#amnioticbandsyndrome

[studiotwelve52]

✨ Limb Difference + Limb Loss Awareness Month ✨ [Reposted from my business page] Obviously, April is a pretty BIG deal around here! “Approximately 1 in 1,250 (8 in 10,000) people are born with congenital limb differences and more than 1 million limb amputations occur globally each year, that’s one amputation every 30 seconds”. - @theamplifiedot <<< I was born with #amnioticbandsyndrome 🤘 It impacted my hands and feet (partial congenital amputations of fingers and toes), and it altered the development of my left leg (I also still have a deep band around my left ankle). I’ve had a series of surgeries on my hand and legs, lots of physical therapy, and many casts/braces over the years... So, I have a lot of stories to tell (and have also started to tell on my YouTube channel). 🥰 Random Tidbits: • My mom’s doctors saw no indication of ABS on her ultrasounds. My differences were a total surprise (PS. There’s no known cause for it, so new moms with #luckyfin babies... please, no guilt or blame, this is totally random and you’re in for the best dang ride of your life - they’ll blow you away ❤️). • I gave presentations on the first day of school growing up - sharing about my hands and my surgeries and how I could do anything anyone else could do... I gave similar speeches later in life to major musicians and MMA fighters when they first noticed my hands after I documented their events... before diving heart-first into weddings... • I still give similar little talks to folks I spot staring and invite them to openly ask questions because it doesn’t bother me. ☺️ • My goal has always been to help spread awareness on limb difference / limb loss. So if you ever have questions for me as well, please ask 😘. I’m an open book. • Snickering, gawking, pointing, pulling your kids away and not addressing their questions (making it feel taboo)... are all totally unproductive. • So, I encourage you. Challenge whatever potentially limiting thoughts you have about limb differences / loss this month (everyday). Because, I promise - if you and I are together in a room, and you believe there are things in this life I can’t do... you’re the ONLY one who feels that way 😉. (at Minnesota) https://www.instagram.com/p/CNJlC0Cn2SE/?igshid=1ekltf7iwlj5a

[vonamson]

#amnioticbandsyndrome #encephalocele #clubhand (at Phòng khám sản phụ khoa Bs Võ Tá Sơn - Maternal Fetal Medicine Center) https://www.instagram.com/p/CD_wTwXjx-gHxqEbFsLTLGdiysNIDA-YUyhg600/?igshid=10s479wme814z

[studiotwelve52]

VIDEO NUMBER TWO went live on YouTube today. I told myself I’d never cry on the internet... then I went and cried on the internet 🤣🙃. This was likely the most difficult topic I’ll have to address in SUCH detail. Also, I share the meaning behind the name “Studio Twelve:52”... link in bio 🖤 #amnioticbandsyndrome #luckyfin #luckyfinproject #luckyfinsrock #luckyfinsquad #limbdifferenceawareness #limbdifference 🖤✨ (at Rosemount, Minnesota) https://www.instagram.com/p/CAUNNJdBDcD/?igshid=lp0p8p5mafkb

[studiotwelve52]

It’s officially here! The Kasey Jean Rajotte YouTube channel is here! The very first video in my Amniotic Band Syndrome series is LIVE!!!! The link in our @studiotwelve52 bio will bring you to an “insta menu” where you can now click “YouTube Channel” and go view/subscribe. This topic has been something I’ve always wanted to spread awareness on. And I’m finally doing it. New videos will be added every week 🖤... I’ve only cried about 4 times since launching it, and I know the tears are only going to keep flowing today. This is such an emotional and personal thing to put out into the world... UFF DA! Here’s just a few random glimpses into what awaits you in my first video. Welcome to my channel!!! #amnioticbandsyndrome #luckyfin @lucky_fin_project #limbdifferenceawareness (at Studio Twelve:52) https://www.instagram.com/p/B_99yUqlAuD/?igshid=1gcs5bvnybpfd

[christinesjourney8]

I have been wanting to highlight an organization I recently became aware of the #luckyfinproject I recently received my #tenfingersareoverrated tee shirt. Which I think is absolutely awesome! Lucky fins mission is to CELEBRATE. EDUCATE. SUPPORT. UNITE. A Non-Profit aimed to raise awareness & support those with an upper limb difference.Creates a support network for parents across the U.S. and around the world. Links parents to medical information. Provides education on limb differences. (Note organization information is the from website.) http://www.luckyfinproject.org/ I have to say I am thrilled to see that there is an an organization like lucky fin in existence because growing I didn't know many people with limb differences . I felt completely out of place especially as teenager. Although I know my also having Cerebral palsy played a role in my insecurities I'm grateful to luck fin for raising awareness about limb differences. #tenfingersareoverrated #limbdifferences #luckyfinproject ,#amnioticbandsyndrome #limbdifferenceawareness https://www.instagram.com/p/BxIwGMXBYZe/?igshid=ujok1aejnb0z

[christinesjourney8]

I often post about aspects of my life and living with Cerebral palsy. I have seldom mentioned that I am also a congenital (present at birth) amputee,. Above the elbow on the right side. I was born with a rare medical condition called amniotic band syndrome. Amniotic band syndrome is a rare condition caused by strands of theamniotic sac that separate and entangle digits, limbs, or other parts of the fetus. This constriction can cause a variety of problems depending on where strands are located and how tightly they are wrapped.Amniotic band syndrome is estimated to occur in anywhere from 1 in 1,200 to 15,000 live births. No gender or ethnic predispositions have been identified with amniotic band syndrome.(Note) I used some information on the internet in order to in ensure I adequately explained the syndrome as a whole because the effects are varied. Additional information can be found at https://rarediseases.org/rare-diseases/amniotic -band-syndrome/ https://fetus.ucsf.edu/amniotic-band-syndrome#a0 The amniotic band also affected my left hand I was born with Syndactyly (webbed fingers) all my fingers were fused with exception of my thumb. I had a series of surgeries to separate them starting at about when I was one year old. I want to emphasize the cause of amniotic band is not fully understood. It is NOT caused by drug or alcohol use during pregnancy. I bring that up because it was a question I was asked a lot because of having multiple conditions. It is a common misconception that if you have birth defects there was alcohol and drug use involved . This was not the case for me all. The doctors characterized my unusual combination of conditions as a fluke occurrence. As you can see I took advantage of my prosthetic arm one year at Halloween when I dressed up as a a pirate. #amnioticbandsyndrome #syndactyly #rareconditions #disability #dispelingmyths https://www.instagram.com/p/BwIptToDWq4/?igshid=12f0p3y7myk59

[orthopedics]

A five-month old baby girl has a complete grade 2 constriction band on zone 2 of her right leg. The mother complains that it swells up with gravity depency and resolves with compression and elevation. This can worsen with growth and lead to unfortunate complications. We did release and primary closure after multiple Z-plasties. Will observe the left leg on regular follow-up if there's need to correct the grade 1 hemicircumferential constrictions. #orthopaedics #streeters #amnioticbandsyndrome #zplasty

[sweetpea2700]

#nephew #gamecocks #prosthetics #Tyler #meenasangel #lovehim #nolegs #amnioticbandsyndrome