games is an interesting choice

#they actually proved exactly why digital only is terrible for consumers just before forcing that as the only option. damn #not in the market for this anyway (i do not have the money to drop on a console) but wow #overtly anti consumer practices #undescribed

beeelderly

not doin any of that mr ms mrs mx business . unfortunately i dont have a robust enough academic or medical background to be called doctor. but i could go by Mt. aka mount. aka mountain. the only thing you can glean from that is that im big as fuck

#ME #if i had to use a title mt would be great honestly #that's so funny and tongue in cheek also

puppy-error

the top photo was my first attempt at embroidering the hearts and top scars and then I made the second one using the trans flag for the top scars :3

#i love this design! it's so unique i've not seen something like this before using top surgery scars and the embroidery is lovely #very cool :)#undescribed

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melbird