#craniomom

[craniodad]

There’s something interesting that happens to the way people respond to situations after we go through stuff. You know, the kind of stuff that no one asks for, but that of which everyone has some version. Stuff that shapes who we are and how we relate to the world around us. If I am talking...

Putting this out there, again. 

Guys, my beloved bride, @minorinspirations wrote this the other day. I had not heard these words from her before, and it kind of flipped the script on what we had planned for the rest of the months vlog. 

Here is the thing. This is the stuff that NO ONE talks about. These feelings that she is sharing, I share them as well. But we bottle them up. 

If you want a raw, unfiltered, look into the abyss that is how life is with a child who has Craniosynostosis, this is better than anything that I could write to show you. 

Take some time, learn something new, and see the world though our eyes.

Live big, love bigger, and be kind, always.

[hollylaurenbihm]

This was the best feeling. This was the best (post op) hug with the messiest hair. 😘💙 #PICU #SunriseChildrensHospital #CranioMom #craniosynostosis #craniobaby (at Sunrise Children's Hospital) https://www.instagram.com/p/BmtsxgrHLAL/?utm_source=ig_tumblr_share&igshid=oxm4n22ice2h

[hollylaurenbihm]

Today marks 1 month since Maverick's anterior cranial reconstruction with frontal orbital advancement surgery. A day I was so incredibly nervous for. Its AMAZING how resilient kids are! Maverick was back to his silly self 3 days post op but the hardest part of this journey is protecting his head from bumps and falls. Thank you everyone for all the love and support through all this. He is healing very well. The first picture is Mav saying hi to everyone walking by in the hallway, 2nd pic is letting Daddy kiss his boo boo after blood work and the last is getting Maverick in his gown prepping for his procedure. 💙 #CranioMom #craniosynostosis #RightCoronal (at Sunrise Children's Hospital) https://www.instagram.com/p/BmtpAyLnATA/?utm_source=ig_tumblr_share&igshid=1pycscg7mpblk

[minorinspirations]

Lessons of Motherhood in 5 Years

Lessons of Motherhood in 5 Years

Almost five years ago, I posted 5 lessons I had learned about motherhood in 5 months. Looking back, they were pretty simple lessons and not all that profound. I had a steep learning curve in a child like Zoey. But even then there is only so much about parenthood one can glean within the first 5 months. But these lessons were initial stepping stones in our journey together. I was so grateful for…

View On WordPress

[craniofacialvegan]

Here's the start of a new album for 2017 craniofacial events. The majority of the annual wonder picnic pictures were taken by photographer and my dearest friend/cranio mom Shawna Sanders! I love you guys!

The event was once again nevertheless amazing, and there were three incredibly resilient cranio children in attendance, Sophie, Jordan and Shane. We all share craniofacial conditions too; Pfeiffer Syndrome, Crouzon Syndrome and Treacher Collins Syndrome.

I have respect for all of these mothers who are all incredibly supportive and selfless for giving their children all that they have. Support is something I didn't have growing up. These events are vitally important. In the long run, the interactive involvement in such gatherings will have such a great impact on these cranio warriors!

We're all sitting in the middle of the heart, which I must say came out beautifully radiant! Thank you to school teacher Kim McGrorty Naiman and everyone who contributed to this wonderful event! ❤

#pfeiffersyndrome #craniofacial #treachercollins #crouzon #microtia #atresia #disability #awareness #specialneeds #craniomom #differences #hearing #antibullying #friendship #kindness #love #acceptance #moms #cranio #bullying #diversity #raredisorders #birthdefect

[minorinspirations]

Still Frequent Customers

It’s funny how time and experiences change our perspectives. I remember the times when I used to post about every doctor’s appointment for Zoey. I posted about our questions, every medical procedure, many of the tests and treatments, and every so often, a few solid answers. My way of processing this sudden upheaval of Cranio to my organized and planned little world was to document all of it. List…

View On WordPress

[minorinspirations]

Home Garden Preparation: Seedlings and Tilling

Home Garden Preparation: Seedlings and Tilling

I am excited to report that we are in the midst of preparing for our home garden again this year! You may remember that last weekend we broke down the raised border from last year’s garden. This weekend we planted our seed starters and tilled the soil over the new garden space.

On Saturday morning, we sat down together as a family in our living room to plant our vegetable and flower seedlings for…

View On WordPress

[minorinspirations]

In Light of Craniosynostosis Awareness Month

I've been thinking about the phrase "God never gives us more than we can handle" and I don't agree with it anymore. There are a lot of things that we can't handle alone. I think God intentionally allows situations that make us realize how much we need Him and need other people. My love might have fueled a lot, but it has been channeled from the ultimate source of Love, and supported by craniodad, family, and so many friends. It has been more than I could have ever handled on my own, and I think that is more the point in celebrating our journey together.