they say you can't pour from an empty cup but i've been doing it my whole life and aside from all of these mysterious ailments it's working out great for me
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they say you can't pour from an empty cup but i've been doing it my whole life and aside from all of these mysterious ailments it's working out great for me
An autistic person, whether high or low support needs, is still disabled. Just because some of us require less support than others doesn't mean we don't need any support at all.
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Another Month, another ebeg.
I'm a disabled enby taking care of my elderly disabled mother, and we're Homeless.
I'm looking for work and waiting on back pay from babysitting my sisters kids but until that's all sorted Moms SSI is our only stable income.
We've got a room at Motel 6 but we had to spend every cent of Moms check, leaving nothing for food and medicine.
Every little bit of help adds up even a reblog helps because the more people who see this post the more likely someone who can afford to help will see it.
If you cant help please dont feel bad I understand that it's a bad time for everyone, and if you can help please know how incredibly appreciated it would be.
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I really dont see enough people talk about how hard it can be to do things that you enjoy when you're autistic, especially if you have higher support needs.
It's not just that it's hard to do things that have to be done, like managing appointments, grocery shopping, cleaning, self care, eating, communicating, etc. These are important, but at least someone can help by communicating on my behalf, for example.
What can hurt more is... There are so many things I want to and love to do... but I often can't do them because I get overwhelmed so easily. Videogames. Playing with my cat. Watching a video. Listening to music. Making art. Going outside.
All these things can cause autistic meltdowns for me. I can get sensory overload. I can get confused and struggle to do the steps of the task. I can get cognitive overload from excitement. I often have even worse meltdowns with these tasks - I'm not only overwhelmed by the thing, but dysregulated because I love the thing and can't do it.
I love art, cats, music, videogames, nature. They're my special interests, but that doesn't mean they're all sunshine and rainbows. They're not immune from my other autistic traits & symptoms. It's hard being autistic for me, no matter what it is.
I wish more people understood that, and.. if you struggle the same way, you aren't alone. It's okay to struggle with your special interests. It's okay to be disabled by autism.
You're not doing anything wrong. There's nothing wrong with you. You're just neurodivergent & disabled. And even thought that sucks sometimes or a lot: it's also okay. You still deserve support and respect as much as anyone else.
If autistic people need to tell you exactly what they need in order to get help from your org, your org is literally inaccessible to a hugely massive portion of autistic people
This applies to a lot of disabilities and health conditions tbh but I am fucking sick of seeing nurses and doctors and caretakers and parents constantly mistake an autistic person's speech loss for anger and potential violence
does it bother anyone else with complex seating/positioning needs, especially those in custom big powerchairs, how everyone and their mother is doing a brand deal with OAS mobility on their two non custom powerchairs and advertising them as a kinda one-size fits all solution. I'm glad people are getting what they need but I can't help feel alienated, especially on a day (yesterday) where my powerchair and the power assist on my backup (heavy manual tilt in space) chair gave out leaving me in crisis as a full-time (nonambulatory) wheelchair user. Again, I'm happy people are getting things that help them live their lives, and I, myself, wish I would've started using mobility aids sooner than I did before my disability progressed to this point, and I even understand that sometimes people don't have the support to talk to a medical professional or physical therapist about aids. However, using chairs like this long term can cause a lot of damage to people's bodies, and it's hard as someone in a big powerchair to see other people in big powerchairs who are doing this brand deal because (although they don't owe excessive nuance to anyone, even me) it makes it seem like needing accessible vehicles and difficulty transporting complex chairs is solvable by just getting a lighter chair, even though using such a chair would not be a possibility for so many people. Again, please use what you find beneficial and safe to use, but also, know that there are many people (myself included) who couldn't even sit up in those chairs, let alone use them regularly
Anyways.
Higher support needs disabled people needing help with things like eating, going to the bathroom, and showering isn’t gross or babyish.
It isn’t gross to have help showering, or using the bathroom, or any other bADL. Disabled people deserve not to be called gross for needing help with hygiene and things. Disabled people deserve to be seen as people if they need help with these things.
I’m a disabled person who needs help with showering, grooming, and sometimes eating (yes, physically getting the food from the fork to my mouth) and that doesn’t make me gross. That doesn’t make me babyish. That makes me a higher support needs adult. That makes me someone who needs help. Stop saying that these things are gross to need help with, or telling people that “you’re grown, you should be able to do this”. That isn’t helping anyone.
Especially with the autistic community constantly screaming about how we don’t need help with these things, when a lot of us do. A lot of us do need substantial help with bathing, grooming, and toileting. Some of us do need substantial help with all these things, and people need to realize that.