#diamox

[pinkplasticprincess]

It's IIH awareness month. Be aware of me

[shyyycatsblog]

I have repeatedly told my specialist that the diamox for my iih isn't working anymore. For some reason, I seem to gain a tolerance to almost every medication I've ever been on 🙃 and so she upped the dose last time I saw her, which was two months ago. After a month, the higher dose still wasn't doing anything, so I called and asked if I needed to wait longer for a difference or if they wanted to try upping the dose again. They said they would call me back after they discussed it with my doctor. They never called me back. I have an appointment next month on the 16th, and I'm wondering if I should even bother calling them again, or should I just wait and confront them about it at my next appointment?

[theglowstickchronicles]

Diuretic gang is ✨ unwell ✨

[sleepy-spoonie]

After weeks of no medication & both my sleep doctor & neurologist refusing to treat me, on Friday, my neurologist started me on Nuvigil 150mg.

And so far, I hate it. I absolutely hate it.

Sure, it keeps me awake all day (so far), but I still feel tired. Not sleepy, but tired. I want to nap, but I'm awake and the Nuvigil doesn't want me to take a nap, so I just end up sitting and staring at nothing. It also suppresses my appetite so badly that when I do eat, I get sick. It gives me nearly debilitating headaches, compeltely different & worse than the ones that I already experience from my Chiari & Occipital Neuralgia combined. And I think, just like Modafinil, it's interfering with the Diamox which I take for CSF pressure.

I feel like I can't win, but I'll give it some time and see how badly I want to smash my head through a window before I call my doctor back.

[this-is-a-love-story-isnt-it]

I started a new epilepsy med, and it has one super weird side effect- the way your brain processes fizzy drinks? I was wondering why my soda tasted watered down but really fizzy. It’s like a two-part experience where the soda tastes flat and watered-down when it’s in your mouth, and then you swallow it and you feel the fizz and taste the CO2. Kind of like drinking sparkling water (the real stuff- not club soda lmao). It’s really weird, but I like it. The first time it happened I was afraid i was losing my sense of taste and was starting to get covid or something, but then that night I was looking at the list of side effects, and that’s one of them.

[briannamariec]

[pinkplasticprincess]

THIS SHIT IS SO ASS