Quick reminder : You are allowed to make a big deal about things that are important to you.

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@nyangpire
Quick reminder : You are allowed to make a big deal about things that are important to you.
🥰 Self care ideas 🥰
5 minutes
Brush your hair
Drink some water
Light a candle
Listen to your favourite song
Check in with someone you love
Dance like crazy
Smile
But yourself some flowers/chocolate
Hug someone
Breathe deeply
15 minutes
Have a shower
Put on a face mask
Go for a walk
Stretch
Make a smoothie
Call someone you love
Pamper yourself
Do a short meditation
Watch the sunrise
Diffuse essential oils
Write in your journal
60 minutes +
Binge watch a funny show
Spend time with your friends
Create a positive vision board
Have a massage
Read a book
Listen to a positive podcast
Put down technology
Organise your wardrobe
Paint a picture
Cook/bake
Have a spa day
Sleep
Go for a long walk
If you can't control what's happening, control the way you respond to the situation. That's where the power is.
“you are still learning. you are still changing. you are still growing. breathe. you will find your way.”
— Unknown
Chronic illness moment: obsessing about how/when you first got sick. Wondering how things could have been different. Even not knowing the exact moment so trying to speculate about when things went from normal to having symptoms
If you feel useless, please stop scrolling for a moment
I want you to know that it’s okay if all you managed to do today was breathe.
It’s okay if you didn’t manage to get out of bed.
It’s okay if you didn’t get that piece of work done.
It’s okay if you couldn’t socialize today.
I’m proud of you. Tomorrow is a chance for a fresh start. Stay strong and be safe.
it can be hard to keep putting the positivity you read into practice, especially when it’s not your automatic thought process, and that’s okay. your mindset won’t automatically change right away, but with time and patience you will be able to start putting these kindnesses in practice more naturally.
you don’t owe people an explanation of your boundaries.
let yourself rest. let yourself heal. let yourself take breaks. you deserve to be taking care of yourself.
you know what i find infuriating? when you see a healthcare professional, you have to walk a very thin line as you talk about your symptoms and conditions
if i don't baby myself down and use smaller words or talk as if im unaware of parts of my condition (which i am very knowledgeable about) they will dismiss my concerns, assuming im a "google doctor" hypochondriac rather than an intelligent disabled person
i asked my intake nurse at an urgent care today (waited 3 and a half hours for a uti diagnosis btw) what specialist she would recommend for my joint dislocations because they were staying out longer and it hurts
she looked at me and said "Oh I don't know sweetie. I thought you were going to say arthritis, but there's a very long word for what your joints are doing."
ma'am....i know what a subluxation is i just wanted a provider recommendation
honestly as soon as you let them know you're disabled they assume you are just a dumb sweet little baby and the moment you demonstrate any medical understanding of a condition YOU HAVE they get combative and will actively work against your attempts to receive adequate care
and in this case, i apparently did not act "stupid" enough, because they failed to tell me a word i already knew, or that my lab results even confirmed my uti, much less that it was severe enough to be with hematuria- i had to ask for confirmation after she rattled off the prescriptions she was sending and read my discharge papers for my full diagnosis
tl;dr Healthcare providers: stop treating chronically ill and disabled patients like they are not smart enough to be engaged with like the adults that they are
(this includes people with mental and learning disabilities too)
friendly reminder that being disabled is a full-time job. don’t let anyone make you feel bad for not working when you are physically incapable. you work harder than anyone else just to keep up with your day-to-day life.
friendly reminder that being disabled is a full-time job. don’t let anyone make you feel bad for not working when you are physically incapable. you work harder than anyone else just to keep up with your day-to-day life.
I am too young
-a poem about living with chronic illness at a young age-
I am too young
That's what people say
Too young for this body
That I battle everyday
I am "too young"
Too young for such pain
My youth contradicts
My mournful refrain
My skin is still soft
My face not yet aged
Untouched by wrinkles
My bones seem unscathed
But my eyes are dark
And my soul is old
My mind is troubled
And I am perpetually cold
Beneath my skin
There are things you don't see
I am young and in pain
That is hard to percieve
For I no longer cry out
I no longer grimace
I don't write pain on my face
For all to see and listen
These are old wounds
I've forgotten exist
But they have not forgotten to hurt
They are now quiet and listess
I am too young
Too young for dark thoughts
That's what I've been told
Though I've learned I am not
Where is this child
I'm told I contain
This healing youth
That makes me immune to pain
Perhaps I am old
Or perhaps you are wrong
To assume that I'm fine
Just because I've been strong
I've seen pain
I've looked in it's eyes
It does not discriminate
It is often disguised
But I've seen so much hatred
And I've also glimpsed death
So long as I avoid them
There is still some of me left
How it Feels to be Left off The List
How it Feels to be Left off The List
I have ME/CFS. A poorly understood neuroimmune condition that is often triggered by and exacerbated by a virus. With ME we are entitled to a flu vaccine. We have known we are vulnerable but not extremely vulnerable to COVID-19 since the start of this pandemic. Yet many people with ME are not being put in group six or are having to contact MPs, CCG’s and Journalists to get it done because despite…
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There’s been some posts lately about how you don’t have to share everything about your life online which are A+ so here’s a chronically ill/ disability specific version
- You don’t have to put your entire diagnosis online, you don’t have to put any diagnosis online
- You don’t owe anyone a medical history, it is no one else’s business except your own, your doctors, and carers (if needed)
- You don’t have to justify using gait aids, service animals, medications, assistive devices, etc.
- You don’t owe anyone an explanation about your financial situation
- Its not your problem if people think you’re exaggerating or like things don’t add up because you haven’t given them all the information- its their own
- You don’t have to justify how bad it is to say you’re struggling. You don’t have to have the most diagnoses or the most severe symptoms. You’re allowed to complain if you want to
Feel free to add anything else!
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