SpoonieSpawn @spooniespawn - Tumblr Blog

if you are a parent

and your kid has support needs

and you know they have support needs

and you know what those support needs are

and you've worked with them to put a plan together for those support needs

you can not punish your kid for having support needs.

you know your kid needs body doubling to do cleaning tasks? don't punish them for not cleaning their room when no one was home.

you know your kid needs reminders in the morning to take their meds? don't punish them for not taking their meds when you didn't remind them.

you know your kid needs external positive encouragement to complete certain tasks? don't punish them for not completing tasks when you weren't there to help motivate them.

you know your kid needs extra stimulation to fall asleep? don't deprive them of their stimulation method, then punish them for not getting a good night's rest.

you know your kid needs detailed descriptions of each step in a task? don't punish them for missing something you did not explicitly tell them to do.

you and your kid will make mistakes. allow it. embrace it. encourage the weirdness that comes from mistakes. it's how we learn.

don't punish mistakes. don't punish kids for their support needs. remain calm, love them through it, hold their hand, laugh with them. remember that everything you do and say to them in those moments will translate to how they treat themselves and others in the future around similar moments.

#spoonie #disabled #support needs #parenting #spoonie kids

#spooniespawn #spoonie parents #spoonie kids #spoonie #parenting #parenting with a chronic illness #disabled

liberalsarecool

MAGA wants to dismantle the entire Dept of Education.

Virtually every program for students with disabilities will be impacted by Project 2025.

Here's the whole Project 2025, start around page 319 for all their plan to defund every public school across the country.

https://static.project2025.org/2025_MandateForLeadership_FULL.pdf

#spooniespawn #spoonie parents #spoonie kids #spoonie #parenting #project 2025 #iep #education system

Elementary student shows the truth…. Day 65 swinging for 100 days to fundraise for accessible playground equipment. You can help support T

#spooniespawn #spoonie parents #spoonie kids #spoonie #parenting #disabled children

The parents of hundreds of thousands of U.S. children with physical or intellectual disabilities are waiting for state-covered services desi

#spooniespawn #spoonie parents #spooniestrong #spoonie kids #spoonie #disability

Researchers released a study that has identified the first biochemical marker that could help detect babies more at risk of Sudden Infant De

#SIDS #medical breakthrough #enzyme #biomarker #spoonie #SpoonieStrong

Some Brains

This is a book aimed at kids about neurodiversity. Narrated as a neurodiverse kid, with kids of all diversities (ethnic/cultural/religious representation, various visible disabilities, gender non conforming kids and a non-binary narrator...)

The author has previously written Some Girls and Some Boys which are amazing books, and I really want this book. But it has to get funded. Please fund it!

spoonhacks

Low spoon activities for hanging out with a baby

Low spoon day? Still have to be a functional parent? Here’s some ways to entertain your little one when you feel like shit and have to save your energy for diaper changes. My kid is only 9 months old so these are mostly aimed her age and younger but lots of them can be adapted to older kids as well. 1. Sing. When I was recovering from childbirth and couldn’t do much physically I bonded with baby by singing. She’s older now and still loves it when I sing to her. She even dances. Sometimes I do little hand motions for the “itsy-bitsy spider” or “I’m a little teapot” folk songs from my couch perch. 2. Peek-a-boo. This is good for child development via object permanence. Hide under a blanket and then pop out. 3. Talk and snuggle. 4. Read books together. The more new words a baby hears, the better for their budding language skills. Books introduce not just stories, but bonding time, pictures, and object interaction. I use board books because my child is very grabby and destructive. 5. Watch cartoons and cuddle. When you hear you should keep kids away from screen time, the most important reason for that is that it is non-interactive. I believe there is nothing wrong with screen time (in moderation) if it is interactive. Tell the kid what they are seeing, explain the show. Ask them what they like about the characters, even if they can’t answer you yet. 6. Lay on the floor and let the kid interact with you. You don’t have to move around a whole lot to stack blocks or play with plushies or roll a ball around. 7. Bath time. Sometimes I need to soak my sore muscles, so kill two birds with one stone and wash the kid at the same time. Make this into a fun activity with bath toys and playful splashing. (This is best for kids old enough to sit up independently; I bathed her in her infant bath by herself before she was old enough for joint bath time). 8. Just show the kid all the things you are doing and narrate yourself. Babies are fascinated by you.

creativeronica

For my followers who are spoonie parents of infants! 💙💙💙

#parenthood #spoonie

mslifelines

Ever try explaining MS to a child? It isn’t always easy. To help children understand what you or a loved one may be experiencing, watch this animated video—You See, I See—together.

Self-Care for Moms with Chronic Pain. How self-care can help you reduce stress and manage pain + more than 10 ideas to try. Give yourself th

#spooniespawn #spoonie parents #spooniestrong #spoonie kids #spoonie #parenting #parenting with a chronic illness

chicagotribune

Teal pumpkins signal safe Halloween treats for kids with allergies

Halloween can be scary for children with severe food allergies.

But this year families in Chicago and beyond are reaching out to kids who can’t eat peanuts, milk or other common allergens by putting a teal-colored pumpkin on their front porches as a signal that they are handing out treats that are safe.