Migraines all day

Sarah Reneé Black & Queer 🌈 BLM✊🏽 Chronic Migraine - Endometriosis - Anxiety Transracial adoptee - BIPOC Patient Advocate at GHLF; thoughts are my own

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Surviving Flu Season as a Nurse Practitioner with RA

Learn how a nurse practitioner with rheumatoid arthritis keeps her immune system strong and stays protected during the "tripledemic."

This winter has brought unprecedented illness. Coined the tripledemic, this trifecta of COVID-19, influenza (the flu), and respiratory syncytial virus (RSV) has overwhelmed the health care system and caused fear among many of us in the immunocompromised community.

As a family nurse practitioner with rheumatoid arthritis, I work with sick patients daily, one-on-one (yes, often face-to-face), but I’m taking steps to protect myself. Here’s how I keep my immune system strong and stay protected during these pandemic times — hopefully these tips can help you, too.

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Travelling with Friends When You Have Rheumatoid Arthritis 

Patient advocate J.G. Chayko shares the lessons learned when traveling with friends who don’t have a chronic illness.

“I’ve known my friends for a long time, but we don’t live together. They don’t see the rough mornings or my bad flare days — they don’t see me in pain or struggling with fatigue. It’s a different kind of intimacy.”

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What to Do If You’re Immunocompromised and Were Around Crowds for the Holidays

You may try to take every step possible to mitigate your risk of contracting COVID-19 or the flu if you’re immunocompromised and high-risk for complications, but sometimes, certain risky situations are inevitable — especially during the holiday season.  

Perhaps a loved one you celebrated with tested negative for COVID-19 before seeing you, but later developed symptoms during or shortly after your visit. Or maybe your flight home got canceled and you spent more time waiting around crowds than you anticipated. 

“We do expect some people who’ve been traveling to have acquired infection during their holiday sojourn,” says William Schaffner, MD, professor of infectious disease at Vanderbilt University Medical Center.  

However, there are four simple steps you can take to protect yourself. Importantly, don’t be hard on yourself: It’s difficult to avoid all COVID-19 or flu risks, especially as the general population continues to shed masks and largely returns to the normalcy of pre-COVID times.  

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15 People Share What It’s Like To Be COVID Cautious—When It Seems Like Everyone Else Has Moved On

People share about what it feels like to be cautious about COVID-19 right now when a lot of the world has moved on.

I feel resentful for missing out

"I am 22; this illness has colored my entire adult life thus far. I think people look at Gen Z and wonder why we are so weird. I don't really see any mystery, though: What we thought were the adults responsible for us just… gave up. Gave up on COVID, doing nothing about the climate. I don't know… I am COVID cautious, but I feel resentful about missing out when I don't even know if I have a future to grow old and sick anyways."—Allie, a barista

Whether you're the only one in your friend group that turns down invitations to crowded parties or you feel like an outsider for wearing a mask in the grocery store, being cautious about COVID-19 (for whatever reason) can be downright challenging right now. Just know that you're not alone—there is a whole community of like-minded people out there.

I feel like I am living another reality

"It can sometimes feel like I'm living in another reality. Everyone else keeps moving just like they did three years ago, but that's not the case for me and my friends. It's hard to see folks go "back to normal" when my "normal" is so much different. It's disorienting and makes me so mad."—Erin, a chef

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🤦‍♀️🤦‍♀️🤦‍♀️🤦‍♀️

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One of my favorite things about winter is that if you don't have the energy to wash your hair, you can just put on a hat and people will simply assume that you were cold. Life hack.

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I'm too old to be using store electric scooters for fun and games bro I got no stamina to walk around ALL of Target. Leave me alone 😤

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my disability: disables me

me: :0

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friendly reminder that you don't need any diagnosis or disorder to adapt your routine to accommodate you! sit down in the shower. brush your teeth and wash your face in the shower. bring a chair to the kitchen while you cook. use unscented products. your routine should be built for you.

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Grey’s Anatomy S09E03

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Last Week Tonight With John Oliver | September 11th, 2022

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Psoriatic Arthritis Wellness Center

Coping with PsA symptoms like pain and fatigue often requires more than just medication. We hope you can use our resources as part of your R

You’re here because your health care provider wants to give you more information and tools to live well with psoriatic arthritis. This resource is from United Rheumatology, a nationwide organization for rheumatology practices that your doctor is part of, and CreakyJoints, a patient advocacy community for people living with arthritis and chronic illness. CreakyJoints is part of the nonprofit Global Healthy Living Foundation.

Coping with psoriatic arthritis symptoms like pain and fatigue often requires a combination of taking medications and making lifestyle changes. We hope you can use this information as part of your PsA treatment plan to manage symptoms and incorporate wellness tips into your lifestyle.

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8 Inflammatory Bowel Disease Patient Advocates Share Their Stories to Raise Awareness

This Crohn’s and Colitis Awareness Week, advocates share their daily struggles with IBD — and how they’ve found support within the community

This Crohn’s and Colitis Awareness Week, advocates share their daily struggles with IBD — and how they’ve found hope and support within the community.

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PSA: Please get the updated bivalent covid shot and the flu shot!

In the US, only 12.5% of people over 5 have gotten the new covid vaccine which protects against omicron. If you remember from 2020 and 2021, winter will bring likely surge of cases. The more people who are vaccinated, the less severe cases and deaths, and the less likely our already overwhelmed healthcare system is to get completely swamped. If you haven't already, please go get the vaccine and protect yourself and community.

Also, get your flu shot! Flu cases are already looking to be very high this year (about 18.1% positive testing rate as of November 28th, as opposed 3.6% from a normal year, as listed in the Vox article). Flu can always be a serious illness, but it's especially important this year to get vaccinated.

There are people who can't get vaccinated and they are often the people most at risk of serious illness from both covid and the flu. Please help lower their risk by getting vaccinated.