why do people assume my symptoms will just go away when my tests come back negative? like you assuming my symptoms go away when tests comes back kinda makes me believe you never believed i had symptoms at all. im not a hypochondriac, im in fucking pain.
its been MAYBE 3-4 days of @disabled-systems existing and we have three people going off at us about being anti endo in our inbox as well as all the ones weve posted and the stream seems to be very steady. this is fucking ridiculous. god forbid you want YOUR OWN space ONLINE to be free of ableds and endos. you guys care way too fucking much about other peoples opinions when a block button is right there. christ all fucking mighty.
Disabled system culture is having chronic pain but being unable to remember how often it shows up or where it usually is.
Disabled system culture is also having alters who have different pain tolerances / are affected by the chronic pain differently and so we don't know how bad it really is
it is!! such a struggle to be a system with a disability, esp when youre trying to get diagnosed, so i feel you. our old doctor (we are in between doctors rn) was pretty dismissive when it came to our knee issues so it has been a rough journey getting a diagnosis that we just still dont have :( /nav, relating
singlet phys disabled people do also have pain fluctuations, dont forget that! you arent less valid for different tolerances. both your best and worst days count and you dont have to be suffering/miserable all the time to be chronically disabled! /supportive
just so yall know im not going to post every bothersome anon i get ^^ if they say some egregious ill respond but other than that im just not going to entertain this stuff! im so sorry the blog has been so aggressive recently :( i really genuinely just wanted this to be a nice blog for disabled systems yet here we are ! god forbid i have a dni, fuck me i guess /lh
oh, do i wish i could have a mobility aid. not in a able bodied wanting to be disabled way, but in a disabled way and not wanting to suffer with my disability way.
disabled system culture is oh man i hope whoever is fronting remembers to go to our dr appointments and knows what to say to the dr and takes our meds and keeps up with med changes....
the best thing we have ever done for ourself is force ourself to set reminders as soon as we make appointment because our ass WILL forget /lh
google calendar works really good bc it actually sends you notifs :) thats what we use!