happy Barely Keeping It Together Wednesday to all who celebrate
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@sunsetxshadow
happy Barely Keeping It Together Wednesday to all who celebrate
"do it scared" ok but I would like to do something some other way occasionally. Like at least once. For a change.
Me lying down: I feel pretty much fine. What am I doing lying around? I should get up and do something. Or at least sit upright, damn.
Me when I’m upright: oh, Jesus. Oh, damn. Oh, RIGHT—this is why I was lying down.
being disabled will really have you thinking/saying things like “yeah i’m not really THAT disabled. as long as i take my meds twice a day (and as needed), eat and drink exactly the right things, keep the perfect balance of being active and resting, the weather is stable, and nothing unexpected happens AT ALL… i’m totally FINE! i probably should not even call myself disabled at this point because i’m doing so well!”
if you don’t want to call yourself disabled, that’s fine and it is your choice! but if you’re only “fine” or “doing really well” when a bunch of different variables are all lined up perfectly, then maybe you are not fine actually. just a thought!
Ah yes,,, it’s time for my weekly mental breakdown about all the trauma that being chronically ill and disabled causes….
air hunger isn't talked about when talking about pots when in my opinion its one of the most annoying. breathing in as deeply as possible for a prolonged period of time having to be extremely aware of the way you're doing it but you STILL don't feel like you're getting enough oxygen and you keep yawning and yawning. HORRIBLE
Ah yes, my favorite chronic illness game: is this normal, is this new, or am I dying?
Irritates the hell out of me when people respond to a post or comment like, "everyone does this, it's not just [disorder/illness/neurotype], it's called being a person."
Yeah and everyone coughs once in a while but it doesn't mean someone with pneumonia doesn't cough?? It doesn't mean pneumonia doesn't cause coughing??
Everyone gets dizzy once in a while but it doesn't mean vertigo doesn't exist??
Just about every symptom or group-common trait is going to be experienced by people who don't belong to those groups or have that disorder. It's about the frequency and intensity with which that symptom or trait comes up.
brain fog is so stupid. Like what do you mean my body is in such rough shape I have nothing but my thoughts but also I can't think?
Being chronically ill is like
“It’s fine”
“It’s fine”
“It’s fine”
*complete mental breakdown because you can’t do this anymore*
“It’s fine”
stop villanizing disabled people. stop assuming we're just being lazy. stop assuming we could be trying harder. stop assuming that we'll "feel better" in a few weeks. stop assuming that we have the same energy levels as everyone else. thanks for coming to my ted talk.
anyone else ever wish they could lie down harder? Like, I'm already horizontal, but I need more horizontal. I need to be absorbed by the floor. I think that would fix me
nothing in the world makes me more evil than just being kind of annoyed
me when i'm in genuine agonising distress: i'm so sorry if i'm bothering you with my childish histrionics :/
me when i'm just in a bit of a bad mood: i hope hydrogen bombs fall on every living thing in the universe
Girl I have POTS
oh thanks for the compliment unfortunately i don’t believe you