Still Alice by Lisa Genova (written in 2007) is an insiders view for someone living with Early Onset Alzheimers. It’s a fantastic story following Alice and her family as they all struggle with this debilitating and terrifying disease.
At fifty years old, when her memory is fleeting, Alice suspects menopause. She’s the right age for it and had nothing wrong with her physically. However after more and more instances of forgotten words, misplaced items and a chilling ordeal of forgetting where she lived, Alice goes to her local doctor to find help managing her symptoms.
However when Alice is referred to the Memory Dissorders Unit, she is stunned and and afraid of her damning diagnosis. Early Onset Alzheimers. With no way to treat or help prevent it further deteriorating, Alice is faced with telling her family and the guilt of a 50/50 chance of having passed it onto her children.
Alice’s job is a major part of her identity, working as a professor at Harvard as an expert in linguistics. When her dementia advances and Alice is no longer able to teach she can feel herself losing who is she is, as well as the grief of losing her mind. Scared and lonely,, Alice tries to navigate this depressing disease with a simple test. If and when she is unable to answer five personal questions, she made detailed instructions to commit suicide.
But what if she is unable to do that? How far will this disease progress and will Alice be able to express her love for her family before it’s too late? What’s harder, losing your mind or knowing it’s happeneing to you?
I loved reading this book. I worked as a nurses aid in two nursing homes and have cared for many people with varying stages and types of dementia. I found Alice to be very well written and loved how strong her marriage was. It’s truely a beautiful story that I’d recommend anyone to read. It’s also been made into a movie. If you have experienced dementia in you life either it being working with or having a loved one affected, it’s a good read for seeing how the person might be effected. I love that it’s written from the perspective of Alice who has dementia, as all other stories and help groups are for the carers and families.