Nancy's work is always on point, but today? Damn!!! #fierce #nails #nailart #seahawks #12thman (at Center Nail Issaquah)

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@missunderstoodcrohnicles
Nancy's work is always on point, but today? Damn!!! #fierce #nails #nailart #seahawks #12thman (at Center Nail Issaquah)
I haven't posted a #getyourbellyout photo in quite some time. This will be my 2nd summer #postsurgery and though sometimes it's a little more effort with an #ostomy, nothing stops me from enjoying my favorite season!! Thankful yo have been dealt the life I have every day. #summer #boating #ileostomy #crohns #warrior #sundayfunday #pool
Can't complain about this kind of life at all!! #ford #f150 #wesley #truckcleaning #chelan #summerdays #myhometown
Just a girl and her #dog!! And her #ostomybag of course. Damn proud of it!! Thankful for each and every day that I am alive and #healthy!! #Chelan #summerdays #Wesley #sundog #ostomy #ileostomy #crohns
So far, #2016 has been a year of #newbeginnings for me. #Wesley and I made the move to downtown #Seattle, somewhere I have wanted to live since I was a little girl. Wasn’t anything I ever thought would happen, especially with the direction my life was headed over the last several years. I am more in love with this city and my life than I ever bought possible. In March I officially left my 20’s behind me and celebrated a fantastic #Dirty30 with some of the best friends who have been with me through my many life adventures so far. Don’t worry… there are plenty more to come. While on my birthday trip I met some incredible people that I foresee a lifetime of friendship and traveling with, hopefully with my already travel girls from home next time. #travelfam In my path for new beginnings I decided to spice it up a bit and add a little color to my hair. Did I mention “virgin” hair that has never been touched by hair dye in 30 years? My hairstylist of 20+ years has seen me through so many aspects of my life and is one of my best friends. #newhair As for my health, I am at a point where I am the healthiest I have ever been. This does include, however, adjusting to also weighing more than I ever have. A year ago I was struggling to accept and adjust to life as a new #ostomate. I have had quite the life journey since that time. Over the last couple of months, however, I been dealing with skin issues caused by an allergic reaction to the #ostomy supplies I have been using for over a year now (Hollister). It has been two months of multiple rounds of antibiotics, trying a multitude of new products and different techniques, and a number of breakdowns caused by frustration. With help from my #ostomynurse, I finally found a product that seems to be working so far. As of today I have completely switched to the new system (Coloplast). I am so excited to continue growing in my career and am proud of my progress. I am now within just a couple shorts months of my Commercial Appraisal State Certification. Just a couple tests to take and study for the state exam. So here is to new beginnings and fabulous 30s. I can’t wait to see what life throws at me next. (at Seattle, Washington)
It was time ... Time for a change!!
What do you do when it's 2 AM and you can't sleep?? Me? ... I prep Ostomy supplies for my next 20 bag changes as needed. #myocdisshowing #grabandgo #ostomy #ileostomy #crohnsdisease #crohnie
One year ago from today I went under the knife to remove another small portion of my intestines that was fully of scar tissue and causing blockage problems.
One year ago from today was a major step in my life as I had fought for so long to avoid another surgery.
One year ago from today that surgery took a turn for the worst.
One year ago from today my family was forced to make a life saving, ever life changing decision for me.
One year ago from today, after being in surgery for nearly 8 hours, I woke up to my worst nightmare... My surgeon telling me that I had an Ostomy Bag.
One year ago from today I thought my life was over.
And TODAY, today I can say that I am as healthy as I have ever been. This last year has been an emotional roller-coaster, but I've been able to do things I never thought I would be able to. At this point I still don't know if I will every be able to have a reversal surgery, but until then I am going to continue living life to the absolute fullest.
Cheers to you Stormy Stoma, Happy Stoma-versary!
#ostomy #ileostomy #stomaversary #stormystoma #livelovelife #livelifetothefullest
Quite the afternoon of sunshine, a little fun shooting and 13-hour smoked brisket!!!
I don't know if anyone else knows, but this girl and I go waaayyyy back!! D you've been there for me at my highest of highs and lowest of lows. What other friend would come snuggle with you in your hospital bed right after major surgery??And bring special goodies to keep your mom sane at the same time?? You're an amazing woman and I'm blessed to call you my best friend. Hope you have an amazing, wonderful birthday!!! 🎉See you soon 💕
It has been quite some time since I have written anything or shared my story. I figured what better day than #WorldOstomyDay to share #MyOstomyStory. I have had #crohns for 19 years. Tomorrow markets the 9 month anniversary of my surgery, a day that has forever changed my life. It was the day I went under the knife to have a small, scarred portion of my colon removed and woke up to my worst nightmare, my surgeon telling me that things did not go as planned and in order to save my life he had given me an #ileostomy. Oh the horrors that ran through my head at the time and the amount of tears that were shed. After a few self-pitying moments, I decided that I wasn't going to allow my #ostomy to stop me from living my life. I can't tell you how many blogs and stories I read in the first couple of months after surgery, some quite dark and depressing, while others were oh-so-positive and uplifting. So far I have started my own blog, traveled quite a bit and have even done some things I had never imagined doing before. I'd have to say that the last few months have been a crazy roller coaster ride for me with major changes in my personal life and my professional life. I am making major strides at work toward my certification as a commercial real estate appraiser and taking on new projects, in the process of buying a house and continuing to be the social butterfly that I am. #StormyStoma #worldostomyday2015 #getyourbellyout #ostomyawareness #ostomate
Ostomy tips for Sexy Time
I’ve put together a few things that I have found helpful during sexy time with an Ostomy!!
wear what makes you comfortable: Full nude, wear a wrap, crotchless panties from vanilla blush, lingerie.. whatever you like. You can always ask your partner what they would like to see you in as well. I feel sexy in the crotchless panties but they only come out once and a while to keep it fun ;) I like a wrap if it’s already on or if I have my tank top on I will slip it down into a wrap just to keep it from flopping around. You can also tape the bag up in half to itself or some products like the Sensura Mio have a midline velcro in the front that works great for sexy time!!
be confident: if you have a confident attitude about your stoma then your partner most likely will too. YOU ARE STILL SEXY! so be you and be sexy ;)
don’t fiddle with it: try not to touch your bag or fiddle with it during sexy time if you don’t have to. Ignore any crinkling bag noises, gas, don’t keep looking at it to make sure things are in place. All this will be distracting to you and your partner. Just do it, lol.
wear a small bag: most companies have multiple bag sizes. I find a small bag helps my confidence.
do an empty: I prefer to have an empty bag if I can, this helps my confidence. I don’t always run for an empty tho, you learn to judge the situation. Yes, it can spoil the mood slightly but nothing would spoil the mood more than you being self conscious about a full bag or a leak.
be the initiator: if you’re the one starting it then you’ll be ready to go; bag’ll be empty, or maybe a new flange/bag, wrap on or whatever works for ya. tada sexy times!
everyone has gas, just go with it: so your stoma decides to get noisy during sex… It most likely will actually, since you’re moving around and things are involuntary. I know if I’m on my back you can guarantee some funky alien noises. In the beginning we used to laugh (mostly because I would start laughing) seeing it was all so new for us but now we just carry on. A wrap can help to muffle things a wee bit.
try different positions: we are all different but you may find a go to position for a given situation. For example if my bag has some output and sex is initiated in bed then I tend to prefer a side position so I don’t have to interrupt things with an empty. A side (spooning) position allows more support and keeps my bag out of the way.
love your stoma: loving your stoma may not come easy to some. I think if you can come to terms and love your stoma then the confidence will come with it. I really do think it’s pretty darn amazing that our intestine just chill’s there; outside our bodies!! We are amazing!!!
Having an ostomy does NOT mean you can’t have a regular sex life. For me, what hinders my sex life the most is all my abscessing issues in my rectal/vaginal septum.
Feel free to comment and add any tips you have found helpful along the way. Hope some one finds this helpful.
Much love <3
Jen
When people finally understand the awesomeness of having an ostomy
Let me tell you about my life with Stormy Stoma!! #cda #boatlife #lifedoesntsuck #Ostomy #ileostomy #ostomate #Crohns #livingthedream
positivity is cool and all but repressing negative feelings is toxic to yr mind and body. dont feel guilt for having an array of emotions. its corny to fake positivity when it isnt sincere, feeling stuff even bad stuff is nothing to be guilty over. its okay to feel bad sometimes
From a rant to post of positivity. I purchased these boxes a little over a year ago. Not only do I love the looks of them, but the positive messages are something I enjoy looking at each and everyday. These boxes have now become the home for my Ostomy supplies and accessories (yes, accessories). Each and every time I open them for a bag change I get a face full of positivity!! Reminds me how lucky I am to be alive and to be able to live this amazing, somewhat crazy life. What's your daily dose of positivity?! #ostomate #ileostomy #ostomy #Crohns #positivity #survival #survivor #livelifetothefullest